Living with mesothelioma -My Diary- Kent is in Turmoil- British Lung Foundation Reported on The Day we had In Parliament

Oh dear Ray and I have carried on with this funny virus (if that’s what it is) One minute you feel OK, then you feel sick. Never actually being sick. i thought it might be a cold coming, as our son has one, but no its not a cold. I get paranoid when this happens and everything gets washed or bleached. So a clean house from top to toe has kept us busy.

Anyway we are feeling better and the sun is warming our old bones.

We are really wound up about Operation Stack as here in Kent it has become a nightmare to travel around. So many lorries are parked in every lay by as they don’t want to get in the long queue.

This time I cant see an end as the freight tunnel is blocked every night with migrants running through to get to Folkestone.

They are being caught and as they have discarded their passports so that our authorities cant know where they come from we are finger printing those that are caught and then have to find accommodation here in our coastal towns. One of these is a empty old peoples home that is next to our infant school. Many people are protesting at this.

One poor family even ended up with the lorry they had traveled in pulled up at our Canterbury University. Now they have plenty of empty rooms as its the summer holiday.

I don’t know where this will all end but a solution has to be found as cost to our local authority and NHS  is tremendous.

penny

British Lung Foundation have reported on the Presentation of their Fight For breath campaign.

Ray and I were honoured to have been invited and I did report in my blog of the wonderful day we had there.

https://rayandmave.wordpress.com/2015/07/15/living-with-mesothelioma-my-diary-tuesday-at-blf-presentation-at-the-house-of-commons-and-wednesday-is-drug-day-again/

Maggie Throup MP, The Fight For Breath launch in the houses of parliament

Maggie Throup MP told the room: “Lung disease is one of biggest threats to our nation’s health. Ray had a long chat with her and i was so pleased he found the whole day so interesting as I do worry that I drag him around to all these meetings x

It is good that he does get involved as well.

Now is the time for action

We launched our 6 key steps for improving the UK’s lung health.

These include a wide range of actions such as giving lung disease the priority it deserves alongside cardiovascular disease and cancer, promoting early diagnosis, and improving the air quality across the UK.

http://statistics.blf.org.uk/

These statistics on mesothelioma in the UK were compiled as part of our Respiratory Health of the Nation project by teams at St George’s, University of London, Nottingham University and Imperial College London.

How many people in the UK have been diagnosed with mesothelioma?

In 2012, 5,420 people had ever received a diagnosis of mesothelioma, as estimated from general practitioner records. This had increased from an estimated 5,040 in 2004. These figures include patients currently living with mesothelioma, and those whose cancer was successfully treated in the past.

http://statistics.blf.org.uk/mesothelioma

So the campaign begins.

http://blog.blf.org.uk/2015/07/calling-for-action-on-lung-disease-in-parliament/

RAYS BLOG https://mesoandme.wordpress.com/

Living With Mesothelioma -My Story- A Day of Drug and Chaos

I had such a bad day yesterday. I felts so sick and kept sleeping through the day at the Marsden.

It all went normal for the journey (which was a good one) we arrived and a little voice from the kitchen said Go in Mavis i will book you in. I couldn’t see who it was and then saw Carol as I got back to the kitchen. Making her first Tea of the morning

I went back to the waiting room, where other patients started arriving.

We wasn’t there long, when I got called in for my bloods. Ray was fast asleep so I left him there.

Everyone was their cheery self, I was soon done and back to the waiting room. I saw the Doctor and everything was good.

I gradually felt sicker and sicker that by the time we went for something to eat I just couldn’t eat or drink.

I was so cold, although everyone was moaning it was cold as all the windows were open.

Back at the waiting room I asked Ray what I should do, so he went and told Lorraine who immediately got the Doctor. He wrote a prescription for something to go through my PIC line.

Carol put the warming pad on and a blanket and I did warm up. I kept drifting off to sleep. My temperature was still up and blood pressure up so they waited an hour for it to level off.

I was finally allowed the drug. I just didn’t want to waste such an expensive drug.

We were finally allowed to go home it was still only 3pm.

(An observation– sitting there watching the nurses this department is far to small. Trying to get all the equipment to each patient is a nightmare for them to maneuver around in, Ray had to get up to move the drug station in and out.

Image result for picture chemo machine

Trying to drag equipment around they really do need a larger room. This is such important work they do need the space to carry it out in.

