A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos –A look back on 2017 so much exciting News And now the Orange Fox Bikes have joined team Mavis !!

I wish everyone a very Happy  New Year as I look back on 2017

So much has happened the biggest being the Launch of the Mavis Nye Foundation which I cover in Photos later on in this blog.

 

 

 

Then today to celebrate 2017 going out I have just had this wonderful Announcement put on my Face Book  By Mark Goodwill.

Happy New Year Peeps! Hope it’s a good one! 2017 has been much easier for us and I’m genuinely really buzzing for 2018. Lots planned but one of the most exciting is deciding to support a charity this coming year – The Mavis Nye Foundation. A lot of my friends will know

 

 

 

 

 

 

 

Nigel Shaddick who was diagnosed with mesothelioma cancer towards the end of 2016, more on mesothelioma and the Foundation in a later post. Nigel, a very handy endurance athlete always was an inspiration to me and many, many others and is an indisputable all round top guy. But since diagnosis he has been incredible and a fantastic ambassador to the Mavis Nye Foundation. I think the fact Nigel completed the Welsh Iron Man, one of the toughest Iron Mans in the series, with at least one lung completely non functional, just weeks before diagnosis about sums up Nigel’s tremendous courage and determination, which has continued throughout his treatment. So, how am I going to raise money this year….. To be frank, I think this charity is worthy of support any way, but I’m looking to get back into my endurance sport and aim to run 2000km and cycle 3000km in 2018. Including a few challenges (bike and running) and perhaps an Ultra marathon or two…. Not big numbers for many of you but for me who has done very little for four years and is now 20kg overweight along with the day to day it will be a challenge and anyway targets are meant for beating….
Have a look at the link and please please please it would be BRILLIANT if YOU also felt able to join me raising money for the Mavis Nye Foundation in 2018…. two heads are better than one 😉
It’s on FB – that’s me committed!!
Wishing you all a very happy, healthy and fun 2018

http://www.orangefoxbikes.co.uk/about-us/

I already have some riders in the Prudential 100 Mile I will have to get round this wonderful group to join in the Race.

 

 

 

 

 

 

 

Before I go any Further I would like to thank everyone that came to the Launch and made it such a great Event. In just coming you gave me so much backing and I will remember that evening with love although 2018. The money raised the fun and laughter and even the tears. I loved every minute Thankyou xxxx

So lets look back on 2017

It started with me having a very bad cold and cough. As I had a Scan and collected the results

I went in and got my blood’s done and the Ray joined me for the Doctors appointment.
Still in remission. At 208 days after last Keytruda
We all laughed. but she said please take life easy and rest as the bug hasn’t done any damage at all, your scan is very clear now.
She listened to my lungs and to my heart and is so happy with me.
I went up to Oak ward to meet my friend and his wife (I can’t mention names as they haven’t said anything on F/B yet. But a dear friend, I sat with them until they went in to get scan results and they were in there so long. Ray paced back and forth as I sat and talked to the last man standing on the 128 trial, he has had a great result of 80% and has many months still to go.
When the Mesowarrior finally came out it was to tell me he was off the trial. It was a sad moment but immediately they are talking about what the next step is and where to find the next trial. I love such positive people.
I keep waiting for them to tell the warriors but they are in shock really they just wanted Keytruda to work. I said to Our Doc yesterday they really have to find out why I have such good news and they don’t he just held my arm and squeezed it and then the Mesowarior involved. It was a very emotional moment x

So please to say the Mesowarrior is still doing well and has just had another good Christmas

Here he is disguised as Father Christmas he played the part very well.

The Motorhome all loaded up we set off Saturday to the Park and Ride at Canterbury where we met all our friends in the Camping and Caravan Club as they arrived or already there to travel down to the City to see the Pantomime. UK’s most popular TV stars, Stephen Mulhern and Marlowe favourites, Ben Roddy and Lloyd Hollett.
The theatre is lovely as it is very new and we admired it as we sat and had a coffee.
When it was time to go in we really enjoyed the whole show. The 3 D show they put on was so great as things shot out at you.
A 3D scene – glasses are provided – works brilliantly and has young and old alike squealing with delight – once again reminding us that 3D continues to work as a visually stimulating treat in any environment when the experience of the audience and it’s ability to intrude in their space, is put as its very raison d’etre.
Stephen Mulhern (Billy) – returning to the theatre after a gap of a few years where previously he was in a supporting role – is now the lead man and it’s hard to do anything but warm to him. He’s charismatic and disarming and some of his illusions will have you mesmerised. Lisa Davina Phillip (Fairy Bow-Bells) is worthy of praise for her high-flying role too.

