A Diary Of A Mesowarrior Living With #Mesothelioma April 28th Workers Memorial Day and Kathleen Rudd Rotterdam Convention Alliance -stop the use of #asbestos

Yesterday was Workers Memorial day and there were many services all over the world.

memorial day

It was wonderful to see so many people also calling for a World Wide ban of Asbestos as so many workers have been struck down with Mesothelioma while working.


Kathleen Ruff is a senior human rights adviser at the Rideau Institute, Ottawa, Canada, and founder and co-coordinator of the Rotterdam Convention Alliance. She has worked intensively for the past nine years with scientists in Canada and around the world to stop the use of asbestos.—a call for action on this hazardous substance

The United Nations Rotterdam Convention regulates trade in hazardous substances. It requires exporting countries to obtain prior informed consent from any country to which they wish to ship a substance on the convention’s list of hazardous substances. Thus the convention empowers countries to protect their populations by refusing or setting conditions over the import of hazardous substances.

Yet for over 10 years, a tiny number of countries have refused to allow chrysotile asbestos to be put on the convention’s list, even though the convention’s expert scientific body has repeatedly recommended its listing, stating that chrysotile asbestos meets the convention’s criteria for listing

At the convention’s conference in Geneva this week and next week (from 24 April to 5 May), the recommendation to list chrysotile asbestos will once again be put forward. The convention will also consider a proposal by a dozen African countries to amend the convention to allow a 3/4 majority vote to list a hazardous substance if consensus proves impossible

The Rotterdam Convention was specifically created to address the double standard whereby hazardous chemicals and pesticides that are banned or severely restricted in industrialized countries are increasingly being shipped to developing countries, where there are few resources to manage them safely. Thus, as populations in the global North gain greater protection from harm from hazardous substances, populations in the global South are increasingly exposed to such harm. The Rotterdam Convention seeks to stop this injustice by providing the modest but critical right of prior informed consent.


A dear friend Bradford Terry Britton spoke in Bradford of Australian Lou Williams who sadly lost her 15 year old Battle with Peritoneal and then secondary Pleural Mesothelioma.

He also spoke about my fight with Pleural Mesothelioma and my survival to date.

I hunted for a meet here in Kent but I don’t think we have one so I stayed on Social Media and tweeted all the news.


A POIGNANT service was held in Bradford today to mark International Workers’ Memorial Day.

Members of Bradford branches of trade unions including Unite, the GMB union and the Public and Commercial Services Union, gathered for the service, organised by Bradford Trades Union Council.

The union representatives left a red rose each at a memorial stone in Norfolk Gardens, where the service was held, under the motto: “Remember the dead: fight for the living”.

Workers’ Memorial Day is held on April 28, every year, when workers and their representatives hold events, demonstrations, vigils and other activities to mark the day. This year’s theme was good health and safety for all workers.

Carol Duerden, hazards convenor for Bradford Trades Union Council, said 144 people in the UK were killed at work during 2016.

During her speech she read out family members’ accounts of losing a relative at work.

She said: “Bradford was one of the first cites in the UK to represent for this event.

“We have been marking this day since 1991.

“If we are to fight for the living, we must also remember work-related suicide and workplace bullying.

“We will continue to work to never again have a loved one be seen off by their family in their work van and die at work.

“We know that a union workplace is a far safer workplace for people.”

Terry Britton, 73, of Tong Street, Bradford, is a former textile worker and represented Unite at the service.

He said: “It is important that health and safety is the forefront of everything for workers now.”

Councillor Richard Dunbar (Lab, Thornton and Allerton) said: “It is vitally important to mark this day.

“It is important we remember those who have been killed at work due to a lack of health and safety, support or management.”

Meanwhile, Keighley Trades Union Council held ceremonies.

Student representatives from Holy Family School were among those gathering in Cliffe Castle Park.

A service was held in Keighley Town Hall Square, where there is a garden dedicated to Keighley man Steven Allen and others killed in the workplace.

Mr Allen was 23 when he died at work, on March 9, 2007, when his head was crushed by a grab machine on a Bradford building site.

At a subsequent court hearing in 2012 his employers were fined more than £100,000 for causing his death.


A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos— The Mavis Nye Foundation is Registered Today.


Today is a an exciting day that took me totally by surprise.

We have been secretly planning with our Lawyers for a long time that I should use my name for a foundation to raise funds for Research and for grants to help other causes ie : one of them being my passion for extra funding for Mesothelioma Nurses.

I was also worried about the fact Mesowarriors are being diagnosed younger and younger so child care etc etc was so difficult for those that had to hunt for trials further away from their local hospital.

We have had so many meetings and we have been putting together changing and altering until we were satisfied.

I wanted the list to be so long so the Lawyers have had to sort me out and keep it small to start with then expanding as we grow.

So it finally came to putting it before the Charity Commission and I was so worried they would turn it down as they get so many. I also thought because of that fact it would take ages.