Anyway off to home and then chaos. Operation stack was in place as the tunnel was bombarded by so many migrants running into the tunnel at the French end.

This has to be sorted. I was fuming as we sat at J5 amongst huge Lorries and the traffic was at a standstill.

I had made Ray get out into the wrong lane. people were getting out of the vehicles it was just awful.

Then a man came from the lorry in front and started signalling for it to back back.

He was foreign so he hadn’t explained why????????

Ray bibbed on the horn as we had no way of going back.

He laughed as I screamed no no !!!

It seem s a woman was running down the line of 3 lanes getting people to back so she could get through and get off at J5.

Goodness you can see why people get killed. Motor Bikes were squeezing through she could have got hit at anytime.

We moved forward a bit so a huge lorry tried to move over to our lane which held the traffic so ray moved over to get out at J6 but we found the road clear. it turned out there was a lorry broke down in front of us. Why don’t they tell you through the radio at times like this. We were being told everything was just slow moving, — It was stopped.

We sailed through from then on but we had been in operation stack from J5 to J13.

DSCF9843 - Copy DSCF9844 - Copy DSCF9845 - Copy DSCF9847 DSCF9848

When we came off at our junction there was a accident. This is chaos and it must be sorted,we only travel every 2 weeks these people are doing it everyday.

Today the papers make the story clearer

About 2,000 migrants attempted to storm the Eurotunnel terminal in Calais, causing severe delays to cross-Channel rail services and gridlock on UK roads, it has been revealed.

.The migrants’ attempts to enter the UK forced the tunnel operator to close the terminal early on Tuesday morning, disrupting rail services for up to an hour and having a knock-on effect on road tailbacks in Kent, Eurotunnel said.

http://www.theguardian.com/world/2015/jul/28/emergency-measures-on-kent-roads-to-combat-channel-tunnel-gridlock

We are not amused –In the words of Queen Victoria.

I made an omelet and that was it I went to bed 7pm exhausted and I slept through to 5am when the Seagulls were squawking.  That’s another story.

Rays Blog

Long ole day . mavis woke me up at 4 am. Wake up wake up she was pushing me. Weve overslept she said. What? . Its 4 am we have another 45 mins yet. But we were awake now so up we got. I was up earlier at just past midnight I felt really sick. And chronic indigestion. So I didn’t sleep much anyway. [ 437 more words. ]

https://mesoandme.wordpress.com/2015/07/28/tuesday-152

Living With Mesothelioma-My Diary-Wet Weather-Articles I have written on Linkedin-Merck will be releasing its second-quarter earnings results before the opening bell on Tuesday, July 28.

dancing in the rain

I can’t believe the wet weekend we have just had where we got soaked when we wet out in fact I didn’t go out yesterday only Ray did as he took Louis out and they went on their own.

It’s not only the rain its the colder with the promise of it getting colder by the end of the week. You just have to stop moaning and accept we do get summers like this. I remember taking the children on holiday and spending a fortune in the arcades trying to keep them amused.

I have been doing a few Articles for Linkedin which has been a new pathway

for me but they have been received so I’m happy with what i have written so far.

Asbestos has a longer history than you think

https://www.linkedin.com/pulse/asbestos-has-longer-history-than-you-think-mavis-nye

https://www.linkedin.com/pulse/when-i-told-news-shrinkage-mk3475-28-trial-mavis-nye?trk=mp-reader-card

https://www.linkedin.com/pulse/asbestos-chatham-dockyard-mavis-nye?trk=mp-reader-card

https://www.linkedin.com/pulse/talk-asbestos-home-mavis-nye?trk=mp-reader-card

https://www.linkedin.com/pulse/talcum-powder-dangerous-mavis-nye?trk=mp-reader-card

https://www.linkedin.com/pulse/death-sentence-from-asbestos-mavis-nye?trk=mp-reader-card

https://www.linkedin.com/pulse/asbestos-british-uralite-mavis-nye?trk=mp-reader-card

No Eight is the story of my family tree which I did just for fun.

https://www.linkedin.com/pulse/my-family-tree-mavis-nye?trk=mp-reader-card 

That didn’t get many comments which is a shame as it really is very interesting if you like French history.

The latest news of Merck

Earnings season is now well under way, and the biggest names in healthcare (i.e., Big Pharma) are readying to report their results in the upcoming days. One such pharmaceutical giant that Wall Street and investors should have their eyes on is Merck (NYSE: MRK  ) .

