A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos — Our Day at The Palace For The Queens Garden Party and then the Science Museum Cancer Exhibition.

Yesterday I felt like Christopher Robin. We had been invited to The Queens Garden Party.

So the day had arrived at last Dress bought Hat Bought so off we set.

We travelled in a taxi to the Palace from Victoria Station and met up with 7 thousand other wonderful guests. So many lovely outfits.

The gates open at 3pm and because we had walking sticks, so obvious disabled, we were ushered in first with other wheelchair users etc.

We all showed our passports and invitations then proceeded to walk into the garden.

We were shown chairs under the trees where we sat and people watched.

Listen to the Band

At 4 pm the Royal Family Party came out of Buck House, The Queen calls it the office, what an office, but then the heavens opened and it was so windy. This just didnt phase our wonderful Kate and William as with only an umbrella and no coat they strolled through the crowd. Everyone surges around them. It became difficult to see them but Princess Beatrice was away from the crowd chatting to everyone, she is very sweet just how I thought she was.

A gentleman asked me to talk to the Duke of Gloucester, he took my name asked why I was there. When I said Mesothelioma and Asbestos he said how that was how his Father died. We had a longer talk with him than the Duke.

As the time was getting on and I had to get to the science museum as the cancer exhibition reception was on as well and once again I had been invited, as I had my story and my DNA in the exhibition.

We went back to the gate on a Golf Buggy, just like the Queens so everyone was taking photos of Ray and myself so I gave the Royal Wave. This had people laughing and taking even more photos.

burst

We walked out the gates and found a taxi and entered the museum just as they opened the doors.

https://www.sciencemuseum.org.uk/about-us/press-office/major-new-science-museum-exhibition-cancer-revolution-will-open-lates

We had drinks and little canapés and the speeches to open the Exhibition. Debora James was supposed to be there but she is now so very ill bless her but I share her latest word here https://www.msn.com/en-gb/health/familyhealth/dame-deborah-james-scared-to-go-to-sleep-as-podcast-host-receives-end-of-life-care-for-bowel-cancer/ar-AAXKcFl?ocid=uxbndlbing

We walked all around the exhibition but couldnt find my story and another Mesowarrior friend said hers wasnt and she has been told there wasnt enough room so again Mesothelioma has missed out. We are both in the book so I will have to find that.

The Science Museum will open a major, free exhibition—Cancer Revolution: Science, innovation and hope—at a special edition of the museum’s popular after-hours, adults-only Lates event on 25 May. In partnership with Cancer Research UK, the exhibition includes objects that have never been displayed in the UK before. Visitors will experience the exhibition for the first time in London, encounter a new interactive artwork exclusive to Lates and take part in workshops and talks across the museum. 

Ray and I caught a taxi to Victoria Station to return Home. Shattered but so happy and It had been a wonderful day.

A Diary of a #Mesowarrior living with #Mesothelioma – Mental Health Awareness Week

The mental health charity Mind explains that loneliness is a personal feeling, so everyone experiences it in a different way. Living or spending time alone doesn’t mean someone is lonely. Many people experience loneliness despite having lots of friends or family around them. Loneliness is about what we get from our social interactions – whether we feel connected, rewarded and understood.

Feeling lonely from time to time is normal and isn’t a mental health problem. But research shows loneliness is associated with poor physical and mental health.

The theme of Mental Heath Week is loneliness. That was something I really felt when given the diagnosis of Mesothelioma back in 2009.

To be told you have 3 months to live and know you are going to leave this earth when you are not ready to go makes you feel so lonely. Then you feel so lonely when your told its terminal, no cure, makes you feel so unwanted and lonely and you realise that there is not enough research into your disease. So what you have to do is pull your big girl knickers up and shout, shout for backing and shout to raise awareness and be heard.

So lets put a hand out to people and ask the question are you OK today. Do you want to chat. or just lets sit here and watch the birds as they collect the twigs to make a nest or pick up ants to feed their young. Watch the lambs dancing and prancing in the field.

I did sit in the garden and watched the ants coming out of a hole in the earth and returning again.

Life is too short so you have to enjoy each day believe me I know x

Mental Health Awareness Week 2022: Loneliness

https://localgiving.org/donation/the-mavis-nye-foundation

A Diary Of A Mesowarrior Living with #Mesothelioma #asbestos Vandals must be aware of Asbestos

Cllr John Birch at the former Dairy Crest site (. )

A growing problem with vandals today is the fact they do not seem to be aware of the danger they put themselves in.

