Living with Mesothelioma -My Diary- A party Weekend

Gosh we have had an eventful weekend.

It started Friday evening when we left home about 5.30 as the C&CC 30th birthday bash was at Faversham School so we couldn’t arrive before 5 anyway.

The Chairman had a nice little spot right by him on the end so we parked in there so that we then were able to open the door and Louis could get out on grass to play. We didnt know until Sunday morning that was a dangerous spot !!

We settled in and then found our friends Sonja and Kevin -well I did first and then Ray came up after playing with things in the Van.

We had a long chat and caught up on all our news and then went home to watch telly before settling down for a good nights sleep. We always do sleep well in the Van.

Saturday we had breakfast and the walked down to Faversham to try and find somewhere that sold window whippers as ours had shredded on the Friday night in the rain.

We couldn’t find a shop so I found a MOT garage and the man was really kind and sold one to Ray.

We walked around Faversham and in the market square a woman had her two grandchildren who saw a roundabout and were so excited as the rushed her over to it. I said your going to have a lovely time there.

She agreed as she was being pulled alone.

Click on the picture to enlarge

When we got back to the field and we had a snack taking Louis out again across the field off lead and playing ball, a man came over to us to warn us he was training dogs off lead. We had missed the fact a dog training class was going on and there were several dogs in the field. He said he was worried about mine as he could see he was so good off the lead and and was so well trained but he was worried about all those he was training and they might come over and have a go at Louis —haha  !! Louis fully trained !! I said i was interested in his training as Louis is such a nervous dog –on lead he hates being on lead as he never was on a lead for the first year of his life. So we have a card and will try and sort out some lessons

JCS Website Group

We have just realised they are right by us here in Seasalter

http://jenkinscanineservices.co.uk/

We went in to shower and get ready for the party night.

Let the party begin

These are the members that started the Kent Motorhome Section 30 years ago

My little group of camping friends on my table

The club had bought in outside caterers who served us champagne was served as we came in the door and then a lovely buffet that was really a carvery as there was so much meat -Beef Turkey and Ham and lots of homemade potato  salad, coleslaw, and all sorts of salads and then French apple tart, gatue’s, fruit salad and cream.

We had lots of great music -not a noisy disco but real entertaining music from the 30 years they have been running.

It was a great laughing evening.

So we finally went back to have a good nights sleep —wrong Louis started whining so Ray got up and walked him round the field in the moonlight. But it wasn’t the answer so I gave him some medicine in case the chicken I had served him was to spicy. He settled down

So about 2.30 he started growling and then I realised a fox was out side rummaging around the rubbish bag I had let outside, with one leap from his bed –the passenger seat –he leaped and fell on my face with a claw in my cheek and a scratch all the way down my face.

After I stopped the blood we all settled down and finally did get some sleep than 6.30am a car went by and then another and another “Oh no a boot fair” We did know there was going to be a boot fair but we didn’t know they would come in right by the side of us to get onto the field. That turned out to be highly amusing as we people watched and saw them set up their stalls and then people arrive to rummage through. this went on until 12 but we had our coffee morning in the sun and got ready to come home.

So we have had a brilliant weekend.

Rays Blog http://mesoandme.wordpress.com/2012/09/30/sunday-21/

Living with Mesothelioma –My Diary–A relaxed Day and Ray broke his Glasses

Although dry today it was a very grey and dark dawn today and it didn’t look promising at all.

I didn’t have any plans for today, sat on the computer and sorted emails and messages out, a lot of work to catch up on.

Ray went to take the gas bottle down to the Motor home and came back with his glasses in hands broken and the story of a hhhhuge Spider –I will leave it to you to read his Blog

We decided to go to Wincheap to buy dog food and a toy for him so when we were ready off we went. The road were empty not a lot of traffic which is unusual so it was a pleasant trip.

In Pets city we bought tins of dog food and treats and one of those toy balls where you put a treat in and Louis is supposed to be amused with it .Huh !!! no such luck its sat on the Lounge floor and he just doesn’t like it yet. Thats £11.00 wasted today.

We shopped for the weekends camping as Its the Caravan and Camping 30th birthday party -the Kent Motorhome Section has been running that long. I never even took notice of Motor homes then as we always went by plane or Coach for holidays abroad but we are so pleased we did start buying a push up top like this one.

VW Volkswagen T25 Holdsworth Villa 3 Camper van 1.9 Petrol  Picture 1

We were in a campsite at Challock but they have had to change it as we have had such a lot of Rain this week they are worried about having to move us off by tractor so I was really pleased when I got an email to say we will be at Faversham  School. Hard Standing is so much better in the winter.

So we are in for a great weekend lots of fun and camping friends.

We came back so we had a nice dinner early beef in beer and mash potatoes as the beer was cooked in the slow cook and it smelt so nice when we came in.