Based on a press release from late June, Merck will be releasing its second-quarter earnings results before the opening bell on Tuesday, July 28. The current consensus estimate on Wall Street calls for Merck to earn $0.80 in EPS on $9.78 billion in sales. On a year-over-year basis, Merck’s sales are projected to fall by a hair over 10%, while its EPS is estimated to contract by $0.05 per share. But, if history is any guide, investors might be looking for an earnings beat come July 28, with Merck surpassing Wall Street’s EPS estimates in 10 of the past 11 quarters, and by a sizable $0.10 per share in Q1 2015.

Three important questions we want answered
Although investors will obviously be focused on these headline numbers, it’s even more important to understand the dynamics of how Merck arrived at its top-line and bottom-line figures. With that in mind, let’s briefly look at three important questions that we as investors would like to see Merck answer when it reports its Q2 results.

1. Is Keytruda’s ramp-up still on track?
Arguably the hottest trend in drug development right now is the ongoing research surrounding cancer immunotherapies as both monotherapies and combo therapies. Merck’s checkpoint inhibitor Keytruda is one such drug that holds a bounty of potential given its ability to supercharge a cancer patient’s immune system to more effectively kill cancer cells.

Approved last September, Keytruda sales have ramped up quickly. Following just $4 million in sales in its partial third-quarter, Keytruda tallied $50 million in sales in Q4, and $83 million in the first-quarter of this year. More importantly, Keytruda sales have trumped that of its checkpoint inhibitor rival Opdivo from Bristol-Myers Squibb in the early going.

What investors will be looking for in the second-quarter is confirmation from Merck that its roughly 30 planned monotherapy and combo trials involving Keytruda are still on track to be completed in the coming years; that insurer coverage of the expensive immuno-oncology drug remains high (Keytruda has an annual wholesale cost of $150,000); and that sequential growth for Keytruda remains strong.

What specific figure should investors be looking for? While Wall Street’s estimates vary wildly, I’ll personally be looking for 40% to 50% sequential quarterly sales growth for Keytruda, or in the neighborhood of $120 million in sales.

Also pay attention to any color that Merck can add for full-year Keytruda sales. Halfway through its fiscal year, and three full quarters into its ramp-up, Merck should be able to provide analysts with some rough estimate of how much revenue it expects from Keytruda in its first full year on the market.

Approved last September, Keytruda sales have ramped up quickly. Following just $4 million in sales in its partial third-quarter, Keytruda tallied $50 million in sales in Q4, and $83 million in the first-quarter of this year. More importantly, Keytruda sales have trumped that of its checkpoint inhibitor rival Opdivo from Bristol-Myers Squibb in the early going.

http://www.fool.com/investing/value/2015/07/27/3-important-questions-we-want-answered-when-merck.aspx

It is my understanding that the Trials are being funded and so it will be available to more patients around the world as a Phase 2 Placebo and as a combo so I will be watching the answer to this with the Mesowarriors for when the report comes out.

Rays Blog

I was trying to determine how old Louis is today. My son recently said he is about 9 or 10 years old. NO way we said he is around 8. So I set to trawling back through old diaries. No joy checked Blue Cross Memorial where I put his memorial. They said no records found. Then I remembered my little brown book.

https://mesoandme.wordpress.com/2015/07/26/sunday-125

b42

 

Living With Mesothelioma -My Diary- I have been to a Google Hangout on Immunotherapy

I was able to join in a Google hangout today Run By cancer Research.

I love the word Hangout as thats what I did in my youth. Friends would hang out and we would discuss the topics of the day. Teddy Boys, Make Up, etc etc.

Anyway this was great and I joined in at 4pm after we had taken Louis out in the field. It had rained and yet it was so dry out there. Still huge cracks in the dry ground.

I had an email informing me –At 4pm this afternoon, we’ll be talking cancer immunotherapy live with two leading experts, Professor Frances Balkwill and Professor Ben Wilcox, in a Google Hangout! Join us to find out, among other things, what the immune system has to do with cancer, what exactly immunotherapy is and is it hope or hype?

It was excellent as you can see. It explained so much that I hope the Mesowarriors have watched and understood just what is going on now.

http://aca.ninemsn.com.au/article/9011516/asbestos-dump

The shocking video that will outrage Australian families.

A Current Affair have obtained dramatic footage that shows asbestos being dumped without any safety controls.