Last Friday we had an email to say they have sent amendments would we have a Meeting, so we agreed.

It was with a nervous trip to the park with Louis and a dash back yesterday to attend the meeting.

The team were all there and Trevor, our lawyer, read us just three amendments that the commission wanted to just tweak.

This was soon agreed and we knew it would be sent back today.

I Cant believe that we get an email today with the Commission saying


Dear Trustee

You have applied to register the above organisation as a charity.

We are satisfied that THE MAVIS NYE FOUNDATION is a charity and it has been entered onto the Register of Charities with the Registered Charity Number 1172765.

Our decision

The decision to register was based on our assessment of the information supplied during the application process and the declarations given in the trustee declaration form and we are satisfied that THE MAVIS NYE FOUNDATION is established for charitable purposes only for the public benefit.

At this point I just have to thank my Legal team who have worked so hard to bring my dream to the be an actual Charity. We would never have achieved this as I do not know all the legal pitfalls. they have kept me on the straight and narrow pathway.

There is still a lot of work to do as we needed a web page with information on and a bank account these are under way as we have an Accountant and a Web Designer, there are more meetings to bring a Board together but the worse part is over we have that so important number 1172765 CRM:0001606.

The charity’s details will be publicly available on The Charities Commission within 48 hours and we will be able to see it there.

My Dream has started I now will leave a legacy in a way I never thought possible.

dragon fly candle




A Diary Of A Mesowarrior Living With #Mesothelioma – #Asbestos In Schools Meeting at Portcullis House Westminster

We were off again to London again yesterday. The woman in the ticket office at Whitstable Station always asks where we are going as she said she loves our fascinating life.

We were travelling to, As I thought, a meeting at Portcullis House Westminster.

I never knew there was over the Westminster Underground Station such a place. I have never looked up as I’m rushing across the road to Big Ben.

portcullis9.jpg 11

We had arrived at security early so Ray was able to walk around and look at all the art on the walls.

Everyone arrived and the it was mentioned they were so pleased I had come and looking forward to my talk. MT TALK!! no one had mentioned that fact. I cant believe that I was able to tell it from memory and it was far more friendly with me not reading from notes.

I now know that with the new presentation Ray has worked out for me it is going to work so much better.

I spoke about my article on my Dear friend Tess and the Brent Report and Gill Reed that had spoken of the report that fired me up was there listening to me.


I was asked far more questions than normal and I really enjoyed taking part.

We carried on discussing all the problems of Asbestos In Schools and how we can get through to parents without causing alarm. Its not easy but it must be done so here is our contribution.

Children are good at taking in these warnings as I sad like the stop smoking. So many children told their parents off for smoking and that was great as the figures have gone down.

JUAC National Conference: Asbestos in schools: revealing the hidden killer

Tuesday 4 July 2017 

10.30am – 3.30pm  Registration from 10.00am

Hillscourt Conference Centre, Rose Hill, Rednal, Birmingham B45 8RS

“This conference, organised by the Joint Union Asbestos Committee (JUAC), is the first to take place about
asbestos, the hidden killer in our schools.  To learn more, join our expert speakers including Rachel Reeves MP,
asbestos campaigners, trade unions, medical practitioners, the Health and Safety Executive and the
Department for Education.”


asbestos in schools meet

I didn’t know that after 74 you don’t have to put your Occupation down when claiming so therefor the figures are not correct in the statistic’s for Occupations.


Protect our children and teachers from asbestos exposure in schools – Petition

Please put your voice to the petition for Lucie

To: Justine Greening, Secretary of State for Education

Protect our children and teachers from asbestos exposure at school

Parents have a right to know where Asbestos is in the school ask to see the Asbestos Register

This was such a Lively meeting and I’m so pleased I had the opportunity to attend.

The journey home was good and we arrived home at 7pm tired and happy



A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos – Our Cancer Meeting has fired Ray to make a Breast Cancer Video to help faster diagnosis


As we travelled to our Kent and Medway Cancer Action Partnership Meeting Yesterday we passed so many bluebell bell woods Oh so pretty.


We all met up and signed in finding a seat after say hello to all the members that were attending.

Naomi Webb The Cancer Service’s Manager  of East Kent  Hospitals foundation Trust welcomed us.

Ian Vousden K&M cancer alliance spoke so well about A New landscape The new 5 Year Inspiration Plan, very Interesting

There is a 62 day Target from first seeing a patient to treatment.

Faster Diagnosis

Radio Therapy Programme

New Diagnostic Assessment Centre’s all around the country

Extra Money to roll pout equipment nationally.

16 Alliances– this is NHS England so I don’t know about Scotland and Wales NHS. But if you are interested to play a part any Patient Carer can join in.

Mathew Kershaw and Dr Henry Taylor are leading this new Plan.

Ian kept talking about STP’s and I didn’t like to show myself up so being the Google Queen I have just found this.

