Today there was another great discussion on the Saatchi Bill if you have an hour to spare and the need to have treatment when there is no hope

https://plus.google.com/u/0/events/c80kqapi0048lilguoc1idq0934

I have said walk in my shoes if you want to know why we need the Saatchi Bill.

The campaign to gain support is nearly over and then its for the Higher men to work out how we can put it into place. Jeremy Hunt will be sorting it all out.

I have had a link but it doesn’t work so it has to be resent to me of all the recordings we did that day.As soon as I receive them I will publish on my Blog

We have been busy today the usual housework. The computer and Facebook all  take time.

Then Ray suggested I went to sort out a Tri Wheel Walker. We had noticed yesterday that as I walked around Teso and a good speed -for me.

So I sort of agreed Ok I will have a look. We arrived at the Business Park where had had a look before.

There wasnt anyone in the shop so I was able to test run about 6. One was a bright orange and would have suit my mad sense of humour.

There were 4 wheeled ones with a seat but they were a bit to big and bulky for the car.

A man finally appeared and he helped us to higher the handles as Im so tall, it did feel very comfortable.

Nice large wheels to go over rough ground like Motorhome shows and camp site fields.

So that it I gave in but I will be able to get more exercise which I so badly need. Its the real downside of illness. Not having the energy to move around is so bad for you.

I will also be able to walk around Peterborough Motor Home Show -Yipee and look in New Motorhomes. –Oh did I promise I wouldnt buy another one he he he !!!

Schools are back in the headlines

http://www.asbestosexposureschools.co.uk/npaper%20links/H%20of%20C%20questions.htm

 

Lords written answer: Schools Asbestos

Schools: Asbestos. 9 Apr 2014 : Column WA309

Asked by Lord Alton of Liverpool : To ask Her Majesty’s Government what assessment they have made of the report, Asbestos in Schools, published by the All-Party Parliamentary Group on Occupational Safety and Health; what assessment they have made of the view of the Committee on Carcinogenicity of the vulnerability of children to asbestos; what recent figures they have for the incidence of asbestos-related diseases in children and teachers; and when they intend to publish their response to the evidence submitted to their review of policy on asbestos management in schools.[HL6545]

The Parliamentary Under-Secretary of State for Schools (Lord Nash) (Con): The Department for Education is currently reviewing its policy on asbestos management in schools and intends to publish the outcome of the review by the end of June. The scope of the review includes the conclusions of the Committee on Carcinogenicity’s statement on the relative vulnerability of children and the recommendations from the reportAsbestos in Schools: The Need for Action produced by the All-Party Parliamentary Group on Occupational Safety and Health. The Health and Safety Executive publishes figures on asbestos-related deaths—including occupational information—on its website. We do not know of any figures detailing the incidence of asbestos-related diseases in children.

Commons written answer. Schools Asbestos

Mon, 31 March 2014 House of Commons – Written Answer

Dr Huppert: To ask the Secretary of State for Education if he will issue to schools specific guidance on removing asbestos from premises. [193714]

Mr Laws: The guidance from the Health and Safety Executive is that, if asbestos is undamaged and unlikely to be disturbed, then it is usually safer to leave it in place and to manage it as required by the Control of Asbestos Regulations 2012. If asbestos is found to be in an unsealed, damaged or poor condition, then it should be repaired, sealed, enclosed or removed using trained personnel. The Department for Education has no plans to issue school-specific guidance.

2014 is still very much Asbestos and Mesothelioma Aware.

I have been invited to give a presentation at My Cancer Network I have recieved the outline to talk about. It looks good and is right up my street.

(We are trying to focus discussions at the meeting on how patients access services throughout their pathway with a particular interest in getting patients into the system quicker from primary care and then what happens to patients when they are discharged or continue to access services after initial treatment. To hear from you your thoughts about streamlining services for lung cancer patients would be of specific interest.)

I will get writing

 

So Easter is all over now until next year. All the chocolate eggs and now we all go on a diet.

We went no where yesterday as the rain never stopped until evening.

I watched a great film -The first Harry Potter and now Im watching no 2. I will get hooked on them if they are re showing all the films.

Harry-Potter-Prequel

Its funny how we have watched him grow up before our eyes.

Must admit I fell asleep bored as the rain was belting down.

We woke to a wonderful sunny day today though. Had a lovely morning pottering around and chatting on Facebook making sure everyone was well today.

Then we went out to buy Louis chickens for me to roast. One to roast and a spare in the freezer.

Calling in at the Park for him to have a really lovely run around. We have a very tired little Dog here now. He will have a good dinner now the chicken is all roasted for him. He loves freshly cooked meat. Spoilt dog.

DSCF7276

 

 

Today Our Queen is 88 years old –happy Birthday your Majesty

Photo: A very happy birthday to Her Majesty The Queen!! Long May she reign over us!!!! X love all the splendor of Royalty and the gund had to fire 88 times today.

Royal salute at Green Park

http://www.bbc.co.uk/news/uk-27100517 there is a video on here

The Queen has two Birthdays today and then trooping of the Colour In June

The Queen’s 88th birthday has been marked across the UK with traditional gun salutes.

A 41-gun royal salute was fired in Green Park in London and a 62 gun-salute from the Tower of London.

Gunners from 105th Regiment Royal Artillery fired two 21-gun royal salutes at Edinburgh and Stirling Castles.

Salutes were also fired in Northern Ireland and Wales. The Queen is spending the day privately at Windsor.

Tradition followed

The Queen was born on 21 April 1926 at the home of her mother’s parents in Mayfair.

However, her birthday is also celebrated officially each year in June at the Trooping the Colour service – which this year will take place on 14 June.

Something is going on as we are having so many earthquakes.

In the past 30 days, we’ve seen NINETEEN 6.0M+ earthquakes… SEVEN 7.0M+ earthquakes… and TWO 8.0M+ events (with tsunami warnings issued for each). EXCESS…

The ADAO Asbestos Awareness Videos and Newsletter are published today.

http://archive.constantcontact.com/fs113/1101491837344/archive/1117146172114.html

adao15

Saatchi Bill
Join Dr Ranj and Lord Saatchi tomorrow at 4pm for a Google hangout on the Medical Innovation Bill.
Watch here: http://bit.ly/1lbPzlZJoining the panel will be:

Harrison’s Fund
Right to Try
Charlie Chan – Consultant Surgeon
Prof Stephen Kennedy-University of Oxford
Prof David Walker – Professor of Paediatric Oncology, University of Nottingham
Look forward to seeing you all.
Photo: Join Dr Ranj and Lord Saatchi tomorrow at 4pm for a Google hangout on the Medical Innovation Bill.</p><br /><br /><br />
<p>Watch here: <a href=http://bit.ly/1lbPzlZ</p><br /><br />
<p>Joining the panel will be:</p><br /><br />
<p>Harrison’s Fund<br /><br /><br />
Right to Try<br /><br /><br />
Charlie Chan – Consultant Surgeon<br /><br /><br />
Prof Stephen Kennedy-University of Oxford<br /><br /><br />
Prof David Walker – Professor of Paediatric Oncology, University of Nottingham</p><br /><br />
<p>Look forward to seeing you all.” width=”403″ height=”403″ />

 

Rays Blog http://mesoandme.wordpress.com/

Had a good day today although not achieved much as I laid awake for sometime last night. I wasn’t in pain but just couldn’t sleep. I had the hallucinations from my Nerve blocker.
Its crazy I sat up in bed and thought the dog was sitting on my bed but then it changed in a dear little man. I had been watching that lovely dwarf on the telly with his family and there they were sitting on my bed. I sat up and actually put my hand out to stroke them. Now how weird is that . This has got to stop before I go mad they will bring a straight jacket for me soon. ha ha !!!
I had a stew cooking so slowly in the slow cook. The smell all day has been divine.
It has been sunny but chilly this morning and warmer this afternoon.
On 9 May 2013 20:12 Was when I first spoke to Beccy and her father had had to stop going to Germany. She and her dad were in the paper as they were raising awareness to the new Compensation Bill that was then in its infancy.
We chatted away on Facebook as she went through the awful last days of her Fathers life.
I have put the article in my blog and its getting tweeted as well It is so good to have a fighter in our corner xx well done

Larrie and Rebecca Lewington

Larrie Lewington, 65, from Eynsham, Oxfordshire, was exposed to asbestos in his 20s while working as a lagger.