Lou had put this on her Facebook as it was a programme they showed in Australia. I don’t know how long it will be available but I’m sure there will be newspapers writing the story. How can they carry on like this. Why is there such disregard for people’s lives, even their own. This goes on in so many places around the world and I praise the people there for taking the video of the event. well done we need a few more whistle blowers like this.

http://mosaicscience.com/story/killer-dust

Why is asbestos still killing people? Nic Fleming finds out in a twisting tale of industry cover-ups and misinformation that spans decades.

This was written in March but I saw it today

The description made me shudder — Ordinarily there would be bright yellow tape with the words “WARNING asbestos” on it, the site supervisor tells me. But this is an especially sensitive job. The neighbouring ward’s beds are filled by patients with acute respiratory conditions, and the hospital’s management decided that advertising the true nature of the work might cause alarm.–

How can they do this to people. The whole article is very well written please have a read we need to know the truth.

Winston Bish at home with his dog

It has also the story of

Winston Bish at his Cambridgeshire home with his daughter’s dog, Toby.

William though, is much more concerned that others are informed of the dangers, so they do not end up in his shoes, than with blaming anyone for his condition. “I just hope that people are made more aware of the problems linked to asbestos. It’s still there in schools, offices and housing, and anyone who does DIY can come into contact with it. It can lay dormant for 40 to 50 years, and there’s no cure.”

“I enjoyed working in the building industry – very much so – but if I’d known the risks back then I wouldn’t have gone into it,” he says. “I realise now it was like playing Russian roulette. Some take the bullet, others don’t. I was one of the unlucky ones.”

CC-BY: Ben Gilbert/Wellcome Images

It shouldn’t be like this, all the lessons should have been learnt but Given that asbestos could be present in any building refurbished or built before 2000 in the UK – homes, hospitals, schools, offices – it’s likely that the specialist removal companies will be busy for years to come. So too will be the clinics and hospitals dealing with the human casualties of the appalling legacy of a mineral called asbestos.

Rays Blog

We had planned to go away for the weekend. But it’s drizzling here with expected heavy rain later. So another week at home. Tom Tom Update. A response tells me that If I want a refund I can have it. However the recent purchased update is not yet installed because my existing one is still active for a few more days. [ 126 more words. ]

https://mesoandme.wordpress.com/2015/07/24/friday-131

Living With Meothelioma-My Diary- A Bucket List what does that really mean.

Yesterday was a quiet day the weather was windy and yet warm so the washing dried fast.

The Kent and Sussex Local Paper was asking for photo’s of weddings right through the ages so I chose this one to put in there gallery.

wed

 

 

 

 

 

 

 

 

 

 

It was 1960 and Mum had made all the dresses, well you did in those days. The old treadle machine was always kept busy and Mum and I made our clothes.

The material was bought at the Rochester Market.

But for the dresses for my wedding we shopped at an expensive material shop in Chatham and Mum worked on the machine for long hours as she was a perfectionist, and we had many fittings until she was happy with them.

We did the usual walk with the dog and the clouds were rolling in and out. We just cant seem to shift the grey clouds although today is a better sunny day but rain is forecast for tomorrow. It will be Autumn before we know it and we don’t feel like we have had summer yet.

Lynda Wride put this on her face book — Programme on iPlayer until 18 August – worth watching if you know someone who is terminally ill (or are yourself) xx

Heartwarming documentary in which terminally ill Rowena Kincaid tries to figure out what best to do with the time that remains. She says on her Facebook —

Hi there. My name is Rowena Kincaid.

Last year I was diagnosed with secondary breast cancer. Doctors told me that without treatment I’d likely die within three to six months. Luckily I’m still here, but I’m painfully aware that I’m living on borrowed time.

Everyone keeps asking me “what’s on my bucket list?” They’re shocked when I tell them I don’t have one. But should I have one? Are all terminally ill people expected to have bucket lists? Are they meant to help in some way?

To find out, I’ve convinced the BBC to let me make a film and I’m looking to hear from others in the same boat as me.

If you live in the UK and are living with a terminal illness, I’d really like you to get in touch. It might be that you have a bucket list, or you’re making a bucket list, or you might think that they’re a waste of time and energy. Whatever your thoughts, please email me – lilmissbucketlist@gmail.com

I want this film to raise awareness about the diversity of terminal diseases and about how people live with them day to day. You pass people in the street and would never know anything was wrong. But behind the surface there’s hardship and heartache and laughter and life. And that, ultimately, is what I want to show the world.