We have been looking at the Myeloma  sites and there isnt  a good Facebook site like our Mesothelioma Warriors and I feel Ray could bring this into his blog more as I told him while he was looking and helping others his knowledge of the disease would grow.

Also keeping him in touch with trials so that’s what he is doing.

He has blogged on Macmillian site and will go into their forum and maybe he will bring people together. From little acorns grow–and all that.

The day ended very nice with the sun out and they do promise a good weekend so packing the Motorhome tomorrow.

Love this cute picture from facebook

Rays Blog http://mesoandme.wordpress.com/2012/09/27/thursday-15/

Ray has had a battle with a huge spider today and broke his glasses he is now deaf and blind –what next ???

 

Living with Mesothelioma -My Diary- Another wet day today and It Mesothelioma Awareness day in the USA

Its been a funny day.

It started with a very early phone call from our son telling us ha s been head hunted for a wonderful job and he was so excited. I explained how life is mapped out and if the  opportunity lands on your lap it was meant to be.

We get given paths through our lives and we have to choose what one we follow.

So it was lovely he phoned to share good news with us.

Im so happy that his life is really so settled and he is very happy, nice wife, nice house, and a son and now a wonderful job coming up –That is all you can ask for just one cloud he has to throw in a good job now whoops !!!

So that started the day on a good note.

Lots of floods everywhere we are hearing.

Andie Jane Healy in York said this was her local pub

It rained –poured  like nothing we have seen for a long time –well since yesterday ha ha !!

Ray took Louis out and came back soaked and we took him out again at 12 in sunshine and then half way round we got soaked again.

So much that a car stopped to let us cross the road as he felt sorry for us in the rain.

Louis came in doors and while I dried my hair he stood in the doorway looking at me. I said “do you want toweling” and he came and put his head between my legs, so Idried him, he shook and went off happy wagging his tail.

Then the post van drew up. and he ha a huge box, we opened it and there was a lovely bouquet of flowers.

Photo: Flower from the flowerwarriors for my good result xxxxxx

The flowerwarriors have been sneaky and sent a wonderful gift to celebrate my good news of Stable xx Thanks so much they came at just the right time.

Debbie is busy tonight in her house as its Macmillan Tea party to raise money Friday but Debbie is having it tomorrow as she will be in chemo Friday.

So its cup cakes galore in her house.

It been Asbestos Awareness day today in the USA

Photo

Photo: For more facts on asbestos & mesothelioma, visit our blog: http://can.cr/mesotheliomaawarenessday

Mesowarriors

Lots of hard work has gone into the day and we can see its been a very successful day Well done all our US Mesowarriors.

Rays blog http://mesoandme.wordpress.com/2012/09/26/wet-wednesday/

Andy Williams died today so very sad always was one of my Favourites

http://www.youtube.com/watch?v=ZxEazBfPVFg

One of the best explanation of my Meso we have learnt a lot from this site  I know its a lawyers site but they are sometimes the best site for info as they are the experts http://www.resource4mesothelioma.com/topics/mesotheliomatypes.html

I have the

epithelioid, and I have never read before that it is the better one to have –if there is a good one-

Types of Mesothelioma | Facts and Resources

Mesothelioma is a rare type of cancer caused by exposure to asbestos or asbestos related materials. Like most other forms of cancer, it is separated into two groups, malignant and benign. Rarely is mesothelioma benign, so frequently any mention of the condition refers to its malignant state, known as a tumor. A malignant tumor will grow and expand, and can spread cancerous cells into other parts of the body.Topics included on this page:Types of MesotheliomaPleural MesotheliomaPeritoneal MesotheliomaBenign MesotheliomaCancer Cell Types

There are three main types of malignant mesotheliomas cells: epithelioid, sarcomatoid, and mixed/biphasic.

Epithelioid is the most common kind; 50-70% cases reported are of this type, which also has the best possibility of survival. This type affects the covering surrounding the internal organs and internal surfaces in the body. Sarcomatoid is much more serious, and it affects the secondary tissues such as bone, muscles, cartilage, and/or fat. This cell is much rarer, occurring 7-20% of the time. Mixed/biphasic refers to both types of cancers at once, and make up the rest of the 20-35% of the occurrences.

Aside from the types of cancerous cells, there are three main types of mesothelioma, and each affects a different area of the body.  The three types of this deadly cancer are:

Pleural mesothelioma is found around the pleural cavity around the lungs, and is responsible for 75% of all mesothelioma diagnosed. The second most common form is called peritoneal mesothelioma and affects the tissues in the abdomen, namely the stomach and intestines, and it accounts for approximately 10-20% of all reported cases. The rarest form is called pericardial mesothelioma, which affects the sac and lining surrounding the heart.