He was diagnosed with mesothelioma in August 2012, so he will be eligible for compensation under the new scheme, but his daughter Rebecca told the BBC the 70% cap on compensation was “insulting”.

She said: “When my dad was working with asbestos the government at the time knew it was dangerous and they need to take some responsibility.

“For them to do this scheme and then say they are going to cap it is incredible. It’s insulting.

“My dad worked his whole life, paid all his taxes and his national insurance, and he never borrowed a penny. Now, through no fault of his own, he’s got this disease.

“It’s been devastating. We’re a very close family and it’s ruined our lives.

“I wish I could go into Parliament and face them and they could see the pure pain that I’ve got.

“It’s as good as murder what they’ve done, allowing this substance to be used and now, to put it bluntly, it is going to kill my dad.”

Because of the delay in developing symptoms, some workers who were negligently exposed to asbestos at work find it difficult to trace an employer or insurer who is liable to pay compensation.

On Wednesday, the government announced a Mesothelioma Bill, which will set up a payment scheme aimed at addressing this “market failure”.

The proposal is to offer all victims using the scheme a flat-rate payout set at 70% of the average compensation paid out by insurers to those victims not using the scheme.

It will be paid for by a levy on insurance companies which provide employers’ liability and is expected to cost the insurance industry £300m over the next 10 years while helping more than 300 sufferers a year.

But campaigners say the scheme does not go far enough in compensating victims, and thousands who suffer from other asbestos related diseases, such asbestosis and pleural thickening, will not receive anything.

The proposed 70% cap on compensation is also a “red line” for campaigners. (This was change in the Bill and 80% was won)

Tony Whitston, chairman of the Asbestos Victims Support Group, said: “What appears to be a great deal brokered by government, and costing the insurance industry a small fortune, is in reality something entirely different.

“This scheme excludes 50% of asbestos victims, pays ‘average’ compensation only to victims dying from the cancer mesothelioma and then slashes average compensation by 30%.

“This scheme is not what we expected. It was presented as a fait accompli to asbestos victims and saves the insurance industry a small fortune at huge cost to asbestos victims.

“The bill needs to be unpicked and repackaged if the victims’ best interests are going to be truly at its heart.”

‘Life is a mess’There have also been concerns that only those who are diagnosed after 25 July 2012, when the government first announced details of the scheme, will be eligible for compensation.

Arthur Butts, an electrician who is now his 70s and was diagnosed with the disease two years ago, told BBC Radio 4′s Today programme that there was “no sense” in the cut-off point.

Read all the write up here

http://www.bbc.co.uk/news/uk-224621

Today beccy and her lovely family have raised more Awareness

Oxford Mail: aughters and grandchildren of Larrie Lewington, clockwise from front left, Callum Lewington, 13, Summer Clapperton, two, Rebecca Lewington, 31, Louis Clapperton, six, Charlie Unwin, seven, Evie Unwin, 11, Jessica Lewington, 30, Jake Cross, 11Buy this photo »daughters and grandchildren of Larrie Lewington, clockwise from front left, Callum Lewington, 13, Summer Clapperton, two, Rebecca Lewington, 31, Louis Clapperton, six, Charlie Unwin, seven, Evie Unwin, 11, Jessica Lewington, 30, Jake Cross, 11

THE family of a man who died after years of exposure to asbestos have warned of a “ticking timebomb” as deaths from the disease are expected to peak over the next two years.

Grandfather Larrie Lewington, 65, of Wytham View, Eynsham, died in October last year from an incurable cancer called mesothelioma – after breathing in asbestos during his working life.

An inquest at Oxfordshire Coroner’s Court on Wednesday found Mr Lewington, died from the industrial disease.

His children Rebecca, 31, Jessica, 30, and Benjamin, 21, sister Delia Russell, 68, and brother Richard, 77, described him as a funny family man who kept his humour and dignity until death.

And they say more needs to be done to educate people about the dangers of being exposed to asbestos to prevent more unnecessary deaths.
Rebecca said: “There are so many people who don’t realise how dangerous asbestos is but such a small amount can cause the disease.
“It is important that if you think you have been exposed to it you should contact your doctors because by the time it is diagnosed it is too late, but if you go to your doctors in time they can detect it and there are things they can do to help.
“All the people my dad worked with have now passed away bar one.”
Between 2006 until 2010 across Oxfordshire there were 106 deaths due to mesothelioma – according to the Government’s Office for National Statistics.
And across 24 years in the county – from 1981 to 2005 – 893 people died from the asbestos-related cancer.
A report from the Health and Safety Executive (HSE) shows that the expected number of mesothelioma cases amongst males is expected to increase to a peak of 2,038 in 2016.
Mr Lewington’s daughter Rebecca said: “We are very angry that my dad lost his life at such a young age due to asbestos exposure which the Government was well aware was dangerous.
“He wanted to see his grandchildren grow up, it is not fair on them – they adored him.
“He was as fit as a fiddle otherwise and lost his life working hard for his family unaware of the dangers of the materials he was handling.”
Mr Lewington, grandfather to Rebecca’s children Callum, 13, Jake, 11, Louis, six, and Summer, two, and Jessica’s children Charlie, seven, and Evie, three, worked for Witney-based Kidlington Insulation from 1973 to 1978. As a thermal insulation engineer he poured bags of the deadly dust-like particle asbestos into a bucket and mixed it with water using his hands.
He was diagnosed with mesothelioma at the Churchill Hospital in Headington – which is where 30 years previously his family say he had been handling asbestos to insulate boiler room pipes.
His children raised £35,000 for alternative treatment in Frankfurt Hospital in Germany after chemotherapy sessions in Oxford did not stop the cancer spreading.
His sister Mrs Russell said: “Those kids fought like mad to keep him alive.”
But an inquest heard he died in October from the cancer.
Assistant coroner Peter Clark said: “A person’s life is not defined by their death and what shines through all the paperwork is clearly a family man who was supported and loved.”

Such a lovely family and so sad when they have to go through the Inquest just as they are bringing themselves around and picking themselves up again.

valentines

It goes to show How the Mesowarriors fight every inch of the way. The disease is bad enough with out all the tiring fight for treatment compensation and then the Post Mortem.

Hot cross buns

God Friday has been very sunny and just so relaxing as we had worked hard gardening and sorting things out.

Even though we are retired we still work on on the bases of having the weekend off.