Personally, I don’t know what to expect. But I’m determined to live the rest of my life as fully as possible. So please, spread the word and get involved!

Thanks,

http://www.bbc.co.uk/iplayer/episode/b063034k/before-i-kick-the-bucket?fb_ref=Default

What a wonderful Young Woman and so sad to see her plight and yet she is facing it with laughter.

So very young she must have wanted to live all her life in one day. Being older I do agree with some of her points though.I do not rush around I do sit and watch an ant or a blackbird gathering food for her young. I hear a cuckoo and I watch my family sometimes like I watching them through a window. I don’t need a bucket list I need a skip but I need the strength to just enjoy each moment.

I think her being young it is harder it is a little different for the older person  As like Steve Wride we are at 6 years and so Id be worn out by now.

I made a bucket list it was a very quiet one but I have gone through that. So I keep writing and rewriting my bucket list. I have turned my life around and Im Campaigning, Conferences and Social Media are my salvation. Writing everything I can so I leave so much behind for people to read and to learn.

My biggest thing I’m leaving is the cure fo Mesothelioma I have led the way for others to not have the need to write a bucket list.

That is my wish and it takes all my energy.

I met a lovely man last week who wanted to interview me. He dreaded meeting me but by the time I had finished the interview we had laughed so much with jokes flying back and forth it was like being at a party and where were we??? —-outside the Royal Marsden Cancer it doesn’t have to be morbid. This Cancer hospital isnt morbid. Everyone has hope as they go on Phase 1 Trials. No Placebo’s here, they are not welcome


I had put a lot of photos of Asbestos products on FaceBook and Linkedin and it w=raised a lot of comments.

I found a great write up from Ice Asbestos and from This entry was posted in Nationwide Asbestos Removal.

Asbestos Use in Ancient and Medieval Times

Asbestos is usually thought to be an industrial invention, used widely in the 20th century after industrial mining began in the late 1800s. However the history of asbestos goes back much further. People from all over the world have been using for thousands of years for its fire resistance, strength and insulating properties.

One of the earliest found examples of asbestos use comes from the ancient Greeks using asbestos fibres to make the wicks for eternal flames in temples. Ancient Egyptians were also aware of the durability of asbestos and wove it into cloth to strengthen clothing and to wrap the embalmed bodies of their Pharaohs.

Finland is the first country to use it as a building material around 2500 BC. Ruins of log cabins show asbestos being used as insulation. There have also been pots found with asbestos fibres – probably to strengthen and protect.

In a writing from 456 BC, the Greek historian Herodotus described how asbestos shrouds were wrapped around the bodies of the dead before cremation to contain the ashes. It was also commonplace for Roman restaurants to use asbestos table cloths that would be thrown in the fire to clean before the next customer.

Asbestos use started to get a bit more creative In 1095 during the crusades. Trebuchets were used during sieges that flung burning balls of pitch and tar wrapped in asbestos bags over city walls.

Marco Polo even witnessed asbestos being used by Genghis Khan and his Mongolian horde. They made their clothes from a “fabric that would not burn”, apparently woven from the hair of woolly lizards. This was just a fantasy however, and the real source of their clothing was revealed when he visited an asbestos mine in china.

So were these ancient peoples aware of the dangers of Asbestos to health?

Some were, as is shown by Greek geographer Strabo’s notes on slaves who produced asbestos cloth getting a “sickness of the lungs”. Roman historian Pliny the Elder noticed a similar effect, and wrote about the “disease of slaves” describing how miners would use a thin membrane crafted from the bladder of a goat or lamb to protect them from inhaling the dust as they worked. Unfortunately, this knowledge was lost, and when the industrial revolution began in the 1800s, asbestos mining exploded.

asbestos removal services

Another good write up http://www.asbestosfocus.co.uk/history.htm

So isn’t it awful that the dangers have always been known. Why did they think they could get away with it in the modern world. Its all very well saying money but this was, and still is, human lives and as such we deserve better.


 

 

Living With Mesothelioma -MY Diary- Pictures of where Asbestos was used -Keeping our Asbestos Removal Operatives Safe

Yesterday was a sunny day. We have to enjoy those days as they have been rare this summer. It just cannot get going someone needs to crank up the weather to get it going.