Regardless of the area it affects, mesothelioma is fatal. Survival rates are usually 1-5 years after diagnosis, but medical technology is rapidly improving not only the length but also of the quality of life for those victims of asbestos exposure who contracted mesothelioma.

Mesothelioma is truly one of the most devastating diseases imaginable.  Thousands of people across the country must come to grips with the fact the asbestos industry put their own profits ahead of the safety of their employees and the public at large.

Pleural Mesothelioma – Mesothelioma of Pleura

Pleural mesothelioma is a type of cancer that affects the pleural sac that surrounds the lungs, and is caused by exposure to asbestos. Pleural mesothelioma is the most common form of mesothelioma with estimated 75% of all mesothelioma cases being of this form.

Description of the Pleura:

The pleura is a sac which contains the lungs and also a thin membrane called the mesothelium which secretes a fluid that enables the lungs to expand and contract during breathing. Inhaling asbestos causes a build-up of fibers inside the lungs, and due to the microscopic size and sharpness of the fibers it is possible for them to penetrate the walls of the lung and enter the pleural cavity. As they migrate from the lung into the pleural cavity, the sharp strands shred and mutilate the mesothelium, destroying it and potentially causing cancer.

Thickening of the Pleural Fluid and Cancerous Tumors.

Once asbestos fibers invade the pleural cavity, cancerous tumors may develop which thicken the pleural fluid and inhibit proper lung movement. Tumors can also constrict the lungs and press on the ribcage or other organs resulting in agonizing pain. Also, because the lungs are responsible for re-oxygenating blood, should the cancer advance directly into the lungs it is possible for the cancerous cells to spread into other parts of the body through the bloodstream.

Pleural mesothelioma is often confused with less serious or deadly diseases such as:

  • Pneumonia
  • Common Cold
  • Whooping cough
  • The Flu
  • Laryngitis
  • Bruised/Broken Ribs due to chest pain
  • Sometimes there are no symptoms at all

Mesothelium Mutatation and Asbestos.

Scientists and doctors are do not know why asbestos fibers cause the mesothelium to mutate into cancer, but as more asbestos cases are reported, doctors are learning more and more about this devastating condition. It is believed that even one single fiber can begin the cascade of events that cause mesothelioma.

Diagnosis of Pleural Mesothelioma.

Although there is no cure for mesothelioma, early diagnosis provides doctors the opportunity to relieve a great deal of suffering, and prolong and improve many patients’ lives.  These avenues of treatment depend on the extent of the condition and the progession of the disease.

Development of Pleural Mesothelioma:

Because the time it takes for the asbestos particle to turn cancerous is very great – sometimes between 30 to 40 years – it can be difficult to spot. Most cases of pleural mesothelioma develop in the sac that contains the lungs.

Common treatments for Pleural Mesothelioma include:

  • Surgery: Surgeons can remove all or part of the lung to excise tumors or prevent their spread.  In some occasions fluid needs to be drained from the lungs, or in extreme cases the entire lung needs to be removed.
  • Radiation: Cancer is often treated with high doses of radiation.  This treatment uses high energy waves to kill cancerous cells, but unfortunately it also kills healthy cells and causes a number of peripheral health problems.
  • Chemotherapy: Strong anti-cancer drugs are pumped directly into the tumors or taken orally can inhibit their growth and spread, but these drugs can also cause severe health problems in other bodily systems.

Affects of Pleural Mesothelioma:

Make sure that if you or someone you love has developed pleural mesothelioma, you owe it to yourself to take action.  The asbestos industry allegedly knew of the dangers of their product, but rather than take action to prevent serious harm they hid this information from their workers and the public until the damage had been done.  Now, thousands of people hurt by this deception are coming forward to collect compensation for their pain and suffering, and you could be the next person to receive restitution for their condition.

Peritoneal Mesothelioma

Peritoneal mesothelioma is a cancer that affects the thin cell membrane called the peritoneum.  This collection of cells surrounds the gastrointestinal tract and provides lubrication for the stomach and intestines to move so that they may function properly. These organs must be able to move properly in order to properly digest and process food, and a failure in the peritoneum can result in severe and debilitating consequences.  Unfortunately, the symptoms of peritoneal mesothelioma can be so subtle that it can be confused with other, less dangerous diseases, and this aspect of the disease significantly contributes to its already staggering mortality rate.

Common symptoms of peritoneal mesothelioma:

  • Stomach pain
  • Lower abdominal pain
  • Difficulty with bowel movements
  • Weight lost
  • Nausea
  • Loss of appetite
  • Weakness
  • Abdominal swelling

When asbestos is ingested, minute fibers enter the stomach and penetrate the stomach lining. As more and more fibers penetrate this delicate organ, the cells on the exterior lining begin to mutate into cancerous mesothelioma cells. These cells accumulate into tumors, and eventually overwhelm the peritoneum, killing off healthy stomach cells in the process. Furthermore, these tumors prevent the peritoneum from making the protective lining that aids the stomach in movement. In less drastic instances, the tumors on the stomach lining grow and exert increasing pressure on surrounding organs causing agonizing pain.