Local plans to improve health and care

Sustainability and Transformation Plans (STPs)

The NHS and local councils have come together in 44 areas covering all of England to develop proposals and make improvements to health and care. These proposals, called sustainability and transformation plans (STPs), are place-based and built around the needs of the local population.

The keywords are Prevention Diagnosis, Living Beyond,  Treatment and care.

We are having 50% Survival in cancer.

They are heading for 31 Days of waiting time to get people on the Pathway 85% Nationally met this target for 2 years Running.

My Question was about Screening  Ian said The Screening Of Lung cancers will happen.

Then we had a discussion about what KM-CAP means to me.

David Hamilton went among us to say what it means to be part of the team. He had us laughing as he is so funny. He was a Lieutenant Colonel in the Royal Engineers. and I never knew that. He has a brother  who has just been diagnosed with Mesothelioma and asked if I would contact him to help him. We never know when we are going to meet a new Mesowarrior. I have his email so I will contact when I finish this blog.

Then we had a talk An Introduction to Co-production – A whole group presentation/discussion to:



A Diary Of A Mesowarrior Living With #Mesothelioma -#Asbestos Fly-Tipping The Problem Grows


There is a problem that is growing in the country- side.


Small builders are not only a danger to the public with this problem but a danger to themselves as they are not wearing any protection. OK do a cocky laugh and say its an old mans disease –but they take it home on their clothes and their poor wives or girlfriends have to wash their clothes and their children cuddle them as they arrive home.

20/30years time they will be wondering how they could possible have Mesothelioma as they start coughing and get a pain in the Lung.

My vet had seen more Mesothelioma than my GP which even means the dogs as they sniff around are picking up the fibers.

Flytipping of asbestos waste one local district council received 50 reports of flytipping incidents, which increased by more than a quarter (63) the following month. Recently, the incidence of illegal dumping of waste, including quantities of asbestos materials, have followed in quick succession across the UK

The Department for Environment Food & Rural Affairs (DEFRA) has highlighted that flytipping, nationwide, had increased by nearly a fifth, year on year. Over a 12 month period, 900,000 cases of fly-tipping in England alone were recorded – up by 5.6 per cent (DEFRA). While a third of all incidents consisted of a small van load of materials or less, nearly 6 per cent consisted of construction, demolition and excavation waste.

Penalties still seem unable to deter offenders

In July 2014, the maximum fine for flytipping was increased to £95,000 for individuals, £3 million for companies and a possible jail sentence of three years. However, between 2014 and 2015, it was reported that local authorities carried out 1,810 prosecutions against waste offenders in England. (House of Commons Briefing Paper, May 2016). In South Derbyshire, the local council had to clean up after nearly 500 incidents of fly-tipping, alone. In May this year, the government granted local authorities to also issue penalty notices of between £150 and £400 to anyone caught in the act of fly-tipping.

I don’t feel the fines are hard enough it really should be treated as a criminal offence when the tipping includes Asbestos.

Asbestos kills and has to be treated with care and protection of the public should be the concern.

dumped as


The problem is world-wide as more and more Asbestos is being removed It killed when Putting in and it will kill now its being taken out

An Auckland fly-tipper has dumped a Flexi Bin full of potentially hazardous material near where children play.

The Flexi Bin bag, filled with household rubbish and broken tiles, was dumped on Wednesday morning at the end of Rika Rd in Pt England.

An Auckland resident, who only wanted to be known as Casper, said he was concerned about the safety of children because he believed the skip bag contained asbestos.


Asbestos found in rubbish piles dumped in Great Bromley sparking warning to fly-tippers

Tendring District Council teams were called to Park Road and Mary Lane North in Great Bromley last week to clean up two serious incidents of fly-tipping.

Bosses said the small village, which is near Colchester, has been “blighted” by the crimes.

General waste and a significant amount of asbestos was discovered in the first pile in Park Road last Tuesday.

Specialist teams are to be brought in to tackle it and the council must fork out more than £3,000 to clear it away.


How could they go to a lovely place in the Isle Of Wright and dump here

Well someone did ASBESTOS was dumped at an Isle of Wight beauty spot this week.
Three one-tonne bags of the material, which can cause the incurable industrial cancer Mesothelioma, were dumped near a lay-by on the Downs Road, overlooking Newchurch.
The fly-tipping was reported to the Isle of Wight Council, which informed Island Roads, who sent a specialist to confirm the material was asbestos


Yet if they catch they only seem to fine £400 etc it really does need to be sorted and really hit hard when they catch people out. Sometimes people have seen it happen so take a photo of the Vehicle or the men doing it. Sometimes a clue is left, a receipt, a note , anything could lead back but mostly there isn’t any clues. and our countryside is suffering.

I checked HSE and I worry about their advice I feel it should say Always call in the experts but I suppose there is the problem of who would pay.