DSCF9833 DSCF9834

We did get our walk in which wakes us up after lunch it’s so amazing that this year the park has been empty most times. It’s usually full of walkers and dogs but not this year.

I put some photos of products that contained Asbestos and people were very interested. It’s a shock to see the what we used and dint know they contained a deadly substance.

asbestos paint asbestos products asbestos tiles Asbestos-snow 1 asbestos clothes asbestos 3 asbestos gloves asbestos brake pads asbestos buildings asbestos images asbestos shoes asbestos2 asbestos-paper-and-felts-1_0 danger

Our Logo for face book is above and that is a photo of me as a baby– who would have thought we were so unprotected in those days.

You just can’t believe that they actually did know the dangers and yet allowed manufacturing of these products.

It truly is amazing.

We do go on and on everyday trying to educate the modern-day world to the dangers of Asbestos we are still surrounded by the asbestos in our buildings and our living world today.

Dry Ice is used to blast of the Asbestos from larger areas

power_ice

Dry ice pellets which are pure solid carbon dioxide, are made by decompressing liquid CO2 to create CO2 snow. The snow is then compacted and extruded through a die plate to form solid CO2 pellets.

Dry ice is unstable above minus 78.6 °C at atmospheric pressure, but instead of melting into CO2 liquid when it warms up, it sublimes directly into CO2 gas. It is this sublimation process that creates the cleaning effect when dry ice is used as a blast medium.

During blasting the pellets are accelerated to speeds between 200 and 300 m/s using compressed air. They break up as they travel through the blaster and arrive at the work surface as fast moving pinhead sized particles. The particles embed themselves in the pores and cracks of any surface deposits and very quickly sublime into a much larger volume of CO2 gas. This rapid generation of gas within an enclosed space breaks up the surface deposit, releases its bond with the substrate and blows it away. The CO2 diffuses into the atmosphere leaving no debris other than the material removed, which is usually found as a fine dust.

The conditions these men work in is very hard

Asbestos First says —

Asbestos removal and encapsulation

We have extensive experience in Asbestos removal for both private and commercial clients, from small homes to large offices, hospitals schools and industrial estates.

Asbestos removal 1Each contract is undertaken with the same professionalism whether it is large, small, short term or long term. Every contract is run by a fully qualified site supervisor and overseen by the management team. All asbestos removal operatives have face fit certificates, medicals and are fully trained to the Asbestos Removal Contractors Association (ARCA) standards with at least one operative per crew being a qualified supervisor. We have also achieved the Site Audit Accreditation Scheme quality assurance award from ARCA every year since its inception in 2003.

Asbestos survey 2Air monitoring is undertaken by an independent laboratory so as to prevent any biased results being issued. Each laboratory used must be UKAS accredited to carry out the works. All asbestos is disposed of as fibrous or non fibrous waste,depending on the type of product. We have a full carriers license, enabling us to transport small amounts of waste to an approved toxic waste site if a skip is not required.

http://www.asbestosfirst.co.uk/asbestos-removal.aspx

Thank Goodness we have many of these companies that do the work properly and within HSE standards But I fear for their safety as these are the people working with what I see as a deadly material. It is killing me and the Mesowarriors. These men and women have to have medicals and are well checked on but it will never be known if the deadly disease is there until its to late and they can not breath.

I really to take my hat of to them and pray they keep safe.

http://www.hse.gov.uk/pubns/books/l143.htm

This publication contains the Control of Asbestos Regulations 2012, the Approved Code of Practice (ACOP) and guidance text for employers about work which disturbs, or is likely to disturb, asbestos, asbestos sampling and laboratory analysis. The Regulations set out your legal duties and the ACOP and guidance give practical advice on how to comply with those requirements. The Regulations give minimum standards for protecting employees from risks associated with exposure to asbestos.

The Regulations came into force on 6 April 2012, updating and replacing the previous 2006 law. They contain new requirements for certain types of non-licensable work with asbestos on notification of work; designating areas where you are working on asbestos; medical surveillance and record keeping.

Two ACOPs, L127 (The management of asbestos in non-domestic premises) and L143 (Work with materials containing asbestos) have been consolidated into this single revised ACOP. The ACOP has been revised to make legal compliance clearer to dutyholders and to reflect the changes introduced in The Control of Asbestos Regulations 2012. The presentation and language have been updated wherever possible.

Living With Mesothelioma-My Diary- I have written about the Dockyard and about DIY

Sunday was a very cold dull day and had been raining most of the night.