There is no cure for any type of mesothelioma, but certain conditions can aid in treatment. Age, type of cell affected, size and stage of the tumor, and whether or not the tumor responds to treatment greatly affect what course of action doctors can take.

Common treatments for peritoneal mesothelioma:

  • Chemotherapy: Strong drugs are used to shrink the size and kill tumors, but these drugs are extremely potent and often cause significant damage to other healthy cells.  These drugs can be taken orally, or in some cases the drugs are directly introduced into the tumors if they are resistant to other treatment
  • Radiation therapy:  Radiation is one of the ways to treat peritoneal mesothelioma.  Powerful X-rays can kill diseased cells, but they also can kill healthy cells, and many people undergoing radiation treatment for peritoneal mesothelioma often suffer hair loss and other side effects.
  • Surgery:  This most drastic option often involves the removal of the tumor or cancerous tissue in the abdomen or gastrointestinal tract.  The necessity of surgery is generally based on the extent and progression of the cancer.
  • Vigorous treatment and early diagnosis are often the keys to long term survival. Unfortunately, mesothelioma lies dormant for years, so most victims do not experience any side effects until the cancer is extremely advanced. After the cancer has overwhelmed the stomach, it is rare for patients to survive longer than five years.
  • Victims of peritoneal mesothelioma

Many victims of mesothelioma take comfort in knowing that the asbestos industry will no longer injure innocent people through deception and blatant lies.  Another source of comfort many victims discover is through the law.  Thousands of people are taking action against the asbestos industry in order to recover financial restitution for their pain and suffering, and you could be next.  Let our dedicated and experienced peritoneal mesothelioma attorneys help you get the compensation you may deserve.

Pericardial Mesothelioma

Pericardial mesothelioma is the rarest type of the three main malignant forms of the disease.  The heart, as with any organ that requires constant movement to work properly, requires constant lubrication.  Lubrication comes in the form of a thin layer of mucous, and in normal systems the heart beats on as normal.

Effects on the Pericardium

Pericardial mesothelioma affects the pericardium, the protective sac that covers the heart and provides lubrication so that it can beat properly.  Asbestos exposure is the most common culprit of this debilitating form of cancer, a type that usually comprises 5% of all mesothelioma cases.

Pericardium Mutations

Inhaled asbestos fibers can pierce and shred the pericardium and cause mutations that can result in mesothelioma.  Once the cancer begins to spread, it can cause chronic coughing, chest pain, shortness of breath, and heart palpitations.  Like the other forms of the cancer, decades pass without incident as pericardial mesothelioma slowly destroys the tissues around the heart. Unfortunately, by the time symptoms appear it is usually far too late to treat pericardial mesothelioma with conventional drugs or therapies.

Common symptoms of pericardial mesothelioma include:

  • Shortness of breath
  • Different degrees of chest pain
  • Heart palpitations
  • Irregular heart beat
  • Coughing

Treatments for pericardial mesothelioma.

There are a few marginally effective treatments for victims of pericardial mesothelioma.  Radiation treatments are usually the preferred course of action to help slow the spread of the cancer, and chemotherapy can provide help in bolstering the effects of the radiation.  Another type of treatment involves “fine needle aspiration” to draw out excess fluid that collects in the pericardium, which can help relieve some symptoms.  In rare cases, doctors perform surgery to remove the pericardium, although this is usually a treatment of last resort.  This course of action usually only slows the growth of pericardial mesothelioma, for no amount of surgery, chemotherapy, or radiation will fully eliminate the cancer.

If you or a loved one developed pericardial mesothelioma as a consequence of asbestos exposure, you deserve a voice and you may have the right to seek financial compensation for your pain and suffering.  Let a dedicated and compassionate mesothelioma lawyer help you get the restitution you deserve.  You must act quickly, for the statute of limitations in your state could end your case before it has a chance to begin. Don’t wait – contact someone who understands your fear and frustration today.

Mesothelioma Cancer Cell Types

To understand mesothelioma is to understand cancer.  Cancer is essentially uncontrolled cellular growth.  Under normal circumstances, body cells in the hair, bone, organs, or blood grow to a certain point, die off, and are replaced by newer, healthier cells.  Unfortunately, most cancer cells are damaged to some degree, and as the body reproduces them they begin to take over for healthy cells, leading to eventual system failure.

Mesothelioma cells are divided into three main categories: epithelioid, sarcomatoid cells, and a mix of the two types called biphasic mesothelioma.