Removing fly tipped waste containing asbestos
Use the right kit   Wear a disposable, correctly fitted FFP3 face mask and Type 5 disposable overalls   Wear the overalls one size too big and put the legs over the top of footwear  Do not re-use disposable overalls and masksKeep dust down   For small amounts of waste, mix 8 parts water with 1 part washing up liquid in a garden sprayer and dampen the waste  Pick up large pieces and put in to a plastic sack without breaking.  If they do not fit, double wrap in plastic sheet and seal with duct tape  Use a rake and shovel to collect smaller pieces and put in the plastic sack  Larger areas of waste will need specialist removal. In the meantime, cover the waste securely with plastic sheeting and peg down with tent pegs.  Stick asbestos warning stickers to it  Secure the area until it is removed

Contact the local council or get a licensed contractor to remove large areas of fly-tipped waste

The simple steps outlined in this leaflet are not enough to protect against all risks from asbestos. For more information visit http://www.hse.gov.uk/asbestos
A38 09/14  V1.0 Page 1 of 2

Clean up properly   Use a damp cloth to clean tools and the area.  Put the used cloth in the plastic sack  Do not use a domestic vacuum cleaner or a brush as these will spread asbestos fibres into the air   Double bag all waste including masks, overalls and cloths in plastic sacks, seal with tape and label as asbestos waste  Contact the local tips in your area to find one that accepts asbestos wasteThe simple steps outlined in this leaflet are not enough



A Diary Of A Mesowarrior Living with #Mesothelioma #Asbestos – We say goodnight to Our Lou and Flowers from 12 Kings Bench Walk @12KBW



Such a sad day today lou

We have had to say Goodnight to Lou Williams. She is Australian and has had a wonderful life traveling around the world and living in European countries.

Although she talked and shared her blog she was in fact a very private person. We never got to know the true Lou.

She had asked me how to write a blog and I helped her to start one

In 2013 where one of her writings was about the regrowth

She kept beating the disease but it always grew back Her famous words were never,never give up We never will xx   :-

Thursday, February 7, 2013

After one lost blog of a couple of year’s ago I have finally started a new one and this is my first entry!  Every morning when I wake up and ask myself what is on my list of things to do today – make a blog pops up always and I remind myself ‘today is the day’!  However up until now it has been in the too hard basket.

Not sure what I will write in this blog as so much has happened over the last few years, in particular with mesothelioma and asbestos.  Random thoughts I will jot down from time to time and try to put dates to these thoughts.  Depending on how exhausted I am will also determine how much blogging that I do.

A slow start for today – I woke at 7am and couldn’t lie in bed any longer, got up, fed our beautiful siamese cat Charlie with his brekkie (free range chicken that he loves), made a cuppa of green tea and toast for myself then sat in the comfortable chair/lounge room and watched an hour of the Today Show on TV to get the latest headlines and also see if it will be a high fire danger day here – yes it is a high fire danger day here with winds expected to turn around later today.  Luckily there are not major outbreaks of fires close by, although there have been a few started by ‘nutters’ – most of these have been able to be contained thanks to the dedication of our CFA (Country Fire Association) members and volunteers.

I am still on this computer at 10am!  The time goes so quickly when I am on here, checking facebook, emails, replying to emails etc – all of which I love doing.  Shower time now, a drive up to Mt Macedon and the general store/cafe/post office to get our post box mail and no doubt stop and have a chat/coffee with friends while sitting outside under the shade of the beautiful Silver Birch trees watching the antics of the black birds pecking the ground for any crumbs of food they can scrounge, plus watching the wonderful display of old cars/bikes head up the Mount (Mount Macedon Road).

Later today – depending on whether it is safe to return home or if we need to evacuate due to the high fire warning will determine what the day brings!

Have a nice day/evening.


All the way through that’s how we knew Lou Always doing trips out and eating in such lovely little cafes
and also More treatment

 Saturday 20 December (THE BAD DAY)
Saw specialist 10am.  He said ‘Biopsy says most probably mesothelioma’.   This specialist looked at us while trying to pronouce mesothelioma, said ‘I am so sorry it is very aggressive’,   I looked at him and pronounced the word mesothelioma for him and said my dad died of this cancer in 1985 aged 54 years.  Both Keith and myself were numb/dumbfounded of all the cancers I did not ever expect to get mesothelioma/asbestos cancer as I DID NOT WORK WITH IT like dad had done in the building industry!
This specialist referred us to my current oncologist ‘ Allan Zimet’ and arranged an urgent appointment for Monday with him.

After going home and just feeling totally numb, in shock and hugging each other on the bed not wanting to take in this news, not answering the phone because not wanting to tell family/friends my bad news, the spell was broken when my girlfriend Sue knocked on the bedroom window loudly and said ‘Lou open the door, I have your favourite muffins with me’  It was her way of saying ‘I am here to support you in every way’.   While Sue made our cuppa and muffins, Keith returned family/friends phone calls/messages until I was stronger to ring myself later that evening.