We have been to the park with Louis again as he runs and runs in there. off lead and free. A dogs dream. There were many cars parked today. I expect the owners had walked into Canterbury. 7 miles. We did it once when we moved down here. Walked in and out it was a great walk. I wish we could still do it.

http://www.kent.gov.uk/leisure-and-community/parks-and-outdoor-activities/cycling/find-a-cycle-route-or-centre/cycle-rides-crab-and-winkle-way

 Canterbury to Whitstable railway opened in 1830 and quickly became affectionately known as the Crab & Winkle Line. It was the third railway ever to be built and the first to carry passengers regularly and to offer season tickets. A pioneer in railway engineering, there were embankments, cuttings and a 764 metre tunnel through the high ground at Tyler Hill (now under the University of Kent).

The locomotive ‘Invicta’ and the line were engineered by George Stephenson and his son Robert at their works in Newcastle upon Tyne. The ‘Invicta’, now on view at the Museum of Canterbury in Stour Street, was based upon the more famous ‘Rocket’ which actually came into service four months later. With only 12 horse power the Invicta could only be used on part of the line. Otherwise carriages were hauled by cables using steam driven engines at The Winding Pond in Clowes Wood and The Halt on Tyler Hill Road. Through the woods the railway men would apparently slow down so that pheasant traps could be checked and mushrooms picked!

Passengers were carried until 1931 and goods until the line closed in 1952, though it did re-open for several weeks in 1953, after the great floods cut the main coastal line.

With thanks to the Blean Heritage and Community Group

The Crab & Winkle Way. This family friendly cycle route was opened in 1999 in partnership between Canterbury City Council, the Crab & Winkle Line Trust, Kent County Council, Kentish Stour Countryside Partnership and Sustrans. It is part of Route 1 (Inverness to Dover) of the National Cycle Network developed by Sustrans.
Download Crab & Winkle Way leaflet/map.

For more information see the Crab & Winkle Line Trust’s website; a charity formed in 1997 they work to promote history and improve public access along the route.

As we played with Louis some came back with their dogs but our boy wasn’t interested he just wanted his own ball thrown and then stopped to eat the grass.

I came home and picked my own herbs to flavour the dinner. The mint went in the potatoes and peas and simmered away to flavour. I then chopped and sprinkled the flat leaf  parsley over the Gammon steak and tomatoes.

Guess what was for sweet

DCF 1.0

 

Tiramisu Oh how lovely –and fattening.

We found a Interesting site today and a new gadget we all should have but especially in the trade

http://www.asbestos-alert.com/how_our_detector_works

The Select Group, the ALERT project’s Exploitation Managers are responsible for production of the detector and taking it to market estimate that it will take 12 to 18 months to get the first production units for sale, with a target price of perhaps 600-700 Euros.

As production increases after the initial product launch, Select hope that costs may be cut even further,

 making the detectors even more affordable for an individual plumber, electrician or building renovator.

“These tradespeople are the most frequently affected by asbestos-related diseases and most who get the diseases will die from them,” the team says.

- See more at: http://www.asbestos-alert.com/how_our_detector_works#sthash.FpmbLVvf.dpuf

Alert_Concepts_x_3

 

 

 

DSCF9051

http://saatchibill.tumblr.com/post/82990329777/the-saatchi-bill-will-allow-responsible-innovation-in#.U0_RAuZdVss

By Michael D Rawlins President, Royal Society of Medicine

Published in the BMJ (British Medical Journal) 15th April 2014

You need to either be a member of the BMJ or to sign up for their 14 day trial

Many doctors, myself included, will have occasionally tried to treat individual patients – where all else has failed – with novel interventions. This may be where there is no recognised form of effective treatment; or when existing one(s) have not produced the desired effect. The legal basis for doing so, at least for pharmaceuticals, has been the so-called “named patient” provisions of Section 9 of the Medicines Act 19682 which permits any doctor to be able “to sell, procure or supply a medicinal product to a patient under his or her care”.

Although my own experience has been disappointing there have been occasions, when intervening in such a manner, have subsequently led to significant advances. Indeed, such observations are arguably a form of n-of-1 trial.

Confidence in using the “named patient” provisions of the Medicines Act has though become eroded. A number of legal authorities have pointed out that departing from what is regarded as “established practice” or “the standard of care” leaves a doctor open to an action for negligence. The definition of “the standard of care” traditionally follows the Bolam principle 2 as amended by the Bolitho decision3 but was forcefully criticised by Lady Butler-Schloss4 in her capacity as President of the Family Division of the High Court:

“The Bolam test ought not to be allowed to inhibit medical progress. And it is clear that if one waited for the Bolam

test to be complied with to its fullest extent, no innovative

work such as the use of penicillin or performing heart

transplant surgery would ever be attempted”.

The Medical Innovation Bill attempts to rectify this situation. It proposes legislation stating that it would not be negligent for a doctor to depart from the existing range of accepted medical treatments, for a condition, in carefully defined circumstances. These circumstances – allowing for responsible innovation – are laid out in later Sections of the Bill. They include a plausible basis for the use proposed treatment, and an assessment of the risks that could be reasonably expected to be associated with it. The Bill also proposes that, before embarking on such a treatment, the doctor should have discussed it with the patient, the multi-disciplinary team responsible for the patient’s care, and with the Institutions Responsible Officer. The Bill emphasises that its provisions are solely concerned with the patient’s best interests.

The Bill as originally introduced into the House of Lords in May 2013, as a Private Members Bill by Lord (Maurice) Saatchi, and has become known colloquially as “The Saatchi Bill”. The Department of Health is currently consulting on a draft version of it5. I was originally sceptical about the need for the Saatchi Bill but I have been persuaded otherwise. First, it is clear from the comments of Lady Butler-Schloss4, as well as other legal authorities Lord Saatchi has consulted, that there are serious legal impediments in civil law to using therapeutic interventions that do not represent the current standard of care. Second, although Lord Saatchi’s original Bill was confined to patients with malignant disease this restriction has, rightly in my view, been removed in the current draft. There are, after all, many other miserable conditions for which we have no, or very limited, remedies. Third, I did not believe that his suggestion for approval by a multi-disciplinary team, alone, provided sufficient safeguards: the inclusion, now, of agreement by a doctor’s Responsible Officer provides me with re-assurance.

Despite my strong support for the Medical Innovation Bill there are important consequences for the professions when (as I hope) it becomes law:

1) Just because a particular intervention appears to have been effective in an individual patient it cannot be assumed that the results are generalisable. Further research in the form of one or more randomised controlled trials, or case series, will be necessary to establish its effectiveness. To take a recent example, a case report6 describing the apparently successful treatment of generalised juvenile pustular psoriasis with etanercept, requires confirmation before it can be regarded as the current standard of care.

2) There may be occasions when Responsible Officers wish to seek other advice before approving the proposed use of an intervention in accordance with the provisions of the Medical Innovation Bill. This will often need to be provided very rapidly especially when a patient has a life-threatening illness. The Academy of Medical Sciences, or some of the specialist associations such as the British Pharmacological Society, could have an important role here in offering a speedy advice service.

3) If the intentions behind the Medical Innovation Bill are to be fulfilled, NHS hospital Trusts, and their Responsible Officers, will need to look on proposals sympathetically. Anecdotal evidence suggests that too many Trusts are fearful of departing from the prevailing standard of care because of the possibility of litigation. The Bill should provide them with adequate reassurance.

4) It is essential that the results of using the Bill’s provisions, in individual patients, are placed in the public domain whether or not they have been successful. This would allow others not only to learn from such experiences but – especially for interventions that appear to have been successful – to undertake formal research.