Cancers like mesothelioma can affect virtually any type of cells in the body, often radically affecting the prognosis and treatment options for patients.  The tragedy of mesothelioma is that it takes decades before most symptoms appear, and by the time the cancer is discovered it is too entrenched in the system to treat.

Epithelioid Mesothelioma

The most common and relatively treatable form of the cancer is Epithelioid mesothelioma.  Under a microscope this type of the disease is seen as a papillary or tubular growth and generally affects membranes and tissues that cover organs and other internal bodily surfaces. Between 50-70% of mesothelioma cases fall into this category, and this type is most likely to respond to treatment

Sarcomatoid Mesothelioma

Sarcomatoid mesothelioma is the most serious form of the disease, as it rarely responds to any treatment whatsoever.  Fortunately it is also the rarest, as it only strikes 10-20% of patients with mesothelioma.  It appears as spindle-shaped pattern of cells that overlap one another, and generally arises from support tissues such as bone, cartilage, muscle, and fat. Death usually occurs within six months of diagnosis of sarcomatoid mesothelioma.

Biphasic Mesothelioma

Biphasic mesothelioma is not a condition unto itself, but rather it is a combination of the other two types.  It can take on both the good and bad aspects of sarcomatoid and epithelioid mesotheliomas and 20-35% of all mesothelioma cases are mixed or biphasic.

Mesothelioma is truly the deadly scourge of the 21st century.  Because it takes decades before the first symptoms appear, many health professionals believe that there will be a mesothelioma epidemic in the decades to come.  If you or someone you love was the victim of this deadly disease, you must consult one of our dedicated and experienced mesothelioma attorneys today.  You may be entitled to compensation for your pain and suffering.  Don’t delay.  Call now.

 

Living with Mesothelioma -My Diary –Trip to Hernebay and we got wet again

I woke up and it had sunk in that Stable was a good result and I have 3 months to enjoy so I have Rallies to go to and conferences to enjoy and a speech to write.

I played the DVD Ray has made of my presentation  so I will write a speech to match it all as it contains photos of my journey these last few years.

Thought we would take a ride to Hernebay today as the sun was shining away after all the heavy rain yesterday.

The Windfarm was in the sunshine and the glowed white, the a black cloud from Essex rolled over them and  you could see it was raining out at sea. Weird!!

The council gardeners were pulling apart the summer display of lovely flowers

They had dug all this up, making it ready for winter.

They have also pulled down the sports hall that has been on the pier for years now.

Changes have really gone on since we moved to East Kent.

The seafront was empty from Visitors and the penny arcades had lights on but no one was playing the machines.

Louis had a good walk in sun and met up now and again with dog friend’s. Only having a bark once at a large Rockweiler. I think it reminded him of his attacker as it was very big and dark brown. We just said no and he stopped.

Walking on to the high street we shopped at the butchers for beef and turkey, well Ray did and he said to me dont go away in case I cant see what you want. He went to the wrong counter, the fresh meat side. I shouted in “on the other side, I cant trust him to do anything right” The two butchers rolled up laughing as he gingerly went to the other side.

Ray is writing his blog and he is telling the story differently.

Then we went to the greengrocers and Ray bought a bowl of Victoria plums. We tasted them and they were lovely so he bought another bowl. there were 3 pounds in each bowl for £2.00.

I have put 3 pound in the freezer to cook later and we have had so many plums to et this afternoon I have put another one and half pounds in the freezer so lots of plums for sweets through the next few weeks.

A lady sitting outside a cafe had been watching us and our plum tasting and buying hope she was amused and didn’t think us mad.

We started to walk back to the car and it started spitting and then pour down so we had to get a move on. Getting soaked again wasn’t funny. Louis was trying to rush back to the car as he hated getting wet, he stood and shook the rain from his fur every now and again, and glared at me, then guess what just as we reached the car it stopped and the sky turned blue again.

We drove back home and got held up with road works as in the winter they do all the road works now that the summer traffic has lightened up. the children are back at school and Christmas is staring in the face.

A lunch and a coffee then a little rest the afternoon passed by.

So I cooked a roast dinner tonight

We are to full up for the plums I cooked for sweet and to be honest we are plum full as well.

Rays Blog http://mesoandme.wordpress.com/2012/09/25/tuesday-19/

My friend Rose and Teresa have said –We went to Aldridge and found Ellie Simmonds Gold Post Box thought everyone would like to see one xxx

Living with Mesothelioma -My Diary- Good news Day —STABLE

My didn’t it rain in the night. It beat down on the roof all afternoon into the evening and then through the night.

Waking up today we took Louis for a early walk as it was result day and we got round in the dry, Then it started again.

We got to the Range (again to change a light) and I went to Matalan and bought 3 bra’s and 2 jumpers.  then we did Park and Ride to Canterbury I was so soaked on the bus like I have never been soaked before.