When I went on Immunotherapy Lou asked me all about it and found she could go on Keytruda if she paid. I helped her Doctor on how much dosage I had and what I was finding in Side Effects.

Lou started her petition to get the drug on the free list and so many followed her paying so much for the drug.

It did work for most if only given them a few more months to be with their loved ones.

Then sadly we heard that Mesothelioma was taking over but she was strong in mind if not in body. Asbestos has won another victim today and we mourn the passing of a wonderful Mesothelioma Warrior. http://asbestosaustralia.blogspot.co.uk/


I was so sad as I sat on the computer and then the telly was turned over to the news of a General Election churning out a load of talk that will go on and on until June the 8th. Ray said come on lets get out for a walk in the sun. We did and the wind blew fresh air into my Lungs and I did feel better.

Once home a van pulled up and a Lovely Bouquet of flowers was delivered.

It was from 12 Kings Bench all the group thanking Ray and I for speaking but they couldn’t have come at a better time and it bought a smile back to my face.

Thank you Harry and the team they are lovely .


A Diary Of A Mesowarrior Living With #Mesothelioma Asbestos -Happy Easter and a Chat About #Asbestos Imports


I wish you all a very happy Easter although the weather isn’t very good. I hope the sun does come out.

When I think about Easter, there are a number of foods that immediately come to mind. They include hard-boiled eggs, ham, and roast leg of lamb, not to mention jelly beans, Peeps, and Cadbury eggs. But above all else, the one thing that stands out as the food of the season is hot cross buns.

Growing up I could always count on my to be up and baking us plenty of buns but with just Ray and I it doesn’t seem worth it and it would mean I would eat far to many.

hot buns

What are hot cross buns?

A traditional hot cross bun is a yeasted sweet bun that’s lightly spiced and studded with raisins or currants, then marked on top with a cross that’s either piped in icing or etched into the dough.

While hot cross buns are now sold and enjoyed throughout the year, they were once reserved for Good Friday alone.

There isn’t one clear explanation for why hot cross buns make their way to our table around Easter. Some theories rest in Christian symbolism, though there are several stories (and even some tall tales) about their origins. Some talk about hot cross buns (which may have at one time been called Good Friday buns) being baked and eaten solely on Good Friday, while others mentioned them being eaten throughout Lent.

Here are a few of the stories that are told about hot cross buns.

1. A 12th-century monk introduced the cross to the bun.

The origins of hot cross buns may go back as far as the 12th century. According to the story, an Anglican monk baked the buns and marked them with a cross in honor of Good Friday. Over time they gained popularity, and eventually became a symbol of Easter weekend.

2. Hot cross buns gained popularity in Elizabethan England.

Towards the end of the 16th century, Queen Elizabeth I passed a law limiting the sale of sweet buns to funerals, Christmas, and the Friday before Easter. The English were deeply superstitious, believed the buns carried medicinal or magical properties, and were fearful of those powers being abused. Some even believed that buns baked on Good Friday would never go stale.

As a way to get around the law, more and more people began baking these sweet buns at home. Not only did they grow in popularity, but the law became too difficult to enforce and was eventually rescinded.

3. Superstitions about hot cross buns baked on Good Friday.

There are also more than a few stories that indicate hot cross buns were baked on Good Friday for superstitious reasons. One tale states that buns baked on this day and hung from the rafters of a home would ward off evil spirits in the coming year. Another talks of these buns protecting sailors from shipwreck, while off at sea. Yet another version mentions that sharing the bun with a loved one guarantees friendship in the coming year.


On the asbestos front just look at what you can still buy today. http://m.asbestospacking.com/asbestos-yarn.html

I do hope Customs are on the ball and confiscate these products if bought but I really do fear that things are getting through.

The Flask has reared its ugly head again.

Thermos flasks containing deadly asbestos materials for sale in the UK

Boyes Turner previously reported on a case of children’s toys being sold on ebay, that story can be read here.

Recently, insulated flasks available to purchase on ebay, Amazon and in John Lewis have been recalled after it was realised they contained asbestos within them.

The flasks which were manufactured in China had loose fill asbestos packed within the two insulating walls of the flask for heat retaining purposes. If one of these asbestos containing flasks was dropped and the outer wall of the flask was cracked, deadly loose asbestos fibres could be released which could cause the fatal disease mesothelioma if they were inhaled.

The flasks in question were the “1 litre Pendo flask” (picture below). The precise models being recalled are those with the barcode: 5050577588369, and the model number: O-58836.

Thermos flasks containing deadly asbestos materials for sale in the UKThermos flasks containing deadly asbestos materials for sale in the UK

A link to the product recall can be seen here.

If you have one of these flasks and you suspect it may contain asbestos stop using it immediately and contact your retailer to see if your flask is a part of the product recall.

Its 2017 and Asbestos was banned in 1999 we really should not be reading stories like this but we are which goes to show we must be vigilant all the time.