I believe that the use of the provisions in the draft Medical Innovation Bill offer benefits to patients – especially those with rarer diseases – as well as to the furtherance of medical science. Subject to the responses to consultation it is the government’s intention to have it on the statute book at the earliest opportunity5.

References

1. Medicines Act (1968). www.legislation.gov.uk/ukpga/1968/67 (accessed 12.04.14)

2. McNair J. Bolam v Friern Hospital Management Committee (1957) 1 WLR 582.www.e-lawresources.co.uk/Bolam-v—Friern-Hospital-Management-Committee.php (accessed 12.04.14)

3. House of Lords. Bolitho v City and Hackney Health Authority (1998) AC 232.www.bailii.org/uk/cases/UKHL/1997/46.html (accessed 12.04.14)

4. Butler-Schloss LJ. Simms v Simms (2002) FAM.83 para 48.www.bailii.org/ew/cases/EWHC/Fam/2002/2734.html (accessed 12.04.14)

5. Department of Health. Legislation to encourage medical innovation.www.gov.uk/government/uploads/system/uploads/attachment_data/file/285272/9959-TSO-2901828-Legislation_to_Encourage_Medical_Innovation.pdf (accessed 12.04.14)

6. Fialová J1, Vojáčková N, Vaňousová D, Hercogová J. Juvenile generalized pustular psoriasis treated with etanercept. 2014;2:105-8. doi:10.1111/dth.12065.

Sign the petition for the Medical Innovation Bill: http://chn.ge/1pqY6lS

 

Want more info?

 

READ: Get the facts

 

READ: Jeremy Hunt’s support for the Bill

 

READ: Coverage in the Telegraph

 

 

I have managed to keep the pain down and have had a busy 2 day.

I had to tidy the garden and take the weeds that  are growing in between the slabs. How do they get there. Do the seeds land and grow or do they force their way up from under the slabs. Im having the builder come in May to render with cement so the problem might go away.

Then I tidied the bushes so they look better. Ray helped and cut done all the bigger trees for me and lower bushes so we had a good day yesterday.

easter chick

I thought the weather was going to be so nice for Easter but Im afraid it has now gone cloudy and cool. Such a shame for those that have gone away. We have decided to stay at home and finish the jobs I wanted to do. We are going to Peterborough next week so we can get the clothes packed. We need to save our strength as walking around is very tiring. We cant believe we have had our Autosleeper Clubman for 5 years now as we bought her in Peterborough. Ray always gets nervous when i start looking again.

But I love ours as she is a real Classic even at a 2002 model.  She has been good for us.

So I decided today to defrost the 2 freezers i have in the shed. A great idea to have it out of the kitchen, a bad idea when cleaning it out. A you have to take all the food out and make sure it doesn’t defrost. So B you have to work as quickly as you can.

I did it with the hairdryer. That melts the Ice well but of coarse you have to take a bowl of water out there to clean it.

The job was soon done and I was able to put everything back and I ended up with a draw empty just by tidying up.

I felt so good with myself and went in for a coffee and fell asleep.

I sent over some more photos for my Magazine write up, this is going to be a good one as it is all my story from 15. So many years to talk about that I need a series but the have manged to squash it all down. Cant wait to see it in print now.

Rod in Australia has published a greet campaign photo

17/04/2014 – Australia – The World
Tomorrow is Good Friday, a significant day for those of us who have a Christian faith, it is also the start of a four day long weekend (in Australia at least), which means Do-It-Yourself renovation time! Which in a lot of cases means DIY asbestos exposure or removal time! Can you be sure your home doesn’t contain asbestos? Have you had your home assessed for asbestos? DIY Asbestos could kill you many years down the track – worse, as a parent, you could be responsible for your child’s death even after you have died!
Remember, DIY Asbestos Is Dicing With Death – Know The Dangers – Be Asbestos Aware 365 – Act Now…Ask Us How!
- Rod Smith

A great time to warn people

BLF made my video for Take Five which give the same warning

Nancy has written a great piece on Peripheral Neuropathy

It has explained my condition so well, or should I say I have this condition just as she has described it.

Mesothelioma patients often face months of treatment to fight back the growing cancer cells in their body. Most often, though, these same treatments can result in side effects that cause sickness, infections and pain. While many patients are aware of these side effects, some patients are caught off guard from the lesser known side effect, neuropathy, which can potentially become debilitating.

According to statistics, nearly one-third of all cancer patients who receive chemotherapy will be affected by chemotherapy-induced peripheral neuropathy. Chemotherapy can cause nerve damage, leading to shooting pain, burning, tingling, numbness, problems with balance and grasping things, as well as cold or heat sensitivity. Neuropathy can also result from radiation and surgery. Treating this condition has proven to be challenging, and living with neuropathy can negatively affect a patient’s quality of live.

“Peripheral neuropathy is a chronic, debilitating problem, with some patients enduring pain, numbness, and tingling for months, possibly years, after completion of chemotherapy,” says researcher Ellen M. Lavoie Smith, PhD, an assistant professor in the School of Nursing at University of Michigan, Ann Arbor, according to WebMD.

Mesothelioma patients should alert their doctors if they are suffering from neuropathy symptoms from mesothelioma treatment. There are a variety of options available to help patients live a higher quality of life during and after their treatments.

Doctors at MD Anderson Cancer Center sometimes resort to trial and error to relieve neuropathy symptoms for cancer patients. For example, if a patient is still undergoing chemotherapy treatments when the neuropathy starts, “the oncologist may lower the dose or extend the time between doses of the drug that are suspected of causing neuropathy,” said Allen Burton, M.D., chair of the Department of Pain Medicine.

MD Anderson physicians may also prescribe pain medications in conjunction with physical therapy. The combination has proven to both reduce pain and restore the patient’s ability to function. In addition, physicians may try alternative treatments including acupuncture and heat therapy.

The antidepressant drug Cymbalta has been found to reduce neuropathy symptoms in diabetic patients, who frequently experience neuropathy. Hoping to find the same relief for cancer patients, a team of researchers from the University of Michigan School of Nursing, led by Smith, tested the medicine on over 200 people who suffered from chemotherapy-induced neuropathy. According to a 2012 article in WebMD, nearly 60% of the patients experienced a decrease in their pain. Cymbalta was the first drug found to alleviate chemotherapy-induced neuropathy symptoms in cancer patients.

Doctors are just as concerned about a mesothelioma patient’s quality of life as they are in treating the cancer. It is important that patients work closely with their doctor and medical team to find the best option for managing neuropathy.

Sources:
Cymbalta May Relieve Chemo-Induced Pain, Tingling
Cymbalta Reduces Chemotherapy Induced Neuropathy
Neuropathy: It’s More than a Feeling

More articles by 

Nancy Meredith is a blog and web content writer with more than 20 years of professional experience in the Information Technology industry. She has been writing about Mesothelioma for 4 years. Follow Nancy on Google+

 

Read more: http://mesotheliomahelp.net/blog/2014/04/mesothelioma-patients-work-doctors-manage-neuropathy#ixzz2zAyCbSHb
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A friend on Face Book is visiting the Singing Ringing Tree I had never heard of it But Its a Burnley—have a listen x

Rays Blog http://mesoandme.wordpress.com/2014/04/17/wednesday-83/

Yesterday was another childhood sunny day. We seemed to always have summer like this when I was a child. Alway sunny and off to the beach to camp with my school friends. My Dad had a friend in the Dockyard and we went to camp with them at Mister in the Isle of Sheppey.

It was after the war when you could by ex military stock. Well he had bought an Army tent. Huge and they had proper beds in there. It fascinated me.