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos. The Book Is Launched What a lovely Christmas Belated Christmas Present. The postman came and a parcel was there on the floor. Ray has been saying a present, he has been waiting for to give to me hadn’t arrived over Christmas, and this was it.
He disappeared and came back with a present, as it was wrapped in Christmas paper.
I opened it and was shocked to find a book with our picture on.
He has been beavering away on the computer daily, but that is normal, so I haven’t taken any notice. Turns out he has been writing my story of the last two years of my trial. Using my blog as a guide he completed it finally sent it off for publishing and it was accepted.
2 Years on a Keytruda Drugs Trial. Fighting mesothelioma an Asbestos related Terminal cancer.
This means we have a trilogy as 3 books are published and have covered the 7 years of my journey.
I was so happy with it and I have to sit down and read it now Well done Ray and thank you for all the hard work as I know how hard it is to have a book published. Every paragraph and spelling must be right. No easy task
http://rayandmave.weebly.com/maviss-book.html
We have a collection of books written and published now with all the money going to Mesothelioma UK, as I support them and all the work they do
http://rayandmave.weebly.com/more-info-our-books.htmlhttp://rayandmave.weebly.com/more-info-our-books.html

Feb saw a visit from Storm Doris that caused damage and sadly piles of asbestos boarding laying around. we must sort that problem out.

Asbestos in Schools is back in the news with a Gov Report out.
Seems that at last they realise just how bad the situation is and we will have to wait to see what happens now.
Asbestos in schools is a “serious” problem which could threaten the health of children, a Government report has found, as it concluded that thousands of schools are failing to follow safety guidelines.
One fifth of schools which responded to an official survey were found to be “not fully compliant” with asbestos procedures, leaving over a million children potentially exposed to dangerous fibres.
Of those, over 100 schools were deemed a “significant cause for concern” and required government intervention. The Department for Education (DfE) said it emailed those schools and received “reassurances” the asbestos is now safe.

We had the latest Mesothelioma Figures from HSE They were not good The latest information from HSE shows:
There were 2,515 mesothelioma deaths in Great Britain in 2014, a similar number
to
the 2,556 deaths in 2013, and 2,549 deaths in 2012.
The latest projections suggest that there will continue to be around 2,500 deaths per year for the rest of this current decade before annual numbers begin to decline.
The continuing increase in annual mesothelioma deaths in recent years has been driven mainly by deaths among those aged 75 and above.
In 2014 there were 2,101 male deaths and 414 female deaths.
There were 2,130 new cases of mesothelioma assessed for Industrial Injuries Disablement Benefit (IIDB) in 2015 compared with 2,215 in 2014.
Men who worked in the building industry when asbestos was used extensively.

2017 seem to me to be Fly Tip year so many health fears.

ASBESTOS is dumped in layby by careless fly-tippers so causing a risk of mesothelioma.

This one a mile long has shocked everyone. It cost a fortune to clear up. We have got to do something about this.

Then we came across this skip opposite our local shop

Not only is the skip not sealed but the fact is the men that stripped all this out were not protected. Yes That is Asbestos webbing as well.  It is so frustrating.

Ray and I flew to Ireland for the BTOG Conference we didnt see much of Dublin but it was a great Conference.

Cure Meso Conference in US

A wonderful Charity Night In Norfolk followed the next day a conference meeting of Norfolk Support Group.

A Asbestos in schools meet.