The more I delve the more interesting facts I find such as this article

A 1950s medical journal rated Kent as one of the best cigarettes for removing harmful tar.

The packages above represent a typical Kent cigarette with the micronite filter package. The filter media is made of crimped layers of paper, typical filter fibers and crocidolite fibers.

Manufacturing cigarette filters using the ‘dry’ process; this involved mixing the crocidolite and other substances and depositing the mixture onto filter paper.

There is an excellent eBay seller that when listed has some the best Kent micronite filter displays accompanied with a very detailed explanation behind the micronite filter and its composition,  Also there have been many in-depth analysis of the Kent Cigarette one such research document is titled Crocidolite Asbestos Fibers in Smoke from Original Kent Cigarettes, by William E. Longo, Mark W. Rigler and John Slade.

Other Asbestos Uses With Tobacco

A compound of tobacco and asbestos was mixed to make paper for cigarettes. The paper is cut up like cigarette paper, and a number of leaflets are put together in book form. To use it you take a leaf and roll it up between your fingers, and it is ready for smoking. As asbestos has neither taste nor smell it does not interfere with the flavor of tobacco, while the veil effects of smoking are obviated.

For pipe tobacco the mixture was made up so that the asbestos is not observable in the mixture. It was very cool to smoke and consumed the nicotine in the tobacco, while it burned right down to the bottom of the pipe. A pipe smoked  with this tobacco-asbestos was said to be always dry and left no filthy moisture in the stem.

Robert H. Jones, Asbestos, Its Properties, Occurence, & Uses, London, 1890

What to do with those Asbestos Ashes

Where else would you flick those asbestos ashes but an asbestos ashtray!

 History has a lot to answer for the deaths of Mesothelioma please lets stop the madness of Asbestos



Source http://www.thekitchn.com/heres-why-we-eat-hot-cross-buns-at-easter-holiday-traditions-at-the-kitchn-217463

Funding for #Mesothelioma UK

Image result for picture of someone writing
Mesothelioma UK is our Charity and many of us would like to raise funds but don’t know how.
One huge way for a more long-term help is to leave money in our wills.
Macmillan does well with that MesoUk doesn’t so that is a great thing to do maybe get all our relatives to do the same.
Gifts in wills are an amazing way of continuing your support long into the future.
We have to visit a Lawyer over our claims for Mesothelioma Compensation we could at the same time do an amendment to our wills or write a new one. We are told to get our affairs in order so that is what we do.
When we, or our Carers  plan our funerals we can say no flowers and have a collection to pass to MesoUK.
Well that’s got the more morbid idea out the way  so lets do things that are more happier.
We can do many things easier like invite neighbours around for a coffee morning a just giving Page or a Fund me page to share amongst our friends and family.
They of coarse, being fitter can do fun runs or walks where even our youngsters can join in.
Please get together and plan something.

Fundraise for Mesothelioma UK

Fund for Us

We need your help not only to raise funds but to raise awareness about the dangers of asbestos and the disease it causes.

The Charitable Trust will always welcome new supporters to organise fundraising events on our behalf such as cake sales, coffee mornings, jumble sales, or quiz nights. Maybe you would like to run in a marathon, or cycle from London to Paris or attempt the ‘Three Peaks Challenge’ ‘Trek to Machu Pichu’ or take part in some other sponsored event to support Mesothelioma UK .  .

Have a look at our Fab Fundraisers for inspiration and see what wonderful personal goals and achievements they have reached and the sense they feel afterwards of doing something great!

Let us know about your fundraising endeavours as we can help you every step of the way with your event by providing t-shirts, collection tins, leaflets, posters, gift aid forms, sponsorship forms and much more.

Doesn’t matter how old or young you are you too can take part and raise awareness. If you are a pupil, teacher or just involved in a school, read about asbestos in schools and why we should highlight the dangers that may be there. Asbestos in Schools

Mesothelioma is mainly a chest cancer that develops between 15 and 60 years after exposure to asbestos. Only six per cent of the UK population know what the disease is, yet this deadly cancer kills one person every five hours in the UK. The rising number of deaths from the condition is linked to the use of asbestos in the building industry up until the mid 1980’s and it doesn’t discriminate, it can affect anyone even if you haven’t worked with it you may have been exposed through a secondary route and all it takes is one fibre inhaled, so please take up a challenge and get the message out there.

Asbestos is Dangerous, let’s do something about it…………

Jill Lemon Fundraising & Marketing Manager.






A Diary Of A Mesowarrior Living With #Mesothelioma – 12 Kings Bench Walk Annual #Asbestos Seminar 2017 Asbestos Awareness Week #2017GAAW

Boy I had a wonderful day Yesterday at the First Annual Asbestos Seminar 2017

I had a huge influence on this coming to fruition  way back at the Mary Seacole book signing with Trevor Stirling. I met Harry Steinberg QC. He was just like the QC’s I had seen on TV. Handsome and Dynamic, he has a lovely smile and we hit it off.  I could sum him up and I liked him as I do my lawyer (don’t get jealous Trevor ) ha ha !!