I worked on my writings most of the day as I had a story idea that I got down on paper.

I wrote about house surveys for Asbestos as it is in our homes if built before 2000 and people are drilling into walls and ripping down walls as the renovate their homes. This is the craze and yet no one thinks of where the Asbestos is. If you had a survey you would at least find out and then deal with it as you see fit.

The danger points are well documented.

The question I posed was Can I sell an item that contains asbestos? the answer by HSE No. It is illegal to supply any article containing asbestos, whether for money, or free of charge.—— so technically we cant sell a house if has Asbestos in ??????

It is a thought but it isn’t law as yet but should we be waiting for the law shouldn’t we be taking the law into our own hands.

Asbestos companies are offering a surveys at a very affordable price so I believe if you live in a house built before 2000 you should have a survey carried out for your own protection.

As long as it is untouched and not damaged in anyway it will be safe, and you can make up your own mind to have it removed by the professionals.

You never know when you are drilling a hole while putting a picture up or doing a plumbing job that you could disturb Asbestos.

That scrapping of Artex off the wall or taking lino tiles up from the floor could be putting you and your family in danger.

The Guardian in 2011 wrote a good report of the dangers but still I watch DIY program’s that are not mentioning Asbestos. I notice DIY SOS and Under The Hammer are being good and mention when finding Asbestos that the job stops and the professionals are called in but very rare does 60 minute Make Over.

Years ago no-one mentioned it and they pulled old houses apart and pulled down walls so starting the fashion of renovating old houses. There must be many builders suffering with asbestos disease’s including mesothelioma.

Quoting the Guardian (Sunday May 1st 2011)

The use of asbestos has been common in the industrialised world since the mid-19th century and it was not until 1999 that a total ban was imposed. Lee Carter, principal director of the consultants WSP Environment & Energy, says that it has been widely used in residential property: “Among private homes, more than 50% are likely to include some asbestos-containing materials.”

While this may sound alarming, asbestos is likely to be dangerous only if it is released into the air and you breathe it in. Then you could be at long-term risk of developing lung cancer, asbestosis or mesothelioma (a cancer that forms in the lining of the chest or abdomen). Experts say that there should be little or no risk if the asbestos is enclosed and left undisturbed but it must be regularly checked for signs of deterioration.

But accidents happen and the previously dormant devil within could be released when “improvement” work is being carried out, for example, or when a burst pipe causes damage to ceilings.

Association of British Insurers points out that policies will cover removal of asbestos only as part of a householder’s damage claim, and not simply because asbestos happens to have been identified.

In older homes, asbestos is often present in ceilings decorated using Artex textured coating. This is because, until the mid-1980s, Artex was made with white asbestos to strengthen it. However, Joe Oakins, a surveyor at Vintec Environmental Management, says: “We find asbestos products used in the strangest places and sometimes apparently for no reason. Often builders used whatever they had lying around, so you often find off-cuts of asbestos boards used as packing and filler.”

Peter Coling, technical director at Kinleigh Folkard & Hayward Chartered Surveyors, estimates that 30% of asbestos is found in ceiling coatings, 15% in boiler flue pipes and ducts, and 15% in floor tiles. A further 15% is found in areas such as cold water storage tanks, insulation materials, eaves, gutters and rainwater pipes, while 10% is in cement panel ceilings, 10% in outbuildings and 5% in fire protection materials, for example on the underside of integral garage roofs and in cupboards enclosing boilers.

Phil Wright, chief engineer at the inspection and insurance service Allianz Engineering, says: “It is difficult to establish how much asbestos is present in a home without employing a specialist to undertake a full inspection.” Samples need to be taken for analysis at a laboratory approved by the United Kingdom Accreditation Service.

Debbie Hales, director of Asbestos First, one of 450 licensed removal firms in the UK, says: “With textured coatings you have to take [samples] from different locations. It can be free of asbestos in one part and not in the next because of the way it was manufactured.”

Hales says that the cost of a sampling visit should be about £150 plus VAT. If any additional samples are required during the visit, expect to pay about £20 plus VAT per sample. To remove an area of textured coating, such as Artex, containing asbestos costs about £1,200 plus VAT for up to 20sq m, including disposal and air-quality tests. (please remember these prices were 2011) but I still feel this is a small price to pay to prevent Mesothelioma, which is at present incurable and only palliative care and you are told 3months to 1 year survival.