Contamination Expo 2017

Shield stand

we had a great meal out

Shield

What a great time

In for a shower

I enjoyed giving a talk

Jasper Kosters 1st degree connection 1st Directeur/Eigenaar Admanstars Admanstars Nederlands

Asbestos in the Home

Out for a nice evening

EAF From Holland

The Work shops

All the speakers on the stage

Another speech at the Hilton Isle Of Dogs

12KBW

All out for a Meal

With Hary Steinburg and Head of Chambers

The Panel

Dr Jeremy Steel

meet up with my Italian Friend

UKATA AGM

Liz and Jill

UKATA Gill

Roger Whilley

Serious catch up

Deep in conversation with Harry Steinburg

MesoUK Carer Patient Day

Peter

Brunel University

Asbestos Fibres magnified

House Of Commons Mesothelioma Working Party

I had Raised a Question That took everyone by surprised

The week before the Launch so many Interveiws

The BBC House has the Dr Who Characters

And the famous Police Box

Peter played a huge part in the Interveiws

The wonderful night of the Launch Of the MNF

Peter played a huge part in the Interveiws

A thank you for all the Donations including The Royal Pigeon Racing Association to the MNF

We have had so many donations at the MNF from the Asbestos world like the Face Fitting team of men I’m so involved with and then all the Law firms and Mesowarriors who have all backed the Foundation beyond my expectations. The Launch Night Raised £10K plus and this has gone up since with Donations still rolling in. But one that totally surprised me was this week a Donation of £1000 from the Pigeon world through a lovely Mesowarrior Rita Frances.

It’s funny because as a child the man, a few doors down, owned Pigeon’s and I used to go and watch, as he let them out of the pens and they all flew off together and circled around. They came home and sat on the roof before finally returning to their pens for the night.

Well The neighbour gave me 2 and dad spent a day making a cage for me to them in.. I let them out for a fly and of course they met up with their friends and went home–well they are homing pigeons, but try telling an eight year old that her new friends don’t want to exchange owners. Its funny what memories come back. Thankyou so much Rita and your lovely Pigeon friends.

The history of this lovely club :-

On the 28th March 1896 there was a meeting of ‘pigeon keepers’ at the White Swan, Call Lane, Leeds for the purpose of forming a Homing Union and this led to the formation of what was then called the National Homing Union. Although this meeting took place in 1896, the first Annual General Meeting of the Union was held on 27th February 1897 at The Spread Eagle Hotel, Manchester. The title ‘Royal’ was not added until much later but, even in the early days of the Union, there was a close affinity with the Royal family.
Both the Prince of Wales and Duke of York maintained teams of racing pigeons at Sandringham and raced them successfully in both local and national events and this continued when the Duke of York became King. The family tradition is maintained by our present monarch, Queen Elizabeth II and the Royal Lofts are now well established at Sandringham under the supervision of a loft manager, where a number of respectable racing performances have been recorded.
In many respects the sport has changed dramatically from the early days but in some areas there has been little advancement. Timing clocks, designed at the turn of the century, are still in use in many clubs, whilst other members use modern, electronic and Quartz regulated timers. It is a credit to our administrators that our rules have evolved so that the pensioner with a 1920’s Toulet clock can compete on equal terms with the modern fancier having the latest in computer based technology.
The first pigeon races were conducted over relatively short distances using motor transport but serious, long distance racing was made possible by use of the railway system. This allowed for cheap and effective transport of birds to the racepoint and led to the establishment of the type of racing that we enjoy today. It was only when the Beeching ‘axe’ fell on the railway system that an alternative had to be found and the modern road transporter became the norm for race transport. Whether this was an actual improvement or not is open to debate and there are many who would love to revert to the former system. Unfortunately, cost and practicalities make this impossible. There have been occasions where the tentative use of air transport has been broached but, at the present time, the cost is proving too great for general usage.

http://www.rpra.org/show-of-the-year-2017-gala-evening/

A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos -December News letter

December has been a wonderful month to end the year on. I will look  back on the year on Jan 1st but for now I would like to recap on December.

So much Media and of course the launch of Mavisnye Foundation.