It doesn’t matter about Ray x


So I was invited to speak as Harry thought it was good for a patients story to be told at this Seminar.

The day finally came and we fast trained to London where I had arranged to meet Aliyah Akram.

She was waiting there with a sweet young man who took my case and dragged it onto the Underground where we travelled to The Courthouse Hotel in Shoreditch, We knew then that Harry was held up in Court as he had to do a summing up of the trial he had been evolved in all week. He was so gutted after all the planning of the day.

The Great Marlborough Street Magistrate’s Court, now Courthouse Hotel, is a listed building in London that set the scene for many famous cases over the years, which were either heard there or taken to full trial at Crown Courts such as the Old Bailey. This was the case with the first obscenity trial for a comic book in English history, against International Times in 1971. John Lennon’s sensational court case regarding the sale of sexually explicit lithograph drawings was thrown out on a technicality in 1970, and Mick Jagger spent time here defending his name when it was alleged he was caught in possession of cannabis (and Marianne Faithfull). Keith Richards received a £205 fine here in 1973 for possession of marijuana, heroin and mandrax, as well as a Smith and Wesson revolver and an antique shotgun, both held without a license. Oscar Wilde also had the start of his ‘Queensbury’ case heard in the building.

Many remnants of this time have been incorporated into the building’s current scheme. Original Robert Adams fireplaces adorn some of the suites, and The Bar’s private tables are actually inside three of the original prison cells. Silk, the hotel’s destination restaurant, is the old Number One court where the Judges bench, witness stand and dock take centre stage. Elsewhere in our hotel in London’s West End, glimpses of its former use can be seen – such as the iron bars that separate the lobby lounge from the Bar.

Wow! so much history as we walked up the steps into the building where so many famous people have walked in.

We went to a restaurant and had the room to ourselves where we were joined by Yvonne Waterman of EAF who had travelled over from Amsterdam. Lovely to meet up again, and Nicky Howe from Moore Blatch.

Then we all went down in the lift to the Conference Room and The Proceedings Began with Ray and Myself as key speakers.

I opened with ” I know how to do this as I watch Judge Rinder so we open Asbestos in the dock and the only verdict is guilty.

I was so nervous that poor Ray who was supposed to talk first but I carried on as I was talking I suddenly realised what I had done and I was lost for words. But then carried on.

Ray then gave his wonderful talk as he does it so well.

We were followed by my wonderful Doctor friend Jeremy Steel who is Co-Director of Bart’s Mesothelioma Research. He is a Consultant in Medical Oncology at St Bartholomew’s Hospital, the Royal London Hospital and the London Chest Hospital. He qualified in medicine at St George’s Hospital, London in 1989. After training in general medicine and intensive care, he moved to the Royal Marsden Hospital where he treated his first mesothelioma patient.

He gave a great talk on Immunotherapy and he said that as I was the only Patient to get a Complete response my case will be used as the evidence to carry on and research  pembrolizumab he corrected the fact I use the Commercial name Keytruda.

Dr Steele’s big message is immunotherapy: the new frontier for mesothelioma treatment

Patrick Kerr He has particular expertise in mesothelioma claims, cross-border and foreign jurisdictional claims spoke next on the legal implications of the drug and that he agreed with the point I raised that they have to claim for the private use of the drug as did Jeremy.

After a break we had a dynamic Man That I adore .  He didn’t need a microphone as he has the most powerful voice I have ever heard !!!!

Brendan Tully: a leading New York attorney will talk about asbestos litigation and product liability in the US, and what UK lawyers need to know

A Partner at Phillips Paolicelli LLP, Brendan represents veterans, workers and families who have been exposed to asbestos products and other dangerous chemicals. He also represents accident victims and people that have been catastrophically hurt through medical malpractice.

Brendan has won tens of millions of dollars for his clients in verdicts and settlements and has garnered a national reputation for his work on asbestos contaminated consumer product cases and international product liability cases.

We where all shocked to hear where asbestos had been in talcum powder. Avon talc was one of them and I said we women in the 60’s/80’s all used that one. He also talked about Cape as did the speakers after Brenden Although in South Africa they supplied the asbestos to the US and that came to UK so if you can trace back your contamination to US products we can claim and Brenden sorts all these cases out and is over here to sort such a claim in Wales.

Brendan is a senior trial attorney with Levy Konigsberg representing veterans & workers who have been hurt by dangerous products. Brendan has won tens of millions of dollars for his clients in verdicts and settlements and has garnered a national reputation for his work on asbestos contaminated consumer product cases and international product liability cases.