When we got to the hospital (late because there must have been a huge accident somewhere, as Ambulances and Fire Engine were rushing around )

I waited in the waiting room (very wet)

I was weighed and then called in to see my Oncologist. Hi you have stable result. Stable ! it didnt sink in at first as I really had felt doom and gloom because of all the pains.

It really must be all the nerves damaged by the tumours as they have hurt my arms and twisted my hands.

My Macmillan Nurse came in and we talked about the Conference I went to and the training meeting.

I said about my project and we wait to long for scan results,she said that scan results are taking 6 weeks and she was worried that I wouldnt get mine–all the doctors write letters of complaints –I was right they scan 7 days a week but only look at the scans for 5 days a week the back up is bad now, all down to money to pay overtime.

So I will report that back at me next meeting.

We discussed my talk in November and my video “I said it will be different to you boring doctors it will show my life and how I live it with Mesothelioma. The Oncologist laughed and said -your right and we will look forward to that.

We said goodbye and Ray went to get some batteries for his hearing aid. (you do know what happened to his hearing aid )

clue

Photo: Ray someone has heard about you looking for a deaf aid xx

We had a coffee in the coffee shop then caught the bus back to the Park and Ride.

It was still raining in sheets and the roads has so much surface water on them

It was such a bad day but I began t have the sun shinning as I realised I had good news. Stable is better than growth, although I wanted shrinkage i must be happy with Stable. So here we go to live the next three months to the next scan.

In a shop by the bus stop two shop assistants were playing football. uncaring that I was watching and hoping they didnt knock all the bikes over. Just a silly insight to someone else ‘s life.

We came home and I cooked scrambled eggs on toast and a coffee and then looked at my watch 3.15pm gosh I should have made a dinner really, the day has gone so very fast.

My other two Mesowarrior friends have had bad news. Both have it galloping away and I feel so sorrow for them. they are very strong still and are fighting away.

My heart goes out to them both.

Kiss and hugs to my Mesothelioma friends keep fighting Lou and Jan  love you  xxxx

Rays Blog http://mesoandme.wordpress.com/2012/09/24/good-news-day/

Living with Mesothelioma -My Diary- A very wet day and we keep getting soaked

What a wet and horrible day. It didn’t just rain it poured down and created surface water on the roads.

We went out to buy a DVD machine at Tesco’s so I stayed out side and walked Louis. I was drenched by the time I got back to the car. I put a very wet dog in the back seat. Smelly wet fur  is not very nice.

The car steamed up, we had the windows open and the blow air and full pelt. What a day.

I came home and changed out of my wet trousers and made a hot cup of coffee. wow what a day.

The reason for the DVD is I have bought this DVD

Move it or Lose it: Exercise for Older People: Routine 2

I have had it playing tonight and it is lovely for exercising my body, as it concentrates on building the leg muscles so Im very happy with it.

What it should look like

Move it or Lose it: Exercise for Older People: Routine 2

What it does look like ha ha !!!

But it was fun although Louis kept bringing a ball to play with, I had to shut him out.

Poor ray has been putting the rubbish out and he is soaked again –not a happy chappie tonight

Downton Abbey has just started so i will have to go.

Photo: woo hoo! Ready and waiting.. :)

Love this Drama so well made.

So that’s it tomorrow is Hospital Day so I will write my blog as soon as I know the result.

Night night !!!

Rays Blog http://mesoandme.wordpress.com/2012/09/23/sunday-20/

http://www.youtube.com/watch?v=oTTy3CP-sBM&list=PLs2LMXRPgSM64UU9uy1O8vMA3StzeTxkR&index=4&feature=plpp_video

Debbie has done a very powerful Interview in the USA –very moving.

Living with Mesothelioma My Diary-A ride to Deal

It was a very cold morning when we got up this morning but I learnt on Facebook from my friend of the lights that were in the night sky last night

http://www.sott.net/articles/show/251553-Uncertainty-over-fireballs-in-the-sky-over-Ireland-and-UK-September-21st-2012

Clear skies allowed a clear view of the fire balls which were witnessed right across the UK, Ireland and even parts of north west Europe.

Bright ‘meteor-like’ tails could be seen in the sky for approximately two minutes at 10.55pm on Friday night.

Reports of “bright balls of fire with tails of fire” came from across the region, including Belfast, Ballymena, Newtonabbey and Derry.

But experts are not clear on whether the spectacular show was a space rock burning up or a piece of space junk, such as a piece of satellite or aircraft burning up in the atmosphere.

Dr Andy McCrea, former president of the Irish Astronomical Association said the display was “spectacular” and “fairly unusual” he said it was unlikely that it was a meteor shower.

All very exciting.