We enjoyed going shopping yesterday as I wanted to go to Lidl’s as Ray wanted to go to Canterbury to buy a new telly. Once on thing goes everything seems to go The washing machine , my monitor, and now a small telly we have in the den here so I can keep up with my soaps when on the computer each evening.

Well I haven’t been to Lidl’s for sometime, and I loved it. Shopping was really cheaper and also I love buying and trying things I have never had before. Of coarse I love the feeling of Spain, as that is just how all the shops a laid out .

So we came home with as much as I get in Tesco’s but over £20.00 cheaper. Im a happy bunny. Funny how little things can please.

I had a phone call from Take a Break Special this is the summer issue and I have been working with them as they are writing my story in a way it hasn’t been written before. The story was re read to me and Im very pleased with it. So it is a wrap as they say. I have to send a couple more photos today and then its all ready for print.

I also have a email from Mesothelioma Uk to write a piece so I will knuckle down this weekend and write that.

So its all busy. It never stops but I don’t mind.

Well it was tuesday and the Saatchi Bill question and  Answer was on Facebook it was very hard keeping up with the questions but I did get a few asked and answered mainly by Doctor Chan.

One very amazing point we  learnt  is that if you have peritoneal  he said —Paul Sugarbaker is excellent, but Brendan Moran in Basingstoke (Pelican Centre) does the same thing in the UK, as Paul (he trained with Paul in the USA). This is to take the linings from organs ad then hot Chemo –we didn’t know that and our Jan had hunted everywhere for info on her Op as everything was going wrong for her and she died. The sooner we get a central Bank of info the better. We need to know where all the treatments are.

Also that everyone can have a Phase one trial it has nothing to do with how many Chemos you have had previously. They are only done in large hospitals because they generate loads of paper work. and I can see that point.

So we had a great hour and it wasm good to hear that 10’000 votes was good enough to get the Bill passed but they now want to see as many as possible and it will be a great victory.

https://www.change.org/en-GB/petitions/jeremy-hunt-department-of-health-11-days-to-change-medical-history

So please sign the petition and play a part in history and also email to as many as possible lets show the Government that people power makes changes.

Coming to Easter and Decorating -be aware of old Artex old floor tiles lino cornices plaster mouldings pipe lagging old wall boards all could have Asbestos. So Take Five

https://www.youtube.com/watch?v=N-yjmaBlyx0

Rays Blog http://mesoandme.wordpress.com/2014/04/15/tuesday-91/

Photo: Please join our Facebook Chat right here next Tuesday 15th between 8-9pm.</p>
<p>We’re really proud and grateful for all the support we have had from the Duchenne Community, in particular Harrison’s Fund leading the way, with Joining Jack and the Duchenne Alliance</p>
<p>We’re also really grateful for all the support from the Brain Tumour Community Brain Tumour Support (Aunty M)  The Joshua Wilson Brain Tumour Charity – and we look forward to welcoming you all to our chat.</p>
<p>And the Mesothelioma Community – Mavis Nye and all the MesoWarriers.</p>
<p>And of course so many others: Womb Cancer Support UK Chris’s Cancer Community Teenage Cancer Trust AMMF  and all the individuals we can’t tag!</p>
<p>We look forward to chatting next Tuesday.</p>
<p>Please share and invite your friends.</p>
<p>#SaatchiBill” /></p>
<p>I hadnt dreamt it the helicopter was hunting for criminals Saturday night</p>
<p style=Two men were taken to hospital with knife injuries last night after they were assaulted in Whitstable.

A 19-year-old Whitstable man was located by a police helicopter and arrested on suspicion of assault.

The two injured men, also aged 19, had been assaulted in Church Lane, Seasalter, at around 11.10pm.

They were taken to hospital to be treated for knife injuries, described as not serious.

It is understood that the men are all known to each other and the man arrested remains in custody.

 http://www.kentonline.co.uk/whitstable/news/two-hurt-in-knife-attack-15790/

Monday was a lovely sunny and we had to get up 6.30 have breakfast as the dreaded day had arrived for  the Motor Home  MOT.

If you ever want to know a good Garage here in East Kent especially my Motorhome friends http://www.garage-services.co.uk/dargate/how_to_find_us.cfm

We dont have to go far as it is by the Country Park and so we handed the keys over to the Mechanic and walked into the Park. It was empty, no cars with other dogs going for a run.

Letting Louis run around catching the ball it was lovely if a very cold wind.

We came back home and was so pleased that the M/home had passed. There were three of us in our Facebook Mavericks club that had passed so it was a good day just as Easter is coming up.

I had to chase my letter to the Royal Marsden. I hone my Oncologist Secretary and the letter was still sitting on a desk somewhere as there had been something wrong when it was typed? I chased it up and then I rung the Royal Marsden  to see if there was anything to be done to get an appointment. I asked for Dr Rhoda Molife Secretary but was put through to the Doctor herself oops.

I explained what the hold up was but she said she cant do anything until the letter came through. I said I was interested in her work but she assured me there are many Phase 1 trials for Mesothelioma so she will talk to me and find out which one was suitable for my case.I told I new about PD1 therapy with a trial and she said it was showing good results with all Cancers.

Adapted from the NCI Cancer Bulletin.

Results from two early-phase clinical trials presented at the 2012 American Society of Clinical Oncology annual meeting provide further evidence that priming the immune system to attack tumors has potential as a treatment for certain cancers. The findings were also published June 2, 2012, in the New England Journal of Medicine (NEJMhere and here).

Although preliminary, the results are notable because, in both trials, the treatments produced substantial tumor shrinkage in some patients withnon-small cell lung cancer, which has been extremely resistant to immune-based therapies thus far, the trial leaders explained. And in many of these patients, the tumor responses were maintained for a year or more.

“I think it’s one of the most exciting things I’ve seen in recent years,” said D. Ross Camidge, M.D., Ph.D., a lung cancer researcher at the University of Colorado Denver, who was not involved in either study. “A lot of the progress we’ve made recently has been about identifying molecular subtypes of lung cancer and having very specific targeted treatments. The promise of immunotherapy is something that actually cuts across some of those boundaries and may change every single treatment paradigm that we’re currently developing.”

Both studies tested investigational drugs that target molecules known as “checkpoint” molecules, which help restrain immune responses so they don’t harm the body. Tumors can co-opt these checkpoint molecules, weakening the immune system’s ability to eradicate the tumors.

Tumor shrinkage was also seen in patients with melanoma and kidney cancer. Previous studies have shown that these cancers can respond to immunotherapy, and the Food and Drug Administration (FDA) has approved immunotherapies for patients with these tumors. In addition, one of 17 patients with ovarian cancer who received one of the investigational drugs also had a tumor response.

Unleashing the Immune Response

The two drugs tested in the trials are monoclonal antibodies, one of which targets a receptor protein known as PD-1 on the surface of activated T cells. The other drug targets a binding partner (ligand) of PD-1, called PD-L1, which is expressed at higher than normal levels on many tumors and on cells in thetumor microenvironment in response to inflammatory stimuli.

Both agents are being developed by Bristol-Myers Squibb, which was the primary funder of both trials.

In 2011, the FDA approved the first checkpoint molecule inhibitor, ipilimumab (Yervoy™) to treat advanced melanoma. Ipilimumab, however, targets a different checkpoint molecule, CTLA-4, on the surface of activated T cells.