An Unusual Speech for me and so near to tears so many times but I did it xx
https://www.youtube.com/watch?time_continue=1&v=03Tm2dqBsOY

The evening came to an end so quickly I have such wonderful memories so many people had been so kind and Donated so much to make the evening so successful
There is one person that totally made my night. I know everyone there was so dear to my heart and had lived my story with me but Paul Robinson from MSD just had to have a special mention as he has been the MK3475 -28 Trial representative for me. Merck and Keytruda have saved my life and made the Mavis Nye Foundation possible

https://rayandmave.wordpress.com/2017/12/11/a-diary-of-a-mesowarrior-living-with-mesothelioma-asbestos-the-mavi-nye-foundation-has-been-launched-oh-what-a-wonderful-night-it-was/

A timely reminder about the dangers in the loft This Time of year we go into our loft to find our Christmas Decorations. We put ourselves into danger as your home has a 50% chance of harbouring asbestos if built before 2000 which could be lethal if disturbed.
https://www.linkedin.com/pulse/timely-reminder-dangers-loft-mavis-nye-bcah/?published=t 

There have been so many write ups But Laurie wrote this piece to remind me of my House Of Commons Success.

http://ibasecretariat.org/lka-blog.php#a136
As if by a fortuitous alignment of the planets, between November 21 and 28, 2017, the actions of a British campaigner, a Brazilian engineer, a Colombian Senator, an Australian physician and an Indian school teacher highlighted multiple facets of the global struggle for asbestos justice at places as diverse as the British Parliament, universities in Rio de Janeiro and Bogota, a monastery in the West Australian capital of Perth and a United Nations hearing in Geneva.
On Tuesday November 21, 2017, Mavis Nye, who was diagnosed with mesothelioma in 2009 and is in recovery following treatment with the immunotherapy drug Keytruda, attended a meeting of the Parliamentary Asbestos Sub-Group at the House of Commons.1 During the discussions, Mavis drew attention to the discrepancy which now exists between civil court verdicts mandating that defendants cover costs for non-NHS funded treatments such as those she herself benefited from and awards made under the Diffuse Mesothelioma Payment Scheme (DMPS)2 which only provide a one-off lump sum payment to eligible claimants. For a person diagnosed in her late sixties, as Mavis herself was, the amount paid by the DMPS would be around £168,000, enough to pay for about two years of immunotherapy treatment, were the entire award applied to that purpose.3
As a result of Mavis’ intervention on November 21, enquiries are being made into the feasibility of amending provisions of the DMPS to address this discrepancy. Next month (December 2017), Mavis and her husband Ray are launching the Mavis Nye Foundation “to provide a hardship fund and support and financial grants to aid newly diagnosed victims of mesothelioma in the UK.”4 In an interview, Mavis said: “I was so lucky and believe I was saved from this dreadful disease for a purpose. I hope that the new foundation will enable me to help those still suffering.”
Trevor D Sterling
Partner – Moore Blatch Solicitors ;Chair Mary Seacole Trust ;Chair Mavis; Nye Foundation & Deputy Chair Headway SW London
‪Listen to the inspirational Mavis Nye who explains on Radio 4’s Today Programme how she fought back against #asbestos cancer (Mesothelioma ) and now inspires others. https://lnkd.in/gZYHQ8Z
Pls support https://lnkd.in/g5cGC4Q
as we endeavour to support asbestos sufferers, healthcare professionals & researchers.

Big Benefits to Brownfield Properties from GEI’s Green Coatings Encasement

December 4, 2017 One of the people I have great respect for is Mavis Nye, the founder of Mavis Nye Foundation. She does wonderful work with her foundation and speaking engagements. With boundless energy, she has a strong commitment to educate others on the dangers of asbestos exposure. She is also a tireless advocate for Mesothelioma patients and works with associated support groups.

Mavis recently asked me, “Would GLOBAL Encasement, Inc.’s green coatings be of benefit on Brownfield properties?”

My answer: YES! Absolutely. GLOBAL Encasement, Inc.’s (GEI) Green Coatings Encasement has a worldwide proven track record for this and continues to be of benefit to all buildings, especially environmentally distressed ones.
https://valqrs.wixsite.com/encasementguyblog/single-post/2017/12/04/Big-Benefits-to-Brownfield-Properties-from-GEI’s-Green-Coatings-Encasement

This was a very unexpected write up but such a great Council very honoured.

