I woke up at 8pm and so pleased I had a good nights sleep.

After such a quiet day yesterday today has been mad.

I had a shower and felt unsteady and lost my balance a bit when i closed my eyes under the water.

Got out a dried and was ok went into the porch to get my mop to clean the shower room floor and hey the world went mad.

I lost my balance put my foot on the back of the other foots slipper and fell sideways into the hall.

I hit my head on a radiator as i came down and just could not save myself. Up came a bump that grew on my head down onto my forehead.

I felt so silly laying there wondering how it could have happened. Ray was saying are you Ok let me help you up and Im saying no you will hurt your back again and its cost a lot already ha ha !!!

I was Ok and got up with only my pride broken –the radiator is fine.

I sat down with a coffee and felt Ok so we did take Louis for a walk he so needs a run but we cant go to muddy fields in case Ray twists his back and undoes all the good work as he has another session tomorrow while Im at the hospital for Chemo.

I love the way he can move now and he is holding himself straighter so its just down to healing the ligaments and the damage that has been caused by the disc’s being twisted for so long.

I have watched to wonderful silly films this afternoon

http://www.youtube.com/watch?v=u_ILa0TF_zk

Lovely film

Then we watch the young girls that Photographed fairies http://www.lhup.edu/~dsimanek/doyle.htm

In 1917, two teenage girls in Yorkshire produced photographs they had taken of fairies in their garden. Elsie Wright (age 16) and her cousin Frances Griffiths (age 10) used a simple camera and were said to be lacking any knowledge of photography or photographic trickery.

So it was a very magical afternoon

I cooked dinner of Pork Shanks with new potatoes, carrots  and broccoli and lots of apple sauce as I had made a apple crumble.http://www.foodandwine.com/recipes/braised-pork-shanks

I had cooked the shanks in the slow cook so they fell of the bone.

This was a lovely recipe.

I have eaten plenty as tomorrow I only have soup and a roll as they do give you a lunch box -sandwiches, yogurt and crisp but I only have the soup.

So now Im watching dancing on Ice as Im a fan of the graceful dancing of the younger members.  Chemmy Alcott’s  is just wonderful to watch.

Bad news today http://www.independent.co.uk/life-style/health-and-families/features/asbestos-new-blow-to-victims-of-a-shameful-legacy-6296347.html

The Government has deliberately excluded asbestos from an unprecedented review of the condition of the country’s schools because it knows that tackling the risks to schoolchildren and teachers could cost hundreds of millions, critics claim.

Campaigners reacted with fury last night as it emerged a year-long survey of England’s 23,000 schools will examine every aspect of buildings – from classroom decoration to whether fire alarms and toilets are in working order – but will specifically exclude asbestos, the most serious threat of all to staff and pupils.

In a statement, the Department for Education said asbestos was excluded from the upcoming property surveys because any assessment could not “substitute for local asbestos surveys already required by the Control of Asbestos Regulations”.

But education unions argue this policy is not matched in practice. Chris Keates, head of the NASUWT, the largest teachers’ union, accused ministers of “reckless buck-passing”, adding: “Local authorities have been stripped of the resources … needed to carry out these responsibilities. While the Government behaves like Pontius Pilate, washing its hands of responsibility, the health of children and the workforce is being put at risk.”

——————————————————————————-

This is a long battle that has been fought and Labour was agreeing the dangers were so bad that a rebuild of our Junior schools was needed

http://www.asbestosexposureschools.co.uk/

http://mesoandme.wordpress.com/2012/01/29/million-bonus-for-pensioners/ rays blog err I fell out of the porch Ray

 

 

 

 

I didnt do a blog last night as I was so chilled out and relaxed all day so I shoudnt deprive you of Rays blog –I will write later today

http://mesoandme.wordpress.com/2012/01/28/saturday-2/

Another day of having to get up early and take Louis out to settle him.

We had to get to the hospital for an early appointment to have my bloods taken.

The traffic is so bad on a Friday but we still made it in plenty of times.

A very nice man who is a volunteer made us a lovely tea and coffee and a biscuit served with a smile.

I was called in early and the sister asked me how I was going, was I tired, any problems with my hands and toes, was I sick etc etc I had to answer yes to everything although the sickness has been so much better taking the drugs.

The nurse soon took my bloods ad said they would phone if they are out so I havent received a call yet so I take it Im Ok.