So really think about it and dont wait for us to win changes in the law with new legislations,  lead by example and take the law into your own hands and protect your families.

Ray worked in the Dockyard and then at Higham so for those not on Linkedin or Face Book here is my writings.

Chatham Dockyard is the working place of my GGreat Grandfather Edward came with his wife from South Hilton Durham to Chatham and lived in Luton Chatham. He had a my Grandmother and she married Thomas and lived a few doors away where my Father, his brother Jackson and three sisters were born. My Grandfather died at 42 when he dropped dead over my Grandmother as she was holding her newborn, my Uncle Jackson.

The men all worked in the Dockyard walking in or going by cycle.

Now the dockyard has closed it has become a tourist attraction, a happy place and yet Mesothelioma is the deadly disease this dockyard has left the Medway towns suffering with.

Asbestos was a wonder material and was used as an insulating material used in the shipbuilding industry from the end of the 19th century until the the dockyard closed 1984/85 and everything was moved to Portsmouth.

Engine rooms,generating rooms, pipework and boilers,where ever the asbestos was used to lag was a danger to the workers. . Even after asbestos was stopped being used  Chatham dockyard workers were still exposed to high levels of asbestos fibres from stripping out old asbestos lagging on refits.

Because asbestos was commonplace on ships/submarines, many Chatham dockyard employees could have been exposed to asbestos whilst building or maintaining ships and submarines. This includes shipwrights, joiners, engine fitters, electrical fitters, caulkers, labourers, rope makers, supervisors, cleaners and asbestos lagers.

Dangers from exposure to high levels of asbestos (especially blue and brown) and its association with asbestosis and lung cancer had been established by the second world war. However it was not until the mid 1960s that the real dangers of asbestos became well known. In 1965 the Sunday Times published an article warning of the link between exposure to low levels of the more common place white asbestos and the fatal disease mesothelioma. This eventually caused responsible employers at Chatham dockyards and elsewhere to take proper precautions to protect its workers from asbestos. Sadly for too many workers there was too long a delay between this knowledge and action to prevent asbestos exposure. Hundreds of them have found that the supposedly harmless white asbestos fibres they inhaled at Chatham dockyards have led to serious and often fatal diseases, such as asbestosis, diffuse pleural thickening, lung cancer, and mesothelioma.

Chatham dockyard has gained the nasty title of being the top employer responsible for the deaths from asbestos, lung cancer and asbestosis.

My Father died wrongly diagnosed as he died in 1989 having lived through the pain of emphysema with a frozen shoulder having had a small stroke. The symptoms I have seen in my dad are the same as I have had through my illness. Swollen legs, lymphedema, hard to breath at times. So sad as it meant he didnt have the proper treatment although there was even less than today.

The Medway area, which includes Chatham dockyards, is in the UK’s top four for asbestos related deaths. A total of 104 people died from mesothelioma in Medway between 2006 and 2010.

When you sit down with Ray he describes the asbestos as being piled up everywhere on the dock side and on the boats. Men were sawing the material, cutting it, even throwing and kicking it about as they worked, and the dust in the air when it was swept up.

Unlike Plymouth Dockyard they didn’t have a laundry service so Ray came home in his work clothes and i shook the dust and put them into the washing machine.

Ray has lost all the pals from his apprenticeship the 1953 entry.

Health and safety” is too often referred to in derogatory terms, but a more conscientious attitude to the health and safety risks of asbestos in the 1950,s, 60s and 70s would have prevented such diseases like mesothelioma, asbestosis and lung cancer. It is because of such careless attitudes that employers like the Ministry of Defence at Chatham dockyards are often liable to compensate for diseases caused by asbestos. Unfortunately of course no amount of compensation can make up for a fatal illness.  To true !!!!!!!!!!!

We spoke on BBC Politics and low and behold they used some film from The dockyard of the Dockyard maties going home on their bikes. I search the faces for my Dad but I dont think he was there as my Dad always worked overtime so he wouldnt be going home with the Masses bless him.

Rays Blog https://mesoandme.wordpress.com/2015/07/20/monday-130/

Just a bit more of Mavis handy work. Its only a small garden but she puts a lot of hard work into it. Even though she comes in totally shattered. Its warmish day . But our park walk with louis was windy.. When we got back mave pointed out that our neighbors bushes were sprouting big long spiky tendrils into our garden.