Record breaker
Mavis Nye is the first person in the UK to beat mesothelioma. Belinda Liversedge speaks to her about her new charity and work on raising awareness of asbestos.
Belinda Liversedge meets a mesothelioma survivor who wants us to wake up to asbestos risks

“My talk went down better than I could ever possibly hope. People were so amazed not only at my mesothelioma story but the pictures I showed them of mistakes that are being made in the industry. We discussed with so many how we could change all that.”
Mavis Nye, 75, is a mould breaker. After six years of gruelling treatment for mesothelioma she has come out, miraculously, a survivor. Indeed, she is the first person in the UK to be declared free of mesothelioma thanks to a new type of immunotherapy treatment.
Her story means that mesothelioma need not be a death sentence. But, at the speech she gave at the launch of a new faculty for asbestos professionals from BOHS (the Chartered Society for Worker Health Protection) held in October, it was clear she also blazes a trail as a campaigner against complacency when it comes to asbestos.
https://www.britsafe.org/publications/safety-management-magazine/safety-management-magazine/2017/record-breaker/

I cant believe this one ekkk A smuggler brought in 750,000 cigarettes inside rolls of paper stuffed with #asbestos David Cant CMIOSH on Twitter
https://twitter.com/davidgcant/status/937318146368856065/photo/1

India pledges to ratify IMO’s convention on recycling of ships
“To make the ship recycling industry safe for its workers and the environment, draft legislation to implement the Hong Kong Convention (HKC) is now undergoing pre-legislative consultations; I am confident that we will ratify this convention in the not-too-distant future,” Gadkari told delegates at the 30th Assembly Session of the IMO in London on Tuesday
http://www.thehindubusinessline.com/economy/logistics/india-pledges-to-ratify-imos-convention-on-recycling-of-ships/article9976847.ece

High Court judgment due in asbestos document disclosure case
Court to decide whether historic documents on what was known about the effects of asbestos should be made public
1 December 2017
The High Court will hand down its judgment at 1530 on Tuesday December 5th in the legal fight by asbestos campaigners to force Cape Distribution and other subsidiaries to make public, documents which had previously been provided to the Court following a claim for exposure to the deadly material, asbestos.

The Asbestos Victims Support Group Forum, represented by Harminder Bains, partner in the industrial disease team at Leigh Day, took the case to the High Court for the documents to be disclosed following a legal dispute between Cape and Concept 70 Limited.
High Court judgment due in asbestos document disclosure case

High Court judgment due in asbestos document disclosure case
London, Manchester & Liverpool injury & rights lawyers, phone 020 7650 1200 or 0161 393 3530

Dr. Ken Takahashi and the Asbestos Diseases Research Institute in Australia are leading the charge for a compreh…Australian Group Leads Push for Global Ban of Asbestos
The Asbestos Diseases Research Institute (ADRI) in Australia has intensified its campaign for a worldwide ban on the use of asbestos.
ADRI is producing a special issue for the International Journal of Environmental Research and Public Health that includes the first scientific collaboration of so many global leaders aimed at banning asbestos.
Australian Group Leads Push for Global Ban of Asbestos

https://www.asbestos.com/news/2017/11/30/australian-group-leading-global-asbestos-ban/

Brazilian Supreme Court Bans Use of Asbestos in Brazil
By a vote of 7 to 2 on Wednesday (the 29th), the Brazilian Supreme Federal Court (STF) banned the production, commercialization and use of asbestos in Brazil. The substance is currently used in the production of roofing tiles and water tanks, but health organizations point to its risk of being a carcinogen.
Brazilian Supreme Court Bans Use of Asbestos in Brazil

http://www1.folha.uol.com.br/internacional/en/business/2017/11/1939473-brazilian-supreme-court-bans-use-of-asbestos-in-brazil.shtml

 

 

 

 

A Diary of A Mesowarrior Living With #Mesothelioma #Asbestos -The Mavi Nye Foundation Has been launched Oh! What a wonderful night it was.

We arrived at the Richmond Hill Hotel the day before the Launch of the MNF Event.

After settling in off we went through a rabbit warren of passages to the dinning room where , being the only ones there, we had the attention of the manager who chatted away to us and explained how the £8million refurb had taken place.

We had a lovely meal then an early night.

After breakfast and then lunch we got ready to receive all the guests as they arrived.

First along came the Mesowarriors one by one as we had arranged to meet up and have a coffee. Then after changing into our evening wear we met up again and went to the ballroom. It was strange as so many cyber friends arrived and I was realising that I just wasn’t seeing everyone, I do hope I haven’t not spoken to anyone as Ray managed to get to see so many but I was missing people.