So we were soon off back home calling in the shops to make sure we had plenty of food in for Ray to cope with if Im bad from Monday onwards.

I have sat around shattered as the early mornings and yesterday have warn me out.

I had a Pizza for lunch and Roast Beef with Jacket potato, spinach and podded peas for Dinner.

I did manage to take Louis for a small walk again this evening just to get some fresh air. It is cold out there though and we have snow forcasted for Monday  although my friends have had snow in Scotland already.

I have been interviewed by the  Orlando Weekly newspaper as they are covering Mesothelioma and Asbestos so of coarse I was very willing to help.

My book will be featured so that really makes me happy and proud to be able to do so much to raise awareness to our disease.

http://www.rayandmave.org.uk/html/more_of_our_books.html

http://mesoandme.wordpress.com/2012/01/27/friday-2/ rays blog for today

I had to get up early today but Ray set the alarm clock to early and 5.30 was no fun with a Buzzer going off at that time as I hadnt dropped of to sleep very well.

I got up and had breakfast and a shower with a good coffee to drink I was awake.

I took Louis for a walk just as it was dawn but it was also pouring hard I just love it as I enjoy every minute and see life so different now.

Feeling the rain on my face was a joy –I was still here to feel it xxx

We got ready and set off through the rain in the car and traveled in rush hour traffic, this meant Canterbury at roundabouts were gridlocked and very difficult to maneuver through.

We did get to the hospital on time and there were plenty of Disabled Parking but we went to the carpark Manager as the Badge only allows 3 hours and I was down for 5 hours.

Now she surprised me as we were told move to a ordinary bay and put a £2.00 ticket on the badge and we will be able to park all day. Something I and other patients didn’t know could happen.

We arrived at Nuclear medicine and I booked in for my Kidney function test.

I was taken into a room and had the drug put in to my veins and then I had to sit back and wait 1.5 hours to the first blood test.

Other patients were taken in and we all had to wait.

We began to talk to a lovely couple and the lady had already told Ray she was having the test done because she was on Chemo.

She had Ovarian cancer that was traveling and was in her stomach and lungs but I felt for her as she said there was any groups like I was in on face book and I told her all about the Mesowarriors and how great it was as we all helped each other.

She also paints so Ray and her got on so well and Ray showed her all his paintings on his iPad and it has inspired her to start again as her illness has stopped her but she would find it so relaxing and give her something to take her mind off of  Cancer.

We both kept going in for our blood tests every 1.5 hours so boring and such a long day. I think I will glow in the dark tonight.

At last I had my last one and said goodbye and walked out of there and hope i dont have to do that again.

The sun was beaming and it was a cold but lovely sunny day as we drove home to a very excited dog.

I had a Chicken Tikka ready for Ray and a Tomato Pasta for myself and we were starving hungry.

Rays back is so good and he can move around really well Im so pleased with his progress.

http://mesoandme.wordpress.com/2012/01/26/how-silly-is-that/  rays blog

I had the best nights sleep for a long time and woke up at 7.30, might be because the Chemo seems to be making my eyes sore and I seem to find it hard to keep my eyes open.

I have tinnitus so it must be affecting my head this time.

It was a damp day although I don’t think we had rain but if we did I didn’t hear it.

The window cleaner turned up so now the outside has been done so Im really pleased I have done the inside.

He uses the De-ionised water system and it does work http://www.borderwindowclean.co.uk/info_reachandwash.aspx The windows stay looking so clean –well not when the seagulls go over of coarse.

Ray had to go to the Chiropractise  so we got ready and  went off in the car with Louis and while Ray was in having his back broken Louis and I went for a quiet walk together around the roads at Hernebay.

We were near the water tower that I have seen many times.

It is a landmark that you can see for miles around.

It was very pleasant as Louis trotted along by my side and we came back to the car where we sat and waited for Ray to come out.  he looked very stiff but said he felt good but has to go back Monday again. So good that he is going to stick to it and that he will be OK again.

We came back home to lunch so the rest of the meat pie was used with a salad.

Nice rest in the afternoon and tea I made Ray a chip Sarnie and I had a baked cheese.

Early to bed tonight as I have a long day at the hospital tomorrow as I have a Kidney function test to get through in Nuclear Medicine -so many hospital appointments coming up in the next few days.

http://mesoandme.wordpress.com/2012/01/25/a-thoughtful-day/ Ray has been thinking today bless him xx

 

 

 

 

Steak pie

I had to cancel a Nurses appointment today as I had booked a Vitamin B injection but when I looked on the box it says every three cycles thereafter.