After breakfast we went in the car to deal as the day really warmed up and the sun shone all day

Louis and I pose outside the Lifboat station

Funny things you see–a bike and a pair of steps just standing there all alone

Deal Castle

A Fishing boat ready to go out tonight

A very pretty display outside a pub

The high street of deal

We had walked right along the sea front letting Louis play with any dogs that were walking along with us he was very good and only barked at one because he was a barking puppy.

Deal High street has always been the right place to train him as there are so many dogs being walked there.

I bought a lot of fruit in my Favorite shop as they have so much to sell a good variety. I even got my pomegranate, I know its nearly winter when I can buy them.

We walked back then buying some naughty chips to eat in the car.

We passed the old Barracks

The Old Army Barracks which are now apartments.

http://news.bbc.co.uk/onthisday/hi/dates/stories/september/22/newsid_2528000/2528223.stm

http://en.wikipedia.org/wiki/Deal_barracks_bombing

I cant believe this but I just searched for the story of the explosion that killed our brave soldiers and today is the Anniversary

1989: Ten dead in Kent barracks bomb 22/9/1989

A devastating explosion at an army barracks in Kent has killed 10 young soldiers.

The republican group IRA has said it planted the bomb which blew apart the recreation centre at the Royal Marine School of Music in Deal.

Twenty-two men were also injured in the blast just before 0830 GMT – eight seriously – and two are still missing, feared buried under the rubble. Most of the victims were teenagers.

The device, planted in the recreation centre changing room, destroyed all three floors of the building and severely damaged dozens of nearby houses.

The blast was powerful enough to be clearly heard in the centre of Deal two miles (3.2 km) away.

“It was frightening – it was one of the loudest explosions I’ve ever heard,” said one woman who lives close to the barracks.

Rescuers and other marines from the music school attempted to clear away the rubble of the building with their bare hands in the search for survivors before heavy lifting equipment arrived.

One more soldier died a month later of injuries he suffered in the blast.

The Deal bombing was part of a concerted campaign by the IRA against the British armed forces during the 20th year of the deployment of UK troops in Northern Ireland.

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Im always thinking of them when I walk past the bandstand where the Royal Marines often used to play on a Sunday afternoon, there were all flowers around the bandstand but we hadn’t realized why -we should have guessed.

We sat in the car and ate or chips -far to many – Two dogs thought they could get in the open door which I had open to let the cool breeze in.

The owner was laughing  as we all thought it funny though if they had got in it doesn’t bear thinking about, I might have lost my chips ha ha !!

We drove home via Dover and A2, We went pass the Manston Airfield to Sandwich, so we have done a 70+ miles today and have thoroughly enjoyed it.

I came home and fell asleep as I forgot to say I woke up at 3am and couldn’t go back to sleep so stayed up.

Well only Sunday to go and then I can wake up Monday and get my results. Yipeee!!!

Rays Blog http://mesoandme.wordpress.com/2012/09/22/saturday-21/

 

 

Living with Mesothelioma- My Diary – Jan has explained my funny turn.

I had a long chat with Jan on facebook and it would seem that my funny turn yesterday is a known Meothelioma complication.

It is a adrenalin rush.

I have had these through the years and always thought it was because of a blood sugar drop. I even went to the GP and asked for a diabetic blood test, it said I was OK.

Now is that a thing they should take note of that if a patient comes in and says they have a feeling like their blood sugar has dropped, then they could ask if they have been in contact with Asbestos.

Wouldn’t it good if they had thought that all those years ago.

So I now know that I have had such a thing and that I have allowed my body to recover today and relaxed more.

It is good we talk to each other as then we can share our symptoms and get through these times. We would panic other wise.

I had a nice shower and we got ready to go out for a nice drive in the car. Ray had to change the solar light. The sill thing was coming on in the daylight and going off at night and then nothing at all.

We stopped on the way to let Louis run up a unused road where the farmer had ploughed the field, so we let Louis run free all over it but he didnt like the roughness and the stubble.

After playing ball we went back to the car,

I didn’t mind as I wanted to have a shop in Marks and Spencers as I fancied treating us.

Large Sushi Sharing Platter (48 pieces)

Ray changed his lights and we made sure in the car it worked. we went to PC world and the man asked if he could help– yes where are you mice–I of coarse meant mouse -but he knew what I meant and showed me a huge selection. I didnt know what I needed so i just closed my eyes and chose one.

Shopping all done so packing into the car

Straight home then for a cup of coffee and lunch of a Leek and Potato soup and a rest.

So thats my day apart from working on the computer and talking to Mesowarriors and friends.

The weather has really turned cold today and so the heating goes on for a while to warm the house up tonight but the weather forecast is promising a nice day tomorrow.

Rays Blog http://mesoandme.wordpress.com/2012/09/21/friday-21/

 

 

 

Living with Mesothelioma –My Diary– A funny turn while doing to much Oh Dear!!