Patients in the trials also had stomachbreastcolorectalcastration-resistant prostate, or pancreatictumors that grew despite multiple prior treatments. Nearly 300 patients were enrolled in the trial testing the PD-1 targeted agent, and slightly more than 200 were enrolled in the trial testing the PD-L1 targeted agent. Both trials tested escalating doses of the drugs, starting with a low dose. If no significant side effects were seen, the researchers incrementally increased the doses for patients who enrolled later.

The results are intriguing not only because of the number of the responses but also because of their durability, noted Suzanne Topalian, M.D., of the Johns Hopkins University School of Medicine, who led the trial testing the PD-1 targeted agent. Among 31 patients who responded to the PD-1 targeted agent and were followed for at least one year, 20 had responses that persisted for at least a year.

Patient Response Rates by Cancer Type
Anti-PD-1 Trial Anti-PD-L1 Trial
Melanoma 26 of 94 patients 9 of 52 patients
Kidney 9 of 33 2 of 17
Lung 14 of 76 5 of 49
Ovarian n/a 1 of 17

The most common side effects of treatment included fatigue, rash, and diarrhea. Other less-common side effects, such as fever, were consistent with the activation of the immune system. Five percent of patients in the trial targeting PD-1, and 6 percent in the trial targeting PD-L1, stopped receiving treatment because of severe side effects, and three patients who received the PD-1 targeted drug died of uncontrolled lung inflammation, called pneumonitis, caused by the treatment.

“The pneumonitis is a safety concern,” said Dr. Camidge. And finding a method to predict which patients are most likely to benefit from these agents will be essential to justify both the risks and expected costs of any licensed immune therapy, he added.

In an attempt to address this issue, Dr. Topalian and her colleagues examined tumor samples collected before treatment from a subset of patients in the anti-PD-1 trial. They found that about one-third of the patients whose tumors expressed PD-L1 had measurable tumor responses, whereas no responses were observed in patients whose tumors did not express the protein. Much more work is needed, she stressed, before PD-L1 could be considered a predictive biomarker of response to treatment.

An Important Pathway

The trials’ impact on immunotherapy research could be substantial, suggested Antoni Ribas, M.D., of UCLA’s Jonsson Comprehensive Cancer Center, in an accompanying editorial in NEJM.

“These initial observations suggest that antibodies blocking PD-1 and PD-L1 are likely to provide a new benchmark for antitumor activity in immunotherapy,” Dr. Ribas wrote.

Additional phase II trials of the PD-1 targeted agent are under way, and phase III trials involving patients with melanoma, non-small cell lung cancer, and kidney cancer are being planned. PD-1 pathway targeted agents are also top priority agents for clinical trials that will be conducted by researchers in NCI’s Immunotherapy Clinical Trials Network.

“We’ve come to this point where we really understand the importance of these inhibitory pathways, which are holding the immune system back from recognizing cancer,” said Dr. Topalian. “By blocking these pathways, we can then drive the immune system to recognize and destroy cancer cells.

“We feel that these findings, in addition to the findings reported in the past 2 years with ipilimumab, have established immunotherapy as a treatment for cancer,” she added.All looks very exciting

http://www.publications.parliament.uk/pa/ld201314/ldhansrd/text/140409w0001.htm#wa_st_91

Department for Education is currently reviewing its policy on asbestos management in schools and intends to publish the outcome of the review by the end of June. The scope of the review includes the conclusions of the Committee on Carcinogenicity’s statement on the relative vulnerability of children and the recommendations from the report Asbestos in Schools: The Need for Action produced by the All-Party Parliamentary Group on Occupational Safety and Health. The Health and Safety Executive publishes figures on asbestos-related deaths—including occupational information—on its website. We do not know of any figures detailing the incidence of asbestos-related diseases in children.

A great site http://www.wecancentre.org/Research/Mesothelioma-Team.html

A lot of good info for us Warriors on this lovely site

Laboratory Research
(Anthony Chalmers, Saurabh Dayal) Mesothelioma exhibits resistance to various treatments including radiotherapy. Upon irradiation, normal cells undergo programmed cell death (apoptosis). Defects in the pathways leading to apoptosis within mesothelioma cells may explain their resistance to radiotherapy. This project aims to overcome this by using Tumour Necrosis Factor-Related Apoptosis Inducing Ligand (TRAIL), an agonist of the apoptosis pathway in combination with radiotherapy in laboratory and animal models. Once the cytotoxic effects of the combination of radiation and TRAIL have been demonstrated we will investigate the mechanisms underlying what appears to be a synergistic interaction. We also aim to identify potential predictive biomarkers of a response to radiotherapy.

Rays Blog http://mesoandme.wordpress.com/2014/04/14/monday-81/

We had a quiet Sunday as I did a little in the garden

Today we had the thrill of getting the Motorhome to the Garage for its  MOT.

We took Louis with the intention of a lovely country walk in the park.

It was very sunny but the wind is bitter cold. Walking into the wind we froze and then turn back with the wind on our backs and the sun on our face it was warm.

Having walked the dog sufficiently Ray and I turned back and went into the waiting room as the M/H was being worked on still. You sit there like a doctors waiting room, waiting to see if the news is good or bad, but our little love didnt let us down and passed with flying colours. Bless her she is already for a good trip out.

Home now and settled with a coffee and our nerves are back in place.

We all have our fingers crossed for two Warriors. James who is in chemo and waiting to go on the Command Trial, and Steve who is waiting to see if  the results of his scan are good or bad, Steve may or may not continue treatment with vandetanib and selumetinib.  However, he’s done his bit for medical research for the time being, so no more “PK” bloods over a 24 hour period – just going back to hospital for monthly check ups if the drugs have worked for him and he decides to continue.

I wasnt dreaming then we had crime come to our door step Saturday night

This becomes very frightening as we never know when these things happen and in a very quiet spot.

http://www.kentonline.co.uk/whitstable/news/two-hurt-in-knife-attack-15790/

Police helicopter helped to track down a 19-year-old from Whitstable after two men were assaulted

Two men were taken to hospital with knife injuries last night after they were assaulted in Whitstable.

A 19-year-old Whitstable man was located by a police helicopter and arrested on suspicion of assault.

The two injured men, also aged 19, had been assaulted in Church Lane, Seasalter, at around 11.10pm.

They were taken to hospital to be treated for knife injuries, described as not serious.

It is understood that the men are all known to each other and the man arrested remains in custody.

http://www.telegraph.co.uk/health/saatchi-bill/10763909/Saatchi-Bill-This-isnt-quackery-its-good-practice.html

Professor David Walker explains why the Saatchi Bill will lead to new therapies for thousands of desperate patients

Prof David Walker

Prof David Walker says the Saatchi Bill will ‘give patients with nowhere else to go additional choice’ 
 By Dominic Nutt
Paediatric cancer specialist Prof David Walker’s work is a bittersweet affair. At times he is able to deliver the happiest of news to parents: that he and his team have saved the life of their child. Equally, he is the one who has to tell a fearful mother and father that there’s nothing more he can do, that their son or daughter’s cancer has spread beyond the reach of his drugs and the surgeon’s knife, and that their child will die.

Based at Nottingham University for the past 22 years, working at Nottingham Children’s Hospital and Nottingham Medical School, Prof Walker combines a passionate commitment to the welfare of his patients with a deep respect for scientific discipline.

He wants to see more and better therapies added to the armoury of paediatric cancer treatments, to save the lives of more children, and is frustrated by the obstacles that block the path to new cures for cancers.

Medical science decrees that no new treatment should be used until it has been thoroughly tested in randomised clinical trials. Trials are the gold standard, Prof Walker stresses, and where possible patients should be in a trial if one is available. “Research does require regulation to introduce new drugs and treatment safely,” he says.