So the appointment should be for the February one. Good job I rechecked. they were very good about it at the surgery thank goodness.

This left me with the day ahead for me so we had a slow breakfast tidied up and then took Louis out for a walk, when it stopped raining.

It was a damp day though  but no wind and not to cold either.

Ray has been using the frozen peas for his back and then the hot water bottle –hot and cold –looks so funny.

Congratulations to Norman Fletcher who has been accepted for the Adams Trial at St Barts –well done xx I will be following your progress with a great interest.

I made a lovely steak pie for dinner with potatoes and carrots even Louis loved it.

John Barrowman showcases his recipe for homemade steak pie, using ready-made pastry to save time.

Ingredients

• 900g/2lb stewing steak, cut into cubes
• plain flour, seasoned with salt and freshly ground black pepper, for dusting
• 1 tbsp olive oil
• 2 onions, sliced
• 1 tbsp chopped fresh parsley
• 1 tbsp chopped fresh thyme
• salt and freshly ground black pepper
• 570ml/1 pint hot beef stock
• 225g/8oz ready-rolled shortcrust pastry
• 1 free-range egg, beaten

Preparation method

1. Dust the cubed steak with the seasoned flour
2. Heat the oil in a large heavy-bottomed pan and fry the meat, stirring frequently, until browned on all sides.
3. Add the sliced onions, herbs, salt and freshly ground black pepper and the stock and bring to the boil.
4. Reduce the heat and simmer gently for an hour and a half.
5. Preheat the oven to 190C/375F/Gas 5.
6. Transfer the filling mixture to an ovenproof dish. Line the rim of the dish with a thin strip of pastry. Dampen the pastry rim by brushing with beaten egg. Cut a piece of pastry to fit across the top of the dish and place on top of the dish, pressing the edges together to seal. Decorate with pastry trimmings, make a steam hole in the centre of the pie by slashing with a sharp knife, then brush with more beaten egg.
7. Transfer to the oven and cook for 1-1½ hours. If the pastry gets too brown, cover it with foil. Serve hot.

    

   Yogurt and mango for sweet and we were full up.

    

   Rays blog http://mesoandme.wordpress.com/2012/01/24/fresh-day/

    

I had the urge to clean the windows inside today as I wanted to keep everything straight for next Monday, as its Chemo day and I dont know how I will be feeling and Ray will have enough to do if I have to stay in bed again.

I had to phone and book my Vitamin B Injection for tomorrow so I will have to get ready and go out early as its 9.10am.

Today was a colder day outside so we had to wrap up warm to take Louis out and we were happy to get back home again.

I made a corned beef hash for lunch as we had to go to Hernebay for Ray’s appointment for the Chiro practitioner, and I knew we would be home late so I planned on a sandwich then for Tea.

We set off 3.45 and arrived in time for the appointment, such very nice people there and the receptionist chatted away to me while Ray went in and a bone cracking time.

The lady asked me if I was well, why I dont know but I said not really as Im under the effects of Chemo and we chatted away, what a small world, as her husband has Plural plaques as he used to work in Chatham Dockyard and also they lived right by my Mother in Chatham. So we had a long chat.

Ray came out and he looked so much better and could move around so we made another appointment for Wednesday for him and he has to use a bag of frozen peas for 10 mins and then a hot water bottle. So we had to go to Tesco’s to buy peas and a hot water bottle.

It was dark when we got home and so the day had gone. I had a bovril and cheese sandwich and a cake.

Louis had his favourite Tesco’s chicken so he is happy.

Rays blog http://mesoandme.wordpress.com/2012/01/23/chiropodist/

In the comment box Emma said –Dear Mave, actually I am honoured to be in contact with such a brave and inspiring woman. As I have commented on Ray’s blog, your story illustrates just how asbestos can affect a family. It must have been hard for you to watch your father suffer and now to be going through what he did must be very frightening. Yet here you are helping others. Thank you.

Thank you Emma xx

 

 

 

 

He said

I dont usually copy and paste Rays blog here but he tells the news I have today

I had a nice e/m today from Emma. Thanking mavis for her book. She was writing a Thesis for her degree and contacted Mave some time ago, She has now completed  it and said that mavis is referenced in  the thesis.