So the scene was set and theses little devil’s with the help of  the team from Moore Blatch and 12 KBW are the ones that have helped me to put it all together.

We had speeches in between each course and the food was wonderful.

Dr Peter Szlosarek  has been telling my story and his thoughts on BBC Today and BBC Kent Live as well as the TV Interview we did for BBC South

Trevor was a true showman and ran the evening well as he told how we met.

Trevor Stirling and Harry Steinburg QC Ran the Auction with Harry pushing the prices up all the time in fact he got £800 for 3 of Rays paintings. I had to push Rays mouth shut as it was wide open with every new bid.

A special Auction Prize was added by Linda Wride our events photographer it sums up all the passion of the evening its what drives us Mesowarriors to fight back and give we have been hurt bad by Asbestos and we do all we can to raise Awareness to make our world safe as we don’t want to see any more deaths for this dangerous material.

Linda wrote —Iam donating a set of three framed prints of my original artwork (signed artist’s proofs) in wood frames which are each 4035mm high x 3035mm wide x 45mm deep.

By way of background information, I am making this donation in memory of my husband Steve (who was diagnosed with mesothelioma around the same time as Mavis) and to celebrate Mavis’s inspiration and support for the global mesothelioma community.

Steve took part in three clinic trials, as well as undergoing standard chemotherapy after his mesothelioma diagnosis in 2009. Sadly he was not eligible for the drug trial which has worked so well for Mavis. He died last year, almost 7 years post-diagnosis. Our story is told on my blog called “Doing Something Positive” http://doingsomethingpositive.blogspot.co.uk

Photography was a passion we both shared and which I continue to enjoy. Whilst not a professional photographer, my images have won international awards, been exhibited widely in the UK and abroad and published in the national press (including the Guardian Weekend Magazine and the Journal of the Royal Photographic Society). I’m an Associate of the Royal Photographic Society (ARPS) and have distinctions from the Photographic Alliance of Great Britain (DPAGB) and the Internal Federation of Photographic Art (AFIAP). I hope very much that the Rose Series prints will bring joy to the successful bidder and help raise funds for the Mavis Nye Foundation.

 

 

 

 

Thank you to all the wonderful Donators

The room was perfect as it was all decorated for Christmas. Raffle prizes under the tree

 

 

 

 

 

 

 

 

The evening came to an end so quickly I have such wonderful memories

There is one person that totally made my night. I know everyone there was so dear to my heart and had lived my story with me but Paul Robinson  from MSD just had to have a special mention as he has been the MK3475 -28 Trial representative for me. Merck and Keytruda have saved my life and made the Mavis Nye Foundation possible

I leave you with the Photo’s of the night That Linda Wride has taken  but also the words from my son Terry Nye

I would like to thank all of the wonderful people involved in making last night possible. To me my mum is just my mum .But thanks to all your hard work and dedications you have made it possible for my mum and dad to enjoy several more years of happiness .My dad worships the ground my mum walks on . I am proud of my mum and dad. I have seen for myself just how much my mum is doing for others. A truly unselfish act, she has not just taken from you but is giving so much back .But words cannot express my gratitude to all of the hard work you all do. I don’t share these thoughts with my mum often because Trevor knows i still think my mum is a nightmare😜)

If you would like a High Res photo please contact Linda Wride xx

 

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos – A week of the Media and Other Articles about the Launch of MNF

Louis getting a grooming xx

Its been a crazy whirl getting ready for the Launch of my Foundation. So many phone calls and emails from people who have heard me on the Radio and TV wanting help. The numbers of Mesothelioma must be a lot higher than reported.  I feel like I’m gathering so many on to Face Book and from there I pass over all the info they need to cheer up a realise there is hope. On Oncologist has actually told a new diagnosed Patient that there is no cure (Agree) But no trials and no operations are carried out in the UK ?? I would be dead if that was correct. I despair I really do. The patient has now got details and an appointment to see if they are ok for a trial.

I have all the links or my broadcastings.

