Its been a week of travelling 5 days to the Royal Marsden.
The roads got busier and busier through that time but with the schools still closed it meant the journey was done each day in 1hr.30mins
Must say there have been some bad drivers that have had the roads to themselves for so long that speed and concentration was not so good.
We arrived in the car park that still has the barrier up so parking was free but Ray had to stay with the car as not allowed in even to the loos.
The man at the desk got to know me and where I was going so with a squirt of sanitiser on my hands I went straight to Oak ward.
I was the only patient each day which was very strange. They have opened the treatments for us patients that are getting a bad result. All treatment will open June the 1st so they will be busier then.
Blood results were quick on Monday and saw the Doctor who told me I was 17% growth so was still classed as stable it was the fact there was new growth on my spine lining that they decided to get treatment on the go again.
She said I was free to go so we were soon back on the road.
Tuesday straight in and had ECG and the drug was ready and I had my injection all done before 12 midday. Thats a record.
Wednesday, Thursday, Friday all just in injection and home. The car hadn’t even cooled down.
Im free now until the 8th of June.
Im locked in again incase my bloods go down making my Immune system weak and with the virus still out there I have to stay home but we have the write up that a Mesowarrior has survived the Coronavirus which is very interesting news.
David Long is 69 and lives in Southampton. In July 2018 he was diagnosed with mesothelioma. He recently tested positive for coronavirus and wanted to share his experience…
Following his mesothelioma diagnosis, David took part in a clinical trial which went well for around 10 months until David experienced a severe reaction to it and had to come off it.
David then tried privately funded immunotherapy in November 2019 which worked to stabilize the cancer but not reduce it. In January 2020 David tried a different type of chemotherapy but again, had to stop due to a bad reaction to it.
David was on no treatment, just pain relief, when, in mid-March he began to feel unwell with high blood pressure and a cough.
He went to hospital and was tested for coronavirus but was told it was negative. Three days later he still felt unwell and went back to hospital. This time, the coronavirus test came back positive.
David and his wife Jo were shocked and frightened by this news. His consultant had already warned them that if David was to get coronavirus, it would be very serious for him and so they had already been self-isolating for a number of weeks. Understandably, David admits that he panicked a little and thought ‘This is it, this could be the end.’
David was sent home and told to isolate – even from each other – within the home. This wasn’t easy and the couple had to have separate bedrooms and one ate meals in the conservatory while the other ate in the lounge. During this time David wasn’t feeling too unwell. He had a cough, some breathlessness and had very low energy levels but wasn’t in any pain – from the virus or from mesothelioma.
He was so lucky but gives us hope and not to panic if we do catch it as others have not been so lucky.
Well we are getting near the 4th of June a date I didnt even dare to think we would reach as it is our Diamond Wedding.
We had a huge party planned with lots of celebrations and fun.
Its going to be a strange time now when we cant even see our family but like so many other people we have to make the best of it.
What a year 2020 has become. It will certainly go down in history as a bad year the one 2021 cant come quick enough.
Keep safe xx