Mesothelioma Patient-My Diary– the bad news was given to me today–Mr Nasty wants another fight!!!!

Oh dear its been a day.

I wont hold this up by saying I walked the dog, I made breakfast,  and we traveled to London by train, that part hasn’t changed from Monday … we did the same journey again, had a lovely meal in the restaurant, went to the Oncology room  for appointments, waited from 2pm until 3pm and at last I could get out of the crowded waiting room to see Dr Peter Szlosarek.

He had the results of my scan —bad!!! the tumours are all growing well,  he showed me and together we found each one as he moved down into my chest.

Oh dear I said can we go for the trial now. —Oh! he said “I thought you was going to say Chemo” No! now’s the time to have a go at the trial” I said.

So we had a long chat (they are so good and really let you ask all the questions you want to, until you understand what is going on)

Ray asked some more and then The Doctor said first any pain, when I explained the bottom of my lung hurt but I thought it was my Diaphragm as it was damaged when I had all that fluid.

He thinks it is the tumours and they have pushed my last rib out.

So I was offered a prescription for more pain killers  and I will see how I go with them.

My kidney is showing that it is dry!  in parts its on the red?  so I have to drink more fluids 2 ltrs a day, gosh I wee enough now!!! I will stuck in the loo from now on!!!.

An appointment was made for Aug 12th (the letter was printed there and then) where we will look at a a new bi-op that will be done next week? when? I don’t know yet.

I haven’t got to stay in for that so that’s good.

He asked me to have a blood test today so I took the  forms for that.

So that was that! we still had a laugh though (whats the use of crying it just doesn’t help does it, as he said, its still in the chest although the Lymph gland near my voice box has got bigger again. Thats why I sound like Orville on the phone (my son’s description that the Doctor has put in my notes )

We shook hands and left. I went down to Dracula’s room and had my blood taken, then it was back on the homeward journey.

It was a long noisy journey home on the train lots of noisy children and I just couldn’t think.

We got home and let Louis out, had some tea ad then set off for a C&CC Rally but the Sat/Nav took us to a church hall and we couldn’t  find any Motor Homes so we came home as I hadnt taken any phone numbers.

It seems the sat/nav took us to the Church hall instead of the Village hall, so we will get up early tomorrow and go to Challock and hope we find them this time.

Than the phone went and Judy, who’s husbandKeth has Meso, phoned to ask was I at St Barts today–yes I said– Oh no I thought it might be but we had to go into see the Doctor.

I wish I had seen her, but I really didn’t as I was watching the fact that whole families came in with 2 Patients and they took up so many seats that patients needed. I know eveyone does it different but I just like Ray coming as it is so hard when you hear bad news.

Well thats it after a high yesterday I have come to a very low. I have to start my fight all over again.

I have had to declare war on Mr Nasty!!!!!!