My friend Debbie is now in trouble like me and her Theo is growing (we give our tumour names as it is easier to talk about them)
Debbie is under Prof Vogl and so she has to find the funds to get to Germany. We are raising money for her
Her daughter writes
~Fundraising for Debbie~
Siobhan (Debbie’s daughter) here. A lot of you will have read already that my mum has been told that her cancer is growing again. Our oncologist, Dr Daniel, in the UK and Professor Vogl who performs the treatment my mum has in Germany both agree that her best chance at fighting it would be to perform the same kind of chemoembolization treatment that worked in the past but with a different drug (Alimta).
Chemoembolization is a procedure where “anticancer drugs are administered directly into a tumor through its feeding blood supply” (wikipedia) and is used in the UK to treat liver cancer. Pemetrexed, better known by the brand name Alimta, is also approved and used in the UK for the treatment of mesothelioma. But because professor Vogl’s use of chemoembolization to treat mesothelioma is still in research stages, we cannot get PCT funding to help pay for it despite that it was very effective for her before. So what this means is that my family (that’s my mum, me and my two younger brothers) have to find around £4000 to pay for it ourselves – no easy task.
I know my mum feels awful about accepting ‘charity’ from people and would not normally ask even our friends and so I don’t want to just beg for money. I’m selling these buttons for £1 each, which isn’t a huge amount but if everybody who sees this just bought one, I’m sure we could take a big dent out of that £4000 total already. If you would like to buy a badge and show your support, we’d really appreciate it! 🙂
I wish Debbie all the luck in the world and wished we wasnt fighting this disease together.
http://www.youtube.com/watch?v=PVuml-mfl18 This is also a video that is so Good and Informative that IATP are going to use it to cascade to bring Awareness to our plight.
Rod has told me the history behind it he said — The song itself is an Australian Classic by Midnight Oil, it was written about the town of Whittenoom in WA, a town built by CSR (Colonial Sugar Refinery) to mine and mill Blue Asbestos. It has been described as Australia’s greatest industrial disaster.
I keep missing Rod on Skype as today I was out in the sunshine and had the sound down on my computer, I hate missing a call from him as we have a good laugh together and he and Ray chat as carers and it does them good to talk.
I have had a good day in the garden still tiding up and just loving all the hardwork Darren did for me.
I had a chat to Joan and Gerald, who has had a Hernia Op and is very sore as he walks about. They have to keep going OOP!! North to Gerald’s sister who has got very confused and they had a phone call from the airport to say she was there and had no ticket but was going to Cyprus, errr she is but in June not now. So they had to rush up and sort her out and Joan asked “how did you get to the airport” she said “I dont know I must have got a taxi” Oh dear its such a shame and so sad that a person that just a few years was very in control of her life and now has got so confused.
We took Louis to the Country Park for a really good run off lead and the ground is really cracking up. Huge cracks as if there had been an earthquake. we have London clay here and it dries out but we havent had rain for so long I dread when we do because it might not know how to stop and if it cant soak through then we will have flooding.
They have been planting new trees how are they growing with no water around?
We returned home and I sat in the garden reading a book, I have listen to the advice and put a chair in different places so that I can relax when gardening and sit and read in a place to hide when I want to or sit in the open when I want to talk.
We had dinner (a fab Curry) in the sunshine tonight and lit the log burner which is going to be a real success in summer evenings when it gets dark earlier.
Im amazed at how I dont feel depressed now and feel very happy inside. I’m not feeling morbid at all so its onwards and upwards from now.