But trials alone cannot meet the desperate need for new treatments, in particular for rare cancers. “There will never be enough trials, they take years, and in any event there are rarely trials for less common diseases. There just aren’t enough patients.

Around one in 600 children under 16 are diagnosed with cancers. The most common, such as leukaemia, account for a third of cases, and treatment success rates are high. But some are hard to treat, other than with surgery, such as the highly malignant rhabdoid tumours, which start in the kidney. There are no standard therapies for these cancers and less than one in five children diagnosed with a stage III or IV rhabdoid tumour will survive beyond four years.

With such rare childhood cancers, it is hard to gather enough patients to form a trial in one country alone, and these have to be organised internationally.

“The problem is that there are many different tumour types and sub-types in childhood cancers, each having an unique biological signature justifying a unique scientific rationale for their treatment with modern drugs in development,” says Prof Walker. “They are all rare in the population and there is a huge element of luck as to whether in your child’s case there is a trial available.”

So, while potential new drugs may exist, they cannot be used. “A drug may be available, the scientific rationale for its use may exist, but patients cannot receive it if no trial has been organised to assess its effectiveness and toxicity,” says Prof Walker.

He also points out that the “big four” cancers – breast, bowel, lung and prostate – dominate media coverage as well as fundraising, research and trials. Researchers want to work on the common cancers because their research will be better funded, while drugs companies are more interested in this area as there is a bigger market, and a greater potential profit.

If you have a less common cancer – and there are hundreds – your chances of getting on a trial are limited and the chances of there being innovative treatments are, in many cases, zero. Yet taken together, less common cancers – defined as a cancer that affects five people or fewer in 10,000 – account for more than half of all British cancer deaths. One in six of us will develop and die from a rare cancer.

The lack of trials in this area means doctors who want to cure their patients, rather than just manage their deaths, are caught in a scientific circular argument. There is no evidence that a new treatment will work, so it cannot be used to find out if it does work.

Prof Walker believes that doctors should be able to try new treatments with such patients on an individual basis. Yet, he argues, the law, and the culture of defensive medicine which surrounds it, stands in the way of innovation. Doctors are protected if they stick to the well-worn path of “standard procedure” even if it leads to the death of the patient. But they may be vulnerable to legal action if they try something new and it fails.

Which is why Prof Walker supports Maurice Saatchi’s Medical Innovation Bill, currently going through a public consultation process by the Department of Health, which ends later this month. It seeks to provide legal protection for doctors who innovate in the interests of their patients. He argues that when patients are terminally ill and there is no trial for which they are eligible, a doctor should be free to innovate.

“We need to allow them to try new drugs outside of a formal trial and collect the data from those innovations to inform the next generation of trials,” he says. “The Saatchi Bill would protect individual doctors who try new, untrialled treatments, where there is a scientific rationale for their use, in patients who consent.

“This isn’t a licence for the maverick doctor acting alone – the Bill obliges the doctor to seek agreement from peers.”

The Saatchi Bill, he believes “will give the patients and their families additional choice and allow doctors to try new medicines in people who have nowhere else to go, and do it in such a way as we could all learn from it”.

Prof Walker also believes that even when an individual patient cannot be cured, this kind of innovation will advance medical science for future patients.

“When people are dying,” he says, “they all would like their passage through their illness to have some meaning and to learn from the loss of their life.”

He also explains that many cancer drug trials rightly focus hard on a tightly defined group of patients with the same tumour type, which has within it a particular cancer molecule, that the drug being tested is designed to block.

Using molecularly targeted drugs in patients with the same tumour drives robust results. But, says Prof Walker, “there is a weakness in the process, because it doesn’t tell you where else the new drug may work. It only tells you that the drug works on a very specific patient type with a very specific tumour which has within it that particular molecular target.”

The new drug may work in another rarer cancer with the same molecular target, he says. “But if I have a patient with a very rare cancer with the same molecular target, I can’t use it. Current rules require us to set up another trial in that tumour, and that’s expensive and requires collaboration with the drug industry, which may not wish to supply the drug for such a purpose if they don’t think it is commercially advantageous. So, in the meantime, the hospital won’t release that licensed drug for an unlicensed purpose because there’s no evidence that it works,” he says.

This is where the Lord Saatchi’s Medical Innovation Bill would help, he argues.

“If we could test drugs in a patient and record our results in an open-access database, this would contribute to our understanding of the application of this drug and perhaps help with selecting new drugs for clinical trial by identifying those with most promise; although it is important that the drug has already been tested fully on patients with a different cancer but with the same molecular signature.”

Opponents of the Bill argue that a law that supports doctors who want to try new treatments outside the trial process is a “quack’s charter”.

Prof Walker disagrees: “To offer an untried treatment and not learn from the process would be quackery.” “But to use untried treatment and to try to learn, responsibly, about the effect on the individual, and share that learning with others would seem to be not quackery, but actually responsible professional practice.”

To urge the Government to enact the Medical Innovation Bill, sign the petition at http://chn.ge/1pqY6lS. For more information, see saatchibill.tumblr.com or tinyurl.com/saatchibill. Follow@SaatchiBill on Twitter

A very slow day yesterday so a lazy weekend. We wanted to go away but I just cant raise the mojo to pack the Motorhome. I cant let each day roll into another like this. I cant waste the precious time, and yet time with Ray and Louis is never wasted as we live another day together.

I think Im on edge about the hospital appointment. I will chase things tomorrow. All this waiting for appointments, scans, treatment, help with our illness it is wasting time I dont have.

I enjoy tidying up everyday and playing housewife better than a patient though. I managed to get everything done while Ray walked Louis, they seemed to tke longer. I like being able to get on, then I think they are taking a long time, and then I start to panic. What if a car has hit them etc etc , the mind goes into over drive. Then I see them coming up the road and Ray says Oh I bumped into so and so we had a chat.

I like nothing has happened, Oh thats nice.

We went to bed last night, I dropped of in my drugged state and was dreaming about a noise that went on and on. I woke up and I wasn’t dreaming.

Lights were shining in my bedroom window so I leaned out and twisted the pole to open the blinds.

A helicopter was very low, very very low.

He was traveling over the homes in huge swoops and so noisy.

This went on for ages and Ray never even stirred.

I wonder who they were looking for. We do get lorries stop  in a layby and they drop off Immigrants so they work on a farm by us.

We do have an estate by us that have naughty young people.

Cars get stolen and they race along the Thanet Way so whether they were being chased and the dump the car and ran for it. All that happens just like the telly but we have to lay in the dark to try and drop off again wondering if the person they are looking for is in your garden.

The mind works overtime on so much doesnt it.

Little Bit amazed at the fact Noel Edmonds is trying to buy the BBC. How strange as out of the blus the story reached us yesterday.

(The BBC should be run as a not-for-profit organisation with adverts and product placement, Noel Edmonds has claimed.

The ex-BBC star turned Channel 4 presenter said the licence fee was “no longer appropriate” and the corporation was “sleepwalking towards total disaster.”)

It would do away with having to pay the licence fee I suppose.

I do love his Deal or no Deal but to see him taking over Strictly come dancing when Bruce finishes.

Weird times this .