Brendan is one of the nation’s leading trial lawyers in cases involving consumer products that were contaminated with asbestos. He won a $7 Million verdict in 2015 for a woman who died of mesothelioma after being exposed to asbestos from her use of contaminated scented body talcum powder. Brendan’s win was the first time that a consumer was able to hold a company liable for an asbestos contaminated cosmetic talcum powder in New York State. Brendan also pioneered cases regarding asbestos contamination in lawn and garden care products.

Brendan is also an innovator in international product liability cases. Due to his expertise, he has lectured in the United Kingdom to both law students and solicitors regarding product liability law and asbestos litigation.

Brendan regularly serves as “first chair”/lead trial attorney in complex personal injury trials and has obtained some of the nation’s largest recoveries for his clients. For example, In 2015, as the lead trial attorney for a NYC electrician who worked in powerhouses and developed mesothelioma, Brendan obtained a record-setting settlement after six weeks of trial. Similarly, In 2012, he won a multi-million dollar verdict for the family of a Navy Veteran who died from mesothelioma.

In addition to his trial work, Brendan has won important legal rulings and landmark appeals in New York State related to exposures from various asbestos products.

Brendan regularly lectures at various statewide and national conferences regarding asbestos litigation and trial tactics at professional seminars & law schools in New York and the United Kingdom.

Ronald Walker QC and Kate Boakes

He also spoke of Cape with Jemma Scott

After another break

Naiall Maclean and Aliyah Akram spke about Rupasinghe v West Hertfordshire NHS Trust new thoughts on exposure cases

Michael Rawlinson QC: barrister at 12KBW

Michael’s principal areas of practice are claims in which exposure to noxious substances are alleged to have led to long-term adverse health effects. He is instructed by victims, exposers and their insurers.

Since such claims often involve the development of cancer many years after exposure, much of his instruction requires the marshaling and presentation of very large quantities of historical documents evidencing or negativing either the fact of exposure or the guilty knowledge relating to it.

Gemma Scott: barrister at 12KBW

Gemma specialises in asbestos litigation. She acts for Claimants in mesothelioma, lung cancer, pleural thickening and asbestosis cases. She regularly deputises for Harry Steinberg QC.

She is junior counsel to two silks in a major product liability group action against the manufacturer and supplier of Asbestolux and Marinite, Concept 70 Ltd & Others v Cape Intermediate Holdings plc.

We are delighted to announce our inaugural Annual Asbestos Seminar.

The Seminar will be held on 5th April 2017 from 2pm to 6pm, at the Courthouse Hotel in Shoreditch, followed by a drinks reception.

Then the speakers had to sit out in the front and we were the panel as we answered questions.

This then closed the day.

We all met up for drinks and chatted with each other and I saw people I didn’t know was there so there was a lot of catching up and circulating.

Paul Russell QC Head Of Chambers escorted us as we set off  out into the London streets. We then walked to a restaurant where we had a wonderful meal that I can still taste the flavours.

We were all relaxed by then and had a great laugh and chat and Ray and I are booked for next year which is something to look forward to.

Harry made sure we came home in style so Aliyah had booked it for 11pm and we got home at 1am as we had to pick the car up from the Whitstable Station and we came home tired happy bunnies.

It had sure been a wonderful day if a little different.

Thank you everyone for making us so welcome and treating us like Royalty xx

 Source brochure and web page of 12 King Bench Walk



A Diary Of A Mesowarrior Living With #mesothelioma #asbestos –A Day in London for the MesoUK Advisory Board.


Yesterday was a day split in two halves of relaxing in the morning, working on the computer and a bit of housework then getting ready to go to my favourite city in all the world.

Well Mum was.

We had a meeting of the Mesothelioma UK Advisory Board of which I’m and Advisor.

It was held at Field Fisher Offices where a warm welcome is always offered.

It is by The Monument, a fluted Doric column, raised to commemorate the Great Fire of London, was designed by Wren, who, as usual, was thwarted in his original intentions. It stands 202 feet from the site of the baker’s house in Pudding Lane where the fire first broke out.



Opposite is the Shard

So our meeting was very productive as we went through all the business in hand.

Support Groups now in Woking Surrey Plymouth and Cornwall for Mesothelioma Patients and Carers to attend.

The 13th Mesothelioma UK Nurse has been appointed but please contact a CNS in any Cancer hospital as they will give you all the info we need as well. We must raise more funding so we can get a Mesouk Nurse in every Hospital.

There is the delicate problem of Legacies ie leaving money in our wills to MesoUK. Macmillan’s do well on this so I will raise the point in my speech at the Lawyers Conference for Global Asbestos  Awareness week. I was very nervous of this but have found so many people I know will be there so I’m relaxing now and really looking forward to this tomorrow.

So the time soon passed and I had to say goodbye to Mesowarriors and MesoUK and we travelled home just before the rush hour.

Today is a day of resting and getting ready for tomorrow.

Photos taken by Mesowarriors xx The Picture is above my bed head I told you I’m crazy about London