I found out from my good friend Derek he had come down to the Tunnel in his lorry, filled with fresh salmon, that there had been a very bad accident on the M20 and I found out it was 4 lorries. and  the M20 was closed coast bound and the M2 was congested. I put a copy on all my Motorhome forums as so many come down to Dover and Folkestone on their way to France.  It must help as it does when its snowing I keep watch for everyone as they seem to go from Dec to Feb to get away from the winter here

Then I decided to do housework -Oh boy did I over do it today.

Once I could do a whole house in one day of changing furniture -now I cant do a Parkhome. Frustration is not the word !!!

I started and then my blood sugar dropped so low and I got the shakes. I stuffed a hot cross bun in my mouth and a honeycombe and began to come round.

Im not diabetic just took on more than my body allows now.

I kept sitting down and then doing a bit more.

I finally finished the front room and carried on through the day at different times and did the kitchen. (you know whats on my mind don’t you -a bad results and if I do need more Chemo) silly really I always prepare myself for a bad result–that’s the way I cope and then if its good Im even more elated.

Ha ha !! and a DVD came that I ordered guess what –an exercise DVD  for sitting down exercises.

We went out and bought some more lights and 2 dont work tonight, so we will have to change them tomorrow.

The only good thing that happened today was we met our old neighbour at The Range and he showed us the carpet he was going to buy. I could see before we got there for him to show us which one it was. The colours were so Sue and Des. I said yes that’s it.

We met Des outside clutching the carpet.

Des with his lovely Grandsons

We had a late lunch and I did the bathroom and then I fell asleep you would think that I could stay awake.

OI took the dog for a little walk when I put the dinner on, just a little walk to wake up an Louis was good and trotted along. We cant make it out he is always barking when he goes for his morning walk, it must be the excitement of getting out and seeing other dogs. He would love to be off lead and have a run with them but he cant so he gets frustrated on the lead. Until he has got off lead when we are out.

He hates the lead as it holds him back from games.

The ball is his whole life. As Im working here he brings his ball to me and i have to keep throwing it.

I got a message on Facebook —Stacy Cattran and I just had an asbestos conference call with gov’t, union and other officials from Canada –did you know that the Jeffrey Mine in Quebec is STILL exporting asbestos to the developing world? They have reserves left over that are still being shipped regularly. They have also already received $7 million of the Quebec loan prior to the PQ victory, so are proceeding with expansion plans and have no intention of shutting down. Asbestos has not been banned. We still export it and we still import it. The only thing that has changed is the Quebec and Federal Governments have decided to stop funding it (a huge step in the right direction). We need you all there on Sept. 29th to speak out against Canada’s asbestos policy.—————–

What a shock we thought we had won and now we find they have a stock pile to carry on with -this is so unfair the world must rid the fear of Asbestos

Living with Mesothelioma -My Diary- Rays Physio and my lovely Dog

Gosh the weather is defo getting cooler. I have realised that my summer setting of the furniture is silly as the settee has covered the radiator over so I plan tomorrow to have a furniture changing day –Ray will hate this as he has had 51 years of my passion for changing furniture and loves to tell the tail of when I turned the bed one night. He was in it –the alarm went off in the morning and he jumped out of the bed and –smack!!! straight onto the bedroom wall. He almost broke his nose.

 

Lunch was early as Ray had to go for his exercises with the Physio Gary so we took Louis to Tankerton slopes but it was so chilly in the wind which was overtaking the warmth of the sun.

 

These seagulls were going mad over some chips a man threw to them but Louis chased them away and they all flew off squawking away.

I gathered Louis up and put him in the car as it was getting late for Rays appointment.

On arrival at the Estuary view Surgery Ray went in and i walk off with Louis, just me and the dog walked watching a wood pigeon in the trees flapping about, and just enjoying the fact it was warmer away from the sea front.

We came back and sat in the car waiting for Ray to come out, Louis saw him first and he was up and tail wagging, looking out of the window with wet kisses when he got in the car.

 

That was the afternoon gone, I dont know where the time goes each day –how can we slow the days down?

Jan Eagerton received her flowers today which cheered her up, we have a little party of Flowerwarriors who send flowers to bring a smile to the faces of those that have had bad results etc. I love being part of this as we each take it in turns to send them.

My turn came today but I musnt say or it will spoil the surprise as they dont arrive until Friday as they have a long way to go —clue!!!

Photo: I am so touched by my fellow meso warriors, thank you so much for brightening my day.  Mavis you are a little tinker ....

Its lovely when the warrior puts a photo on so we can see how lovely they are.

So thats it just spending a quiet evening now with Louis playing around with his toys like a noisy child.

Rays Blog today he found out just how delicate his back is http://mesoandme.wordpress.com/2012/09/19/wednesday-13/

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