Month: May 2021

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A Diary Of A Mesowarrior Surviving #Mesothelioma #Asbestos — IOSH have Awarded me for my work with NO time to Lose. Im now ready for Next Weeks System-2 Trial

Good morning its May 22nd and June is around the corner. Half way through 2021 already. We have had lovely weather and I was able to get in the garden and tidy it all up for summer but Summer doesn’t want to arrive yet.

Such heavy rain all through May we have never seen it so heavy. Monsoons every day this week. So we have stayed home which is what we have been doing for 1.5 years. That is unbelievable.

As you know Zoom has kept me safe and in touch with so many people so many meetings.

I have been given the honour of IOSH President’s Distinguished Service Award which was a total surprise as I thought I was going to have a Zoom Meeting with Linda Reinstein and Jasmeen Daji
Social Media and Community Lead IOSH but in popped Jimmy Quinn CFIOSH, IOSH President and Bev Messinger 1st degree connection 1stAward winning CEO, experienced NED & Exec Coach.

I couldnt make out what was going on and Bex soon explained that we Linda and I had bee chosen for the award for our work with the great campaign No Time to Lose.

We made this video for Launch (11) IOSH No Time to Lose asbestos real-life stories: Mavis Nye – YouTube

Jimmy made the presentation so vey emotional.

I have the certificate so I have to get all dressed up this afternoon and take a photo. This is the COVID way now as we cant meet up for grand events which is such a shame.

I have also mainly been attending appointments for my trial.

Yesterday was a blood test which has thrown up my Calcium is very very low.I don’t eat well as we Mesowarriors know the problem there Appetite is very up and down. So I have ordered tablets to give myself a boost and will eat more cheese and dairy products.

I also found walking round the hospital very hard. I keep saying I must get out for more walks but that has been impossible in the high wind and rain. We walked from the car to the entrance and had to hang on to railings it was that bad.

But now I have to wait for Monday to be told that I have passed all the criteria for the trial.

It was good to see my Oncologist but she was so tired after a hard week and she was glad it was Friday. I said have a good weekend but get plenty of rest (I said Im your Doctor now) We left all laughing but I hope she can recover for the next week she faces.

So that’s it all set up and waiting for Wednesdays Radiotherapy. Th trial is for pain but we also hope it pushes Mr Nasty off my spine and away from my Spinel Cord.