Schools should talk to young people and warn them that when they break into a building they run the risk of coming into contact with asbestos. They cant see it but it will be drawn down into their lungs and also stick to their clothes where they will take it home and contaminate their mothers as they wash the clothes and also their siblings as they play with them.

It wont show for years but it will show as it causes mesothelioma and their lungs are in danger.

This story published yesterday is a great example and should be heeded.

A derelict site in Totnes with buildings containing deadly asbestos is a threat to the health and safety of young people who regularly gain access, warns a local councillor.

Cllr John Birch has accused Fastglobe of abandoning the former Dairy Crest site with no regard to the safety of the community.

There has already been one fatality at the former processing plant. Student Ethan Bonnar, 22, of Torquay died after falling from the roof in July 2020.

The site, next to Totnes Railway Station, has been empty since Dairy Crest closed in 2007. Fastglobe bought it from the new owners Saputo in January 2001 but has yet to start any development on the land

Cllr Birch, Totnes ward councillor at South Hams Council, hailed the site a “dangerous eyesore” and says Fastglobe has ignored its statutory obligations to make the area safe.

He said: “My major concern is the willingness of Fastglobe to allow youngsters access to the site, on which they clamber in and out of derelict buildings that are are contaminated with asbestos and other dangerous materials and hazards.

“The gaps in the fence surrounding the site present an open invitation to youngsters to explore it, not knowing what dangers are surrounding them, and at times the entrance gates have been left open.”

Open gates at the former Dairy Crest site. (. ) (.)

Cllr Birch says ‘urban explorers’ have uploaded a “rash” of YouTube videos of the site since Ethan died, including one in May last year which shows a group of people walking around freely, and another a couple of weeks ago showing youngsters easily accessing the insides of buildings.

“These videos make a nonsense of the idea that these buildings are kept secure, or that the site is in any way secure from people getting in.

“Evidence of easy accessibility takes the form of widespread graffiti throughout the building that encourages visits by other graffiti artists who too put themselves in danger.

“There has already been one fatality and yet this seems to have been ignored by Fastglobe.”

Life Environmental carried out an asbestos survey of the site in 2015 and identified three buildings containing Asbestos Insulation Board (AIB).

The risk assessment firm recommended access should be prohibited to these buildings.

Totnes Community Development Society subsequently boarded them up but Cllr Birch says since this time the condition of the AIB will have deteriorated and released more lethal fibres, spreading the contamination around the site.

He said: “Exposure to asbestos fibres, which are known to be present, can lead to longterm health problems resulting in death.”

Cllr Birch listed a number of responsibilities Fastglobe has to the site, under the Control of Asbestos Regulations, which include assessing the risk of anyone being exposed to asbestos fibres, and preparing a detailed plan for managing the risks posed by asbestos containing materials.

“It is feared that the owner of the site is neglecting its responsibilities and in consequence putting youngsters lives at risk,” he stated.

Cllr Birch says he will talk to South Hams Council offers to see what steps can be taken to prevent any more accidents and possible deaths occurring on the site.

He also slammed Fastglobe for allowing the site to decay, accusing the glue firm of giving up on the site, leaving Totnes “saddled with a dangerous and unsightly mess.”

Graffiti at the former Dairy Crest site can be seen from the railway (. ) (.)

Totnes land agent, Patrick Gillies who is leading the Brunel Park Partnership, formed to oversee Fastglobe’s multi-million pound plans to transform the site into a mixed development consisting of a creative community hub, housing, holiday park, shops and business units, insists the site has not been abandoned.

Fastglobe aims to submit an outline planning application for the whole site later this year, he said.

Since acquiring the site, Fastglobe has carried out clearance work to provide maintenance access to the leat, ecological surveys, some essential health and safety works, and is working on a major flood modelling project with the environment agency.

Mr Gillies added: “Where we agree wholehearted with Cllr Birch is that the site is an eyesore in desperate need of regeneration.

“That is why we continue to work hard on bringing forward a viable, transformative scheme for the benefit of the local community.”

https://www.totnes-today.co.uk/news/asbestos-fears-over-derelict-site-that-attracts-young-people-546155