I was unable to help  further on  asbestos victims from my past association with Chatham Dockyard as I have been away far to long and most of my old workmates are no longer with us. All getting old now you know.  Funny its exactly 4 weeks today and I hit 74. See thats what I mean getting old.

***

I have given the painting  3 coats of varnish now. So  all I  have to do with it is store it somewhere safe untill I can deliver it.

Apart from that I have not done a lot today. mavis has had another good day. She did remind me that in a weeks time we have to start all over again,she isnt looking forward to  it. I said neither am I. But if needs must.

——————-

So you can see Im really proud to have had a Thesis written about me and Emma has used my book as a reference, so she has written about my book as well which she said “It is such a moving story and so very well written.”

So I and my book will be referenced in her Thesis -that is such an honour.

I have helped her to find more info about the deaths of Mesothelioma at the Chatham Dockyard as we have lost contact with all the friends Ray made in the dockyard all those years ago. Im interested  as well to know just how many have died through the Disease.

—————————————————————-

It has been a lovely sunny day all day long and not cold either so we managed a walk but I found out another neighbour has died on Friday –so sad.

She had a stroke bless her.

I said to Ray there was I given 3 months and because of chemo I keep missing the grim reaper but in the three years of my fight so many of my neighbours have gone. people that had been so sympathetic to me. You really do have to enjoy each day don’t you.

We came back home to lunch and then enjoyed a lazy Sunday afternoon.

I have been watching Dancing on Ice which I love Chico

Chico

 

 

 

 

Good day today as we have had a lazy relaxing time.

When I got up this morning I thought the heating was on, but it wasn’t, It was just so mild again.

A little windy and cloudy at times but a nice day for a January day.

After we had tidied up Ray wanted to  go to Halfords so we were soon dressed and up and out.

Yes we stopped off at Tankerton slopes but it was very windy, I couldn’t breath so we got back in the car and went to Halfords and parked up. Ray did his shopping and we went for a walk with Louis.

After we went through the rough ground we came to the road and on some railings by a alleyway we saw bunches of flowers and lovely letters all tied to the railings.

I googled tonight to see if it had been a murder or an accident there an found it was an accident at the new year, when the man had been walking home and was knocked down.

The photo of him showed a lovely man, a husband and a father –so sad !!

Ray has made an appointment for his back to be worked by a Osteopath on Monday so maybe they will cure his back. His painting is finished and I know our friend will love it as it is just wonderful.

We really will have to go to Poole Harbour now to see the buildings that are still there today. Its the boats that will look different I expect.

I have found this photo but it isnt at the same angle

Ray Painted 

Thats it really as we just chilled out reading and drinking Coffee until I finally made dinner of a beef  roast and apple pie which we have just eaten.

Not much on telly tonight so will watch a film.

 

I did watch this afternoon the story of  The royal family Bertie and the Queen Mother and saw that he died of Lung Cancer and of coarse Princess Margaret did. I know they smoked heavily but it did cross my mind that the Palaces must have had Asbestos to —I wonder!!!!!!

 

http://mesoandme.wordpress.com/2012/01/21/a-good-day/ Rays blog

 

Although I woke up at 2.30am I was tired but I was woken up by this noise of a approaching jet plane —-no it was Rays snoring and it went on and one.

I went to the bathroom and came back and it started again. I prodded and poked but got no where and he just went on and on.

I must have dropped off as I awoke again at 7am so I got up and made a drink then.

Potted about until and changed the bed and put the washing on. I feel better again.

We went out to Tankerton slopes and kept the wind on my back we walked Louis along the Front he was happy to be in his favourite place again.

The weather was mild and windy and I was wrapped up with a scarf around me but it started to rain so I didnt look silly.

We traveled on to Sturry where Ray wanted to buy and have fitted, two new window wipers so I crept into M&S and bought things for dinner tonight.

Their sausages are lovely and I fancied sausage, mashed potato, fried onions and tomatos with a salad, real comfort food for a wet windy day as the rain got heavier and heavier.

We got back home and was glad to snuggle indoors.

I have had a good day but Im finding the muscles in my legs are getting worse. the first Chemo wakened my muscles and this round is having even more effect. I dont want to start using a walking stick but must admit that when I out I could do with one.

I had better start doing some strengthen  exercise to help.

http://mesoandme.wordpress.com/2012/01/20/back-to-back/  rays blog