Noel Edmonds on Alan Carr Chatty Man

“It’s been fascinating who’s approached me in political circles, people within the BBC, members of the public and some very wealthy people in institutions say this is not the maddest idea ever. It needs a change in the Royal Charter of course but it’s coming up for renewal and unless the politicians do something we are going to have a situation where how much of the BBC is going to be cut apart?

http://www.digitalspy.co.uk/tv/news/a564160/noel-edmonds-talks-buying-the-bbc-its-not-the-maddest-idea-ever.html#~oBig1j0fuN6xXE

We live in Crazy times so anything is possible

With only a few days to go would you please sign for the Bill if you havent alreadyRight now, the government is deciding whether to pass a new law, the Medical Innovation Bill, that will help doctors to find new treatments safely and responsibly for cancer and other diseases.

[https://www.youtube.com/watch?v=ruoTvoxyu4g&feature=youtu.be]

lord saat

For Harrison, 8, who has Duchenne — a 100% fatal condition — and those with cancer and other diseases it is a matter of life and death.

Standard treatments for rare cancers and other less common diseases often don’t work. And in many cases they haven’t changed or been improved for years.

This leaves the patient with a terminal illness no hope, no choice and no chance. 

The law makes it hard for doctors to try new treatments — even when they know that standard procedures are not going to cure the patient.

Offering only the standard procedure guarantees the doctor will not be sued. 

Safely trying something new leaves the doctor open to litigation and the loss of his or her job. 

This is why current law is a barrier to innovation — it creates a culture of defensive medicine in the NHS. 
The Medical Innovation Bill will remove this barrier and help doctors innovate safely on behalf of their patients. 

Jeremy Hunt, Health Secretary, said he would pass the Bill into law but only if the public say they want it. 

Hunt said: “The government should do whatever is needed to remove barriers that prevent innovation which can save and improve lives. The Medical Innovation Bill…correctly identifies the threat of litigation as one such barrier.

There are 33 days left of the Department of Health public consultation and we need your voice.

Help us ensure the Government keep their promise.


“The Bill seeks to support doctors who endeavour to act in the best interest of their patients without the fear from litigation.

“It deters from irresponsible experimentation but encourages a much needed attitude change of innovation in the provision of care to patients.” 

Professor Ahmed Ashour Ahmed, Professor of Gynaecological Oncology, Consultant Gynaecological Oncology Surgeon and Scientist, University of Oxford

Click. Sign. Change medical history.



More info:
The Bill, inspired by Lord Maurice Saatchi has been drafted with help from eminent clinicians, lawyers and judges including Lord Woolf, Former Master of the Rolls and Lord Chief Justice, Baroness Butler-Sloss, former Lord Justice of Appeal and leading Professors from the Oxford School of Medicine, among others.

Rays Blog http://mesoandme.wordpress.com/2014/04/12/saturday-84/

Photo: Please join our Facebook Chat right here next Tuesday 15th between 8-9pm.</p>
<p>We’re really proud and grateful for all the support we have had from the Duchenne Community, in particular Harrison’s Fund leading the way, with Joining Jack and the Duchenne Alliance</p>
<p>We’re also really grateful for all the support from the Brain Tumour Community Brain Tumour Support (Aunty M)  The Joshua Wilson Brain Tumour Charity – and we look forward to welcoming you all to our chat.</p>
<p>And the Mesothelioma Community – Mavis Nye and all the MesoWarriers.</p>
<p>And of course so many others: Womb Cancer Support UK Chris’s Cancer Community Teenage Cancer Trust AMMF  and all the individuals we can’t tag!</p>
<p>We look forward to chatting next Tuesday.</p>
<p>Please share and invite your friends.</p>
<p>#SaatchiBill” /></p>
<div class= 59m

15 days to make medical history: Sign the petition:

I will do a count down and looking forward to the Chat on Facebook

A really fun filled day today, I love days that you wake up at 5.30 and the sun is coming up. Is summer really here

I cant believe they would even dare to blot our Easter with Snow warning.

You cannot be serious you just cannot.

A flurry of bad weather is on the way this Easter – experts have warned.

The UK is set for an ‘Arctic plunge’ in the coming weeks with showers and even SNOW forecast.

“It may well become windy and showery, with wintry showers and snow over high ground in Scotland, but possibly low levels too,” Weather Channel meteorologist Leon Brown said.

Despite many expecting sunny spells and warmer temperatures as winter makes way for spring this month, things could in fact turn colder once more.

“Even though it’s very late in April, it could be more like weather we’d expect in late March,” Mr Brown added.

http://www.mirror.co.uk/news/uk-news/uk-weather-snow-showers-forecast-3395411

So soak up the sun while you can just in case they have got this right.

But Gerald has given me http://www.bbc.co.uk/weather/2635167#outlook Lovely weather

And Andrea has given me http://www.mirror.co.uk/news/uk-news/uk-weather-heatwave-lasting-three-3384697

So now we have to wait to see whose right

I Had a Phone conference today. In all my years in business I haven’t had a phone conference. I have had Sype ones but never a phone where you phone a number and enter a code and then say your name. A electronic voice told me I was the only one in the Conversation. It was 11 the time I was emailed. I put the phone down and did it again. It said I was the only one again so I hung on and low and behold the 2 others came on and I relaxed. We had a long chat about me doing a talk to Doctors and Medics ref my treatment and how I  have found it with my journey within the NHS. I have collected stories from Mesowarriors about their journeys with the NHS so I will be able to weave them in with mine.

So I now know what is expected of me and I can relax a bit as its not June so I will write it over the next few weeks

I have spoken to Liz Darlison Ref Emmerdale and I told her how the warriors had been on the Emmerdale Face Book and put right the ignorance that there is about Asbestos and the story of Donna.

We will make sure and keep inputting on there to help as some are so upset that they have lost someone to he disease so we have given them Mesothelioma UK web link to help them out.

We did manage to go out to our Woodland Park with Louis and all the dogs from Waggy Tails were there as well we haven’t seen them all winter but its been to muddy.

Victory Wood, Nelson's Statue

Nelson was still there and watching over us. We were able to let Louis Run around and he was well tired by the time we got him into the car. He flopped in and laid there panting away.

We bought the little man back home where he slept until I cooked his lamb chops for Dinner. So he is a happy boy tonight.

 

http://www.independent.co.uk/news/uk/home-news/window-display-closed-at-selfridges-in-asbestos-scare-966920.html

I know this is 2008 but it is a good example of how Asbestos is around us and how we must stay vigil

Selfridges has been forced to close the world-famous window display in its flagship London department store for a month after the discovery of asbestos, The Independent has learnt.

The company stressed yesterday that it had taken steps to ensure that the hazardous material – found in the five main windows at the front of its Oxford Street store – was dealt with safely and that there was no risk to public health. The store was not shut while the asbestos panels were removed.

If disturbed, for example by being drilled into or broken, asbestos can release fibres that can cause an incurable, terminal cancer. More than 4,000 people a year die from diseases related to asbestos – more than the annual death toll on the UK’s roads.

After The Independent contacted the store, Selfridges’ communications director, Christine Watts, said the asbestos panelling was discovered about three weeks ago by experts who are currently carrying out a full survey of the building. “It was found at the top of the window frames of five out of the 26 windows. They were sealed immediately and the HSE [Health and Safety Executive] was informed. Everything was done according to HSE guidelines, with approved contractors and so on,” she said.

The asbestos panels were removed last week, while the store remained open. “The windows were sealed up straight away,” Ms Watts said. “The removal has been completed and now the next stage is obviously to rebuild the window frames. It’s an old building and we always check for asbestos whenever we do a refurbishment. On the occasions that it’s found, it is dealt with absolutely in line with HSE requirements.”

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