We went to Radio Kent Saturday in the dark and did a great broadcast so early in the morning. Pat Marsh is so very sweet but not in pantomime gear, He asked if he should have dressed up for me to recognise him as I have only ever seen him dressed as a woman

Click on the link it’s here on our We Page http://www.mavisnyefoundation.com/aims.html

There have been so many write ups

http://ibasecretariat.org/lka-blog.php#a136

As if by a fortuitous alignment of the planets, between November 21 and 28, 2017, the actions of a British campaigner, a Brazilian engineer, a Colombian Senator, an Australian physician and an Indian school teacher highlighted multiple facets of the global struggle for asbestos justice at places as diverse as the British Parliament, universities in Rio de Janeiro and Bogota, a monastery in the West Australian capital of Perth and a United Nations hearing in Geneva.
On Tuesday November 21, 2017, Mavis Nye, who was diagnosed with mesothelioma in 2009 and is in recovery following treatment with the immunotherapy drug Keytruda, attended a meeting of the Parliamentary Asbestos Sub-Group at the House of Commons.1 During the discussions, Mavis drew attention to the discrepancy which now exists between civil court verdicts mandating that defendants cover costs for non-NHS funded treatments such as those she herself benefited from and awards made under the Diffuse Mesothelioma Payment Scheme (DMPS)2 which only provide a one-off lump sum payment to eligible claimants. For a person diagnosed in her late sixties, as Mavis herself was, the amount paid by the DMPS would be around £168,000, enough to pay for about two years of immunotherapy treatment, were the entire award applied to that purpose.3

As a result of Mavis’ intervention on November 21, enquiries are being made into the feasibility of amending provisions of the DMPS to address this discrepancy. Next month (December 2017), Mavis and her husband Ray are launching the Mavis Nye Foundation “to provide a hardship fund and support and financial grants to aid newly diagnosed victims of mesothelioma in the UK.”4 In an interview, Mavis said: “I was so lucky and believe I was saved from this dreadful disease for a purpose. I hope that the new foundation will enable me to help those still suffering.”
Trevor D Sterling
Partner – Moore Blatch Solicitors ;Chair Mary Seacole Trust ;Chair Mavis; Nye Foundation & Deputy Chair Headway SW London
‪Listen to the inspirational Mavis Nye who explains on Radio 4’s Today Programme how she fought back against #asbestos cancer (Mesothelioma ) and now inspires others. https://lnkd.in/gZYHQ8Z
Pls support https://lnkd.in/g5cGC4Q
as we endeavour to support asbestos sufferers, healthcare professionals & researchers.

 

https://valqrs.wixsite.com/encasementguyblog/single-post/2017/12/04/Big-Benefits-to-Brownfield-Properties-from-GEI’s-Green-Coatings-Encasement     

One of the people I have great respect for is Mavis Nye, the founder of Mavis Nye Foundation. She does wonderful work with her foundation and speaking engagements. With boundless energy, she has a strong commitment to educate others on the dangers of asbestos exposure. She is also a tireless advocate for Mesothelioma patients and works with associated support groups.
Mavis recently asked me, “Would GLOBAL Encasement, Inc.’s green coatings be of benefit on Brownfield properties?”
My answer: YES! Absolutely. GLOBAL Encasement, Inc.’s (GEI) Green Coatings Encasement has a worldwide proven track record for this and continues to be of benefit to all buildings, especially environmentally distressed ones.

ADAO Linda ReinStein

http://www.asbestosdiseaseawareness.org/archives/45380

Read all about @Mavis Nye BCAhs, her December 7 event, and how you can help in today’s blog: “Interview with Meso Warrior, Launches New Patient Support Organization, the Mavis Nye Foundation.”

And then a lovely email  to become an Ambassador for our company and the work we are doing to save and improve lives through clean innovation.

This will all be announced in the new year but it makes you wonder just where this journey will take me. 

All the things we have to take for The launch is all piled together and will be packed away tomorrow ready. Paintings, cards , everyone is ready now for the fun we have made it. Its been hairy at times but we are there now except I phoned the hotel in case I had to book a parking space and she just couldn’t find my name. Ekk. I said but the do is in my name I booked right at the beginning months ago. It took about 10mins to sort and I said I’m having a heart attack she said not as bad as I am. She found it thank goodness and I was all paid up. I knew I was.

So we calm now and just